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I'm 19 and just found out...
Hi I'm 19 and just found out I have some type of hodgkin's Disease and it's in stage 3A. I don't even know why I am posting a message. I don't know what good this will do. But I start Chemo this Tues and I'm scared. I am a 19 year old guy with cancer...heh that's not supposed to happen. Anyways if anyone has anything to…
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low back pain with NHL
Hi, I'm new to the group and am wondering if anyone else has experienced debilitating low back pain with NHL. My primary sites have been on my aorta and after treatment I had a 21 month remission, then it appeared in my paratoid gland. Again I underwent treatment and after a 6 month remission I again got it in the other…
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newly diagnosed
Hi. I am so happy I have found this site and can read the experiences others have had. I was diagnosed with HD during the first week of March. I have a mediastinal mass that they say is pretty big. I was diagnosed stage IIb. I had drenching night sweats for about 2 months before being diagnosed. I visited my ob thinking I…
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Wondering about Radiation
My name is Holly and I have Non-Hodgkins Lymphma, of the agressive, diffuse large B cell type. I'm attending college right now, and somehow made it through even with the chemotherapy treatments. Right now, I'm unbelievably tired! I need to take 2 summer courses in order to start my nursing classes in the fall, but I am…
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need to start treatment
i forgot to mention i have sll/marginal zone which is not curable by standard treatments
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need to start treatment
hi, i was diagnosed with nhl about a year ago through a routine mamogram...i had absoluely no symptoms...i went to mamorial sloan kettering and was told to get periodic ct scans and checkups and wait a while to start treatment since there is no cure for this tpe and they like to delay treatment untio there are symptons…
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Hodgkin's Survivor
Hi Trisha, Don't you EVER give up!!! I hd Hodgkin's in 1993 (stage 3A), and again in 1994 (stage 5B). In November of 1994, I had an autologous BMT. High dose chemo for two days, and then lay in a bed for three weeks in isolation. Couldn't see my kids because they had colds. I never gave up. Three months after my transplant…
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I am a survivor, now what
Hi everyone: I was diagnosed with Non-Hodgkin's Lymphoma in September of 2000. I was sick six months prior to my diagnoses. However, my symptoms mirrored typical food allergies and I was sent to an allergist and put on Predisone several times. Finally, a third trip to my regular MD resulted in her insisting that I see…
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hodgkin's survivor
hi everybody, I'm Erin, I'm new here so I thought I'd tell everyone a little about myself. I'm 17 right now, I'll be 18 in Sept. I was diagnosed when I was 14 years old (8th grade). I had three intense rounds of chemo therapy and 14 radiation treatments. I was pretty lucky considering my entire therapy only lasted a little…
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On the dopwn side
Down to last treatment at months end.Cell type was an inbetween large and small,somewhat unique, so I am told.Bone marrow to follow to varify gone.Cure looks good
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Bone Marrow Transplant
In November last year I had my bone marrow transplant. I was my own donor. It's been 5 months since my last treatment and I'm doing great. I'm glad it's all over and I'll never do that again.
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Living With Hodgkin's
Hi, my name is Trisha and I currently have Hodgkin's Disease. I have had about 5 rounds of chemo, a bone marrow transplant, and some radiation, but to no avail the treatments did not work even though Hodgkin's is one of the most curable cancers there is. I have got to the point that the doctors have no more solutions or…
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NHL - coming to the end of treatment
I have NHL - Large B Cell, diffuse. I have had 6 rounds of Rituxan/CHOP chemo, and am down to my last 5 rounds of radiation. I am anxious to know that the cancer is gone but know I have to wait until June to go for the scans. It's so reassuring to read messages from people who are years into remission. How did you handle…
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Stage 4 low-grade non-hodgkin's lymphoma
I am new at this all my resuls came in last week. I sure would like to hear from someone with the same. I am so scared, I have 2 children and I am on the watch and wait. I go for a bone marrow biopsy tommorow. I go back to the dr. Aug 1st, 2002. Someone out there please help me the do's and don't's on nutrician and…
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recient diagnosis
If you check back here I can be reached on ICQ at #706341, and roadrunner0342,on Yahoo messenge. My E-Mail is roadrunner0342@yahoo.com or roadrunner42@lcia.com. I have had this deasiese for over twelve years and will be happy to talk to you.
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Statistics
Does anyone have or know where to find the survivor statistics for NHL? If so please post information. Thanks!
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oophoropexy?
I had a oophoropexy prior to my radiation treatment to preserve fertility. I'm curious if anyone else went through this? If so, what are the long term outcomes?
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Hodgkin's Survivor
Hi, i'm a 26 year old Hodgkin's survivor! My story is long and complicated :) I have posted it on my personal web page here at the CSN. Basically I was diagnosed when my first daughter was 2 months old. I'd been having symptoms for 9 months. I was in the late stages. (someone asked a staging question before) my doctor…
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Cancer level?
I recently read someone message about their cancer level. I'm wondering, how can one tell what level they are/were at? With out asking the doctor. This person did a few chemo treatments and more radiation treatment. Is this the way to determan one's level? I did 16 chemo's (3 bags, 1 injection, every 2 weeks) and 19…
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Going on 2 Years surviving
I'm a 17 year old girl, living in a small town in Michigan, I turned 15 on October 24th, 1999 and I expected it to be just another year. That was until November 5th, when I was diagnoised with Stage 2 A, Hodgkins Lymphoma. I was a odd case, my blood counts wern't abnormal, and I didn't FEEL sick. I just had a mass on my…
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recovery process
I am curious to see if any of the survivors of lymphoma are or have had problems with energy loss, fatigue, numbness or breathing problems as a result of your chemotherapy treatments. I am a mother of 3, 37 years of age and finished my chemotherapy in the end of November, 2001. I am still having problems with fatigue and…
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Non-Hodgkin's Lymphoma
I am a 6 yr. survivor of Non-Hodgkin's Large B Cell Lymphoma, I would love to hear from anyone who has or has had this type of cancer.