Head and Neck Cancer
Discussion List
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CivilMatt's TABLE insertion experiment
Good morning or afternoon where ever you are in the H&N world. I hope that some of the information (which those of you undergoing treatments) glean from this forum help you manage what can be a most difficult time. I know, I have been there myself! I do see Russ is dishing out tips and comfort to those who seek it. He is…
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New to the club here..Larynx Cancer.
Hey all, My name is Stephanie, you can call me Steph as well. I'm 46 years old. I have T2N0M0 - P16 SCC (HPV+) Located on my true left vocal cord. The cancer was I am sure at T1 when this all began, but due to delays - well, here we go. Tis life! I was a smoker, quit about 10 years ago - perhaps longer... I quit with…
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Happy Thanksgiving
Happy Thanksgiving to all my fellow cancer warriors. Take care and God Bless. Rick
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Thanksgiving-What Are You Thankful For
This is a thanksgiving posting and it is soon here in fact Thursday in just 3 days. Feel Free to post what you are thankful for or well wishes or whatever is on your heart this time of year. I have so much to be thankful for I am not going to list it all here. But I have a God who pulled me through many tough times and…
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3 1/2 year checkup...
And all is good. I am, as has been said here before, "unremarkable". I met with 2 nurse practitionsers, one of which was new to me, and the one that did the scope. Both are very good. When I go back in May I will see the other familiar nurse practitioner and my ENT. Next year I'll have 2 visits and then will see them once…
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Extreme pain, questions and bit of a vent
I am having pain bad enough to medicate 24/7. My chemo doc is covering me until I can see the pain specialist next week. I am on 600 mg gabapentin 3x a day, norco 10/325 every 4 hours as needed. Probably not that much for HNC... I was taking ibuprofen too but trying to stay off of any blood thinners for upcoming biopsy(not…
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An update
Hey folks. Some of you may remember: I had my neck dissection 14 months ago, after a T4 tumor was discovered inside my left tonsil. After that, 6 weeks of radiation. It all went pretty smoothly, although I had enormous trouble with keeping myself fed, during rads, because my taste buds went berserk. It's about a year now,…
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TORS and Neck Dissection Information
Are you considering TORS, or already planning for it? This video can help you preapre with some ideas and discussions. If you have further hacks or just want to make comments on the video, please do so below the video so others outside of CSN can view them. Thank you! Don/Beagledad https://youtu.be/jYTxjBKILRE
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No brag, just fact
It's hard to know if things I might share will be taken as I intend them. I am reporting this ONLY to give anyone who needs it additional reason for hope. I certainly had little to do with being blessed enough to have SCC at a time in history when it is treatable. Last week I had my five year scan and have been declared…
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Went to SLP last week and
not really feeling much better. The pain gets worse everyday, and I had to bust out my mortar and pestle again because I am losing my ability to swallow my meds. I'm wondering if this lymphedema spot in my neck has become infected because it hurts like the devil sometimes but I never have a temperature. Maybe I just can't…
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2 Dry Mouth & Nose Hacks - Short Video by Beagledad
This video is one of the "useful" ones I have promised. These two hacks made my recovery a tad easier and I hope they will for you, too. If you have used either of these or have others please leave Comments on the video's page as well as here for others to see. THANK YOU! Don AKA Beagledad https://youtu.be/3Cn_4-XL0eI
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Is Your Care Team Caring For You?
I got a response from a man on this site after one of my previous videos where he mentioned that his care team did not do half of what I had mentioned mine did and I saw a clear opportunity for another helpful video ..and here it is. Please consider clicking the LIke button and or commenting below the video with your…
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Opdivo and Abraxane
Is anyone on here experienced with Opdivo for throat cancer? My husband will be starting a new study that combines Opdivo (Immunothrapy drug) and Abraxane (Chemotherapy) for his Head and Neck cancer. He was on a different study at Siteman Cancer Center in St. Louis, MO USA which included Keytruda and his tumor doubled in…
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Video about Chemo expectations
https://youtu.be/AlWfJ5lgJ4o Here is today's video about a few things to expect regarding chemo. Primarily for newer folks, but survivors, please comment or share your experiences tips and tricks as well! Thank you Don AKA Beagledad
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Can you drink Jevity 1.5
Just a curiosity. Went to get my Covid vaccine booster (actually 3rd shot, full dose because, cancer). When I got home I just didn't feel like doing a tube feed so I grabbed a can of vanilla flavored Ensure to drink instead. That stuff is NAASTY!! I asked my wife to taste it, she smelled it and said no way! Anyway, I drank…
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Neck/Chin Lymph Nodes - Leave in or Remove?
Have radiation and chemo start up set for this Wed Nov 3.... Oncologist refered me to an ENT (to locate/size the C) while PET scans and appointments with Chemo, Nutritionist being set up and completed Met with ENT last week....couldnt find the C location....he discussed removing the lymph nodes and while under do deeper…