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Head and Neck Cancer

Archives for February 2017

5 Year Anniversary
Today marked the 5 year anniversary of my husband's surgery to remove his jaw and a partial neck dissection. I actually got through most of the morning before I realized what day it was. I found myself periodically reliving what I was doing at that time of day. In fact, as I type this, he would have still been in surgery…
6 days out of surgery- Advice needed
On Feb 21st I had robotic surgery for tonsillar cancer that went down to the base of my tongue. They did a radical neck node disecction and it is HPV positive. (good thing I understand). Four days in hospital and then released. I have been only on tylenol suppositories every four hours for pain. I am a pill gagger and…
Struggling...
Really could use some advice. My dad went through treatment and radiation in 2013... He's still really struggling with mucous. I notice him wheezing a lot when he talks. Sounds winded. I get scared because I saw him come on mucous and it took him a few moments for it to pass. Every time he eats he chokes. He had a swallow…
Looking For Advice
Hi All - I am at a point in my health scare issue that I could really use some advice. I am a 27-year old male, who for the most part would consider himself fairly healthy (used to work out 3-4 times a week, ate mostly greens, and would only occassionally drink on weekends), I was a smokeless tobacco user on and off for 7…
ROLL CALL 2017 - UPDATED FEBRUARY 21, 2017 CLOSED
ROLL CALL 2017 2nd Updated February 21, 2017 All H&N members are welcome! Roll Call is dedicated to the memory of HAWVET (JOHNNY) who’s curiosity to know and to share a little bit about members of the Head and Neck Form inspired him to start and run this thread (2008 thru 2014). Thank You. First off, please feel free to…
Post radiation throat pain
My husband is 5 weeks out of treatment consisting of 35 rads and 3 megadoses of cisplatin. ( for T3 scc in his glottis) His throat swallowing pain has not gone down at all. 2 wks post treatment actually pain went slightly up, and then slightly down but it is still very high and is same as what it was at the end of…
Husband diagnosed with SCC head and neck
i just read a comment and it's true: the club no one wants to join. Lol! My husband is 55, healthy, non smoker, runner of 5k's was diagnosed with stage IV SCC in one lymph node. Needless to say we were in shock. He found the enlarged lymph node by accident while shaving. We are thankful to God for that miracle otherwise we…
Ear and jaw pain NORMAL?
My husband is 2 months post radiation for a tumor on his tongue, and has started getting a clogged ear and a lot of pain in his jaw (on the side of his radiation) from his ear down along his jaw. Has anyone experienced this? I don't know if I should make him an appointment to see the dr. I feel like the time between being…
Sleeping with Picc line and Pump...HELP!
Hello, everyone! I really hope someone can help me, and I'm really hoping I'm doing all this correctly. long story short (long version is in the "check in" thread) I have stage 4b cancer of the oral cavity being treated at the moment with 3 courses of 3 chemotherapy drugs: Cisplatin & Taxotere administered at Fox Chase and…
Chemo or not to chemo
Anyone here not elect to have chemo with their radiation with stage iV HPV neck/throat cancer? Or elect to have reduced chemo?
Caregiver-question about husband 8 weeks post radiation for tongue cancer
My husband is 8 weeks post radiation after having 37 treatments and 5 chemo treatments for a tumor on his tongue. He seems to be in more pain now than weeks ago. He is on a Fent. patch, gabapentin, and 30 ml of oxy every 4 hours. He has lost 65 pounds and currently does not have a feeding tube. He is very nauseated and…
XyliMelts - opinions please
I'm am in dry mouth phase, and looking for options. I tried the Biotene dry mouth paste and it mostly just accumulated mucus. My rad oncol pushes XyliMelts, but they don't seem to do much. I am on day two of that experiment, so they might yet produce, but so far, nada. I'm applying two at a time, upper outside jaw. I'm…
Squamous cel cancer of nasal septum
I have had a scab on my septum that bleeds when removed for about five years. I never mentioned to my family physician till yesterday and he immediately referred me to an ENT,(soonest appt. April 23.17) and suggested it may be cancer without furthur discussion. I will be 91 female in April, very healthy but very overweight…
First Time Caller.
Hey all, this is great! I am 3 months out from 7 weeks of Cisplastin/35 Rad tx. I stumbled upon this by accident and read so many stories that sound all far to familar. I was/am Stage 3/4, T1N3 HPV Tonsilar. Just wanted to hop on hear and say Hello to some of the strongest people I never met!
Throat ulcers
hello all finished my RT eleven months back and all seemed pretty good, well as good as my Onc said it would be. recently though I habe ulcers on the back of my throat and nasty so and sos they are too been there three months now. odd thing is no medical cure apparently, cancer yes ulcers nope! wondering if anyone else has…
High calorie food
Like several others here, I struggled with getting down enough calories during treatment. While hunting around on Amazon I just came across yet another nutritional shake, this one very high calorie. It is by Nestle, and it's in their Boost line, but it is Very High Calorie Boost. 530 cals for a 8 oz box. Not cheap, $37 for…
Sorry I haven't been checking in much
I'm sorry I haven't been checking in much. December 28,2016 my 30 year old daughter passed away from a brain aneurysm. She had a headache for 2 weeks, had an appointment with a neurologist Dec 30. She got up for work Dec 28. Her father and I thought we heard the shower running too long...we went up and she was laying in…
First post here:Extraction site not healing; Scared & Confused
My husband is a tonsil cancer survivor. His diagnosis was in 2005 and has been cancer free since his 05-06 treatment. But the last several years he has had complications from the treatment (swalling, speech, dental issues). He had to have two molar pulled 4 weeks ago and he was told he was at risk for osteonecrosis. But…
Angry snow Gods
I have previous posts in this forum and so appreciate all responses I've received! I have been waiting for almost 7 weeks to see an ENT for suspected nasal cancer. I am 2 days away finally but just found out there is a major Nor'Easter headed my way Sun throughout Monday! I live in a rural area aprox. 18 mi. or so from the…
PBS special on Immunotherapy
Just a shout out about a special I saw tonight on PBS. Melinda Welsh who had head and neck cancer and was told she would die within a year. She is on treatment in Ca. (UC Davis I think) genetic material pIL-12 electroporation and it has pretty much eradicated the tumors and she is in remission! Her Doctor is Alain Algazi.…
New Here: My Mom has Laryngeal Cancer (she is my world)
Hello Everyone, I am new here. I am 21 years old and my Mom was diagnosed with Stage III Laryngeal cancer in November 2016. It is HPV positive and only one small nearby lymph node is involved. She has a good prognosis (about 75%-80%) and an 80% chance of getting her voice back completely. Even though all of those numbers…
Private Message Spam
Hello everyone, Thank you to all of you who have alerted us to the PM spamming from earlier today. I apologize for the inconvenience. While we do have securities in place, we are not always able to catch all spam, and we are trying to figure out how this one got around our system. If you received a message from jegac1…
Throat pain again!!!!
Can somebody help? I was diagnosed with stage 1 throat cancer in June 2016. My last of 32 radiation treatments was in August. By december i was healing well. I started eating most anything all though i still had trouble with bread and dry products. I was on the road to recovery. The week after new years i started having…
My Surgeons Theory
Yesterday was my appointment with the surgeon who removed my base of tongue tumor and did a radical neck dissection back in '11 and early 2012. I told him that my Oral Surgeon pulled a back molar and my mouth healed properly. He was very interested in that and this is the reason for this post. One of the things he did…
Dad's results
I left work early today so I could go with dad and mom to dad's appointment with the oncologist. He said my dad has multiple myeloma, which is a cancer of the bone. Bones affected are; front skull, back skull, one vertebrae, sternum, left hip, right arm, and his wrists. The doctor was very optimistic and seems to think…
Lumps and bumps along scar line...
I have a couple pretty good lumps/bumps right under the scar from my neck dissection. I had a scan in December in whih they felt it was radiation damage because the uptake was so diffuse. They also stated that the only way to know for absolute sure would be a PET scan. My oncologist decided that a PET wasn't needed because…
Weight Survey
Folks! I'd like to do a quick survey on weight. If you can just post, what your weight was, pre-treatment, post treatment, and +1 year, +2 years, +3years out. Mine is: Pretreatment: 160 lbs Post-treatent: 140 lbs (-20 lbs) +1 year: 148 lbs (+8 lbs) Reason for the survey: Im no longer gaining weight, despite chewing down…
14 month Oncology NED
They never offered any insight before but today said typically the first approximately 18 months iswhen they most often see relapses and they are counting time from date of diagnosis for some reason instead of end of treatment date. So their count is almost 17 months now. Maybe just trying to make me feel better because it…
Occult primary metastic scc head & neck
I am new to this forum. Has anyone gone through this? Can you share your story with me? I really would appreciate it. I was diagnosed 05/16.
Thank you to so many of you
I just want to take a moment to thank so many of you for your timeless support and guidance for those of us caretakers trying to find our way. At times I have posted questions and received many helpful suggestions and have not had the time to get back on line to respond. This form has been my light in a very dark…

Head and Neck Cancer

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