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Bloody Cough
I have been tested and retested the last few days. My team feels that radiation may be my only hope to stop the bleeding in my lungs but they are skeptical as this method seldom works they said. The other option that was kicked around was removing half of my right lung. I said no to this since it would not save my life…
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Food and diet
Just wondering what kind, if any diet changes have been made by everyone. Trying to eat more fruits and veggies. Just hard for me! Any suggestions?? Kim
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Cough remedy needed
Mets on lungs are causing an irritating dry cough practically all the time. Just come off Nivo due to progression and have started Votrient. If that doesnt work and cough gets really bad then onc says radiation will help. In the meantime -I would love to here from anyone who has experienced a successfull remedy they can…
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radio frequency ablation
Anyone have any insight on RFA for lung nodules? It seems logical but not exactly front page news. Most literature seems to be dated, did it prove to be ineffective?
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having open partial nephrectomy on Monday
I just had my pre-op stuff yesterday. I am almost 53 yo. When I was 16 I actually had surgery on that kidney (left) due to an issue with the ureter, so I already have a lovely 8" incision on my side. Doc will be going through that scar again (ugh). Cannot have robotic due to location of tumor (in the middle of my kidney).…
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How can I see all my topics?
Hi all I need to see one of my earlier topics, do you know can how can I see the list of them? Forough
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Exercise
Here's a very complete guide for kidney cancer patients wh wants to start exercising from Kidney Cancer Canada. http://www.kidneycancercanada.ca/media/995743/kidney-cancer-guidebook_final-online_compressed.pdf Dave
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Mri vs ct
Hi everyone, I just had my first appt with medical onoc. I am having 6 month follow ups for 2 years and yearly after that. My question is if a MRI is as good as a ct scan for finding possible mets? I am having mri with and with out contrast and chest xrays. He wants to check my liver and said mri is better than ct scan to…
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APOLOGIES TO ALL
haven't posted much because my iPad and iPhone present problems in writing to this forum. so if my posts are incomplete or garbled, it is not me but the damned formats. so many posts that I would like to contribute to but somehow they don't post well. will keep trying Sarah
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Borrowed post
As many of you are aware I also post on several Facebook groups for Kidney Cancer survivors. One post yesterday by a Newbie ater being nephed is woth sharing. After he was wheeled back to his room he asked the nurse why there was so much pain on his side. She replied that he just had his right kidney removed and that his…
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RCC causing Hyperparathyroidism?
Hi guys, Have any of you had a parathyroid gland issue clear up after removing your Renal Cell Carcinoma? I was scheduled for parathyroid surgery due to elevated PTH (diagnosed primary hyperparathyroidism) and now that I had my partial nephrectomy 3 months ago, my PTH levels are back to normal levels! My endocrinologist…
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Pity party II
I just completed first 28 days of Sutent! Today is my 4th day off. I naively thought SE would diminish. I have a lot to learn...I spent today in the hospital getting infusion for dehydration due to nausea etc. Was told by oncology nurse may take 10 days for Sutent to fully leave my body. Then start over 4 days later. To…
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Best Kidney Cancer Doctors
Hi everyone, I'm trying to find out who the leading kidney cancer doctors are worldwide (presumably the US), for treating kidney cancer. Specifically this cancer has metastasized to the liver. Travel and money is not an issue. I've done a lot of googling, but any first hand suggestions would be greatly appreciated. Thanks…
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beware cellect hoax
https://www.mskcc.org/cancer-care/integrative-medicine/herbs/cellect
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New Diagnosis - Stage 4 Kidney Cancer with Metastasis to lungs -- please advise :)
This is my first post, and it's going to be long. I apologize. My husband started feeling bad right before Christmas. We originally thought that his back ache was because of our new memory foam mattress topper. He also started throwing up bile, and was sick at his stomach alot. He lost about 20 pounds the first month of…
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In The Begining
It was a warm Spring Sunday afternoon in late April or early May, 2002. It was time to install a stone walkway in the back of the house. No sooner had I finished than I was yelling at Icewoman for pouring some, candy, syrup or food coloring in the toilet turning it red. I think she had done that a few weeks earlier as…
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This morning
I got up this morning feeling great ready to tackle the day, and to educate my students when all of the sudden I started coughing...and coughing...and coughing, then blood started coming out of mouth and for 20 minutes I was coughing up blood and blood clots. Now I have coughed up blood before since I became stage IV but…
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Student SE
Thx for the warm welcome Iceman! When initially posting I forgot to ask for advice I need. As you can see one of several Sutent side effects I have is insomnia. Another is mouth sores. Magic mouth rinse works temporarily. Problem I'm having is finding a toothpaste that doesn't burn my tongue etc. Have tried Sensodyne on…
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Newbie
A newbie to posting but have used the wisdom, support and RCC education found on this board since Feb. On 1_28_16 I had a radical left nephrectomy. Tumor was 13 cm. Surgery was 8 hours. One month later biopsy of left lung showed 1.3 cm and .4 mm nodule were cancer. So I'm stage IV. First 28 days of Sutent 50mg completed…
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Pity Party
I was sick yesterday most of the day feeling crappy, and nauseous all day. I had to deliver boxes of books to our local city library and I felt extremely weak and fatigued. I actually had to have my wife help me load boxes of books in my truck. So last night I was pissed off at the world and I was so closed to calling my…
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I saw my oncologist/hematologist today
the one DR I dont like, turns out he had good news for me, he had the pathology report and blood work from my right lower lobe lobectomy 15 days ago, Im clean, with nothing else found in my lungs, lymph nodes or in my blood. He now he has changed his tune and doesnt want me to start Sutent, which I wasnt going to do…
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Cabo?
No one talks about cabo or cometriq. Not recently anyway. It is promising when many other kidney cancer drugs have failed. With it comes the SE's of diarrhea, etc. The bigger question is why would I be asking?
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One Year Anniversary
Hi there, I wanted to reach out and let you know today is the one year anniversary that I was told that I had cancer. Due to this site and support from you all, I was able to have hope when hearing the dreaded words. Footstomper was the first to reply to me and let me know I was going to be ok, and then followed by Iceman…
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Help with questions for onco appt
Hi Guys, Background first.. I had partial nef on 2/16, 8 weeks ago. Stage one. I had the surgery done by a urologist who I really liked, but not a onocologist. He wants me to get a renal scan which is scheduled to be done in May. I go back to him on June 1. Went to my GP for the followup that the hospital wanted me to do…
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UPDATE: NED Monday, Scan day. I am going to vent a little. . .
I'm a little nuts right now. Bear with me!! So my husband was supposed to go for his scans at a later date, but he gave me the wrong date and they are now actually MONDAY. I found out today. So, not only am I suffering from raging PMS (sorry if that's TMI but man I am an emotional mess, watching Steel Magnolia's is NOT…
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Coping
Hi all! Just joined this forum. I had an RCC removed in July 2014 At the age of 26. To say it shocked me would be an understatement. I've found that the yearly checkups just about kill me as far as the anxiety, the waiting, the wondering if it has done back, etc. I feel like I have PTSD from it. Have any of you suffered…
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Question about staging
Im confused about this and I know I need to talk to the DR but thats a few weeks out. Here is what my staging sheets says. 8-11 cancer/subtype L Kidney RCC,clear cell,Grade 2 Date of diagnosis 8-11 STAGING T 1 (5.9) N x STAGE 1 2011 R lower lung reccurance (2016) metastisized (2016) M 0 Goals of thereapy Currative intent…
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Single Kidney - Kidney stones ??
It has been a long time since I have posted on here. Quick background- had my left kidney removed ~3 years ago due to MEST - wasn't cancer after all. I know I'm not a cancer patient but I'm having a hard time finding answers online for people with a solitary kidney and was hoping someone could provide a little insight.…
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Hereditary?
I lost my mom to this cancer in Jan 99 she lost her battle the day after 42nd bday after only 4 short months from her Dx. She was a smoker I think that contributed to her getting this. I just turned 41 in Feb and my anxiety about this disease has gotten worse. :-/
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After years on my own I'm happy to have found you!
I feel like my experience with kidney cancer has been a long, solitary journey through a scary landscape that keeps changing. I feel such great relief to have found this cancer survival site that includes a board dedicated to kidney cancer. I've only had time to read through a couple of posts and already my heart has been…