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Anyone with SCC HPV+ NOT have chemo or had alternative treatment
looking for anyone Stage 3 or 4 SCC HPV+ that did not do chemo, but either did radiation only or an alternative treatment? the more I read it seems the more chemo may not be needed in all treatments. I am just worried they are fighting my cancer with cancer causing agents
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Dentures
I am curious if anyone has gotten regular dentures and figured out how to deal with a partial tongue, dry mouth and migraines in learning to use them. I have the top ones glued in right now, but after a while, I have to take them out. When I have migraines, they aggrevate the headache. The bottom ones are the real problem.…
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disrupted sleep-cycle
A month out from last rad treatment and I find I still have trouble sleeping. I know I am getting some because I notice when I wake up, but I also am laying awake for long periods. I am pretty much off all meds except for a blood-thinner, and my mucusites is much reduced so I'm not gagging on phlegm anymore. At this point…
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Me again - one year out
I just passed my one year mark from chemo/radiation/surgery for supraglottal carcinoma. Every oncology and ENT thus far have been NED, thankfully. They had to slice my nodes out on the left side last January and now my neck is beginning to feel all stiff and tight again like it did right after my surgery. Can't really say…
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It's back.....
I haven't been on this site for a long time, my husband had scc unknown primary, 1 lymph node back in 2013. He was going on 4 yrs when his ENT felt something suspicious in his throat. Had biopsies and was found to have Base of Tongue cancer, 4 cm tumor. This was removed last week surgically by robot (Divinci) and he did…
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Tongue Biopsy pain
I had about a 1/4 inch in diameter size biopsy taken from under my tongue yesterday. The pain is in my throat, jaw, tongue and ear. Does anyone know how long it will last? Im trying not to obsess about the results but after reading some stories I relate to so many symptoms. Had the white spot on tongue for a year and a…
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PEG feeding options such as juicing
What type of nutritional products do people here use with their PEG system? Does anyone supplement with juicing or blendin? What type of nutrition/food has helped you the most? This seems to be the part of my stage 3 SCC HPV Treatment that has me worried way what the radiation and cisplatin will do.
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Diagnosed with Stage 3 SCC HPV positive
Diagnosed with Stage 3 SCC HPV positive. My oncologist confirmed this diagnosis today. Although he is having me see an ENT specialist, he feels strongly that since my cancer is only in one tonsil and one lymph node that no surgery is necessar. He is recommend 6 weeks of radiation 5 days a week with Cisplatin added the 1st,…
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biopsy question
I'm pretty nervous for my dad. As posted previously, he was found to have a tumor on forehead went through the skull and is on top of both hemispheres of the brain, but not in the brain. I'm terrified for him and wondered is anyone knew what kind of biopsy they would do? Like, how would they do that? The doctor did not…