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Update
Recovering from fall down basememt steps. 6 breaks pelvis and spine , rehab then hospital for double pnemonia. Have had 24/7 at home care . Cutting back now . Walking again. A lot to handle
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This Tongue!!
Since my tongue surgery (tumor removal) I think everything is going ok. I'm eating more things and even took some pills with water the last two day. The only problem I'm having right now is that because of the way my tongue is now, it's misaligned so it's driving me crazy. I can't stop sucking on the right side or biting…
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more update and question
I am doing a lot better, getting strength back and becoming more active. My neck is still numb from the dissection, scar still very visable. Next ENT appointment on May 10. Have been having a lot of issues with stomach which I suspect are related to the hole they carved into me for the peg tube which has been out about 3…
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Your lungs can smell odors very much like your nose.
This is more directed to the ones with Having a Laryngectomy, referred to as Larys. As a neck breather we really can't smell, and we can't hold our breath. We also have to swallow much different because we have no larynx where all the muscles that help you swallow hook to. Your lungs can smell odors very much like your…
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Another scan on Monday- UPDATE- CLEAR!!
UPDATE- scan is clear! So happy. Appt with the ENT for follow up on Monday. Thank you for the good thoughts. This will be the second scan since my husband completed treatment for tongue cancer in January. He got the NED at his first scan on February 23rd. My husband is feeling great. Just dealing with limited saliva,…
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Radiation without feeding tube
Hello all, My radiologist at Sloan-Kettering is not recommending a feeding tube for my 30 rounds of tongue and neck treatment. Yet, I see so many here have either needed, or were advised to have one put in. Who went without it and can you tell me your experiences? I'm happy with the recommendation but worried about trouble…
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Sometimes
Sometimes you hear exactly what you need to hear, from out of nowhere. I was leaving Chemo today and was getting on the elevator on the chemo floor when a nice older woman (I'm 67 so....) got on after me. I was feeling pretty down in the dumps after the failure of the PD-1, all the rounds of chemo, all the rads, all the…
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New Tongue Cancer Patient Here
Hello all, I was diagnosed with SCC on February 23, 2016. One time light smoker, having quit over 25 years ago. No HPV. Checked myself into Memorial Sloan-Kettering Cancer Center in New York, immediately, where I had surgery and neck dissection. One node out of 22 showed cancer. I have recovered well from surgery with a…
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Hello
Hello I was just diagnosed with a mass on the right side of my throat under my tonsil. He actually said it looks like two of them that are touching. I am so scared. I am due for biopsy on Thursday. I'm 37 and I use to smoke years ago but I have been vaping for the last 4 years which obviously is not any better. I guess I…
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Lucky to be alive, but still the tears
I've been hesitating to post this because I know many have suffered far more than I am or have suffered, but I don't know where else to turn right now.... I have to go back to MDA to discuss pathology results and have my post op visits. I see they have set an appt with the oncologist. I'm terrified of chemo. I'm terrified…
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Gall bladder is outta here! and the PEG soon to follow
This should be a snap after the cancer treatment. My husband has been having some pretty significant gall bladder attacks and it's interfering with his ability to eat and put weight back on....so it's coming out. Surgery will be laparoscopic, same day discharge. The hardest part will be getting him to take the sufficient…
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Tongue discomfort
Hi all, Not sure if anbody remembers me but I was around here three years ago with a white patch on the right side of my tongue. Turned out to be leukoplakia with moderate dysplasia (pre-cancer basically) I had the patch excised with laer ablation and was moitored closely for any further issues. July 2015 I was discharged…
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Forum glitch?
Hey everyone! I have been so busy with work, that I jumped online this morning to catch up on my CSN family. I've noticed that in almost all of the threads, the comment areas on certain people are blank. Not sure if there is some kind of glitch or is it just my old computer? There will be a thread with several replies, but…
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3 Year Anniversary
Today is three years since the end of treatment. Interestingly enough, I didn't realize it until my wife brought me my coffee in the mug commemorating it! I guess it's an indication of how far I've come and adapted to the "new normal". Things are good. I have my good days and not so good days but all things considered, I'm…
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7 years out
Around this time in 2009 I started chemo and radiation for stage 3 laryngeal cancer. 7 weeks of IMRT rads and 3 high dose cisplatin infusions. Although I suffered some bad side affects managed to get the whole thing done as scheduled. Tha chemo caused some kidny damage which has not changed over the years and there are no…
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Hi again and research news
Dear all, I am back. Sorry for disappearing. I just needed a time away since I was having a hard time moving forward. I have missed the group so I have checked from time to time. We have so many new folks. I wish them the best. All is well with us. Dima just had his round of exams and just saw his ENT. We are going to see…
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a useful checklist
Found this online and thought it was a useful checklist for follow-up from treatment for head and neck cancers. http://dribrook.blogspot.com/p/americancancer-society-key.html Barbara
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Scan results tomorrow - UPDATED ALL CLEAR!
This will be our third scan - we are scheduled for them every three months. The CT was done last Friday together with blood work, then we hightailed it out of town to help celebrate an uncle's 90th birthday. That was good because it kept our mind on things other than the scan results. I do feel optimistic about tomorrow,…
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nasopharyngeal cancer side effects post treatment
Hello All, I would like to know if anyone here experience some tuff side effect after chemo and radiation treatment. I was diagnose with NPC in June 2012 Age 37 completed all treatment. Now i experience issues in my neck pain both side and not all the time and i'm use to it now but it been more than 3 weeks i started to…
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advice about surgery
Hi everyone, i am new to this forum. My dad (63 years) was diagnosed with squamous cell carcinoma at the base of his tongue last September. He has never smoked or drunk alcohol in his life. He received 35 sessions of radiation and 6 chemo sessions, which ended in November 2015. CT scan in March 2016 revealed there was…
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Member Meet Up
SonjaK and I met at the Head and Neck Cancer Survivorship Reception at our local medical center. We met one man who is an 11 year survivor, heard a speech from a 4 year veteran, and listened to a band whose lead singer got his singing voice back 18 months after finishing his treatment. There was certainly lots of…
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acupuncture
Just wanted to throw this out there. I am almost 6 weeks out of treatment. I was looking through the forum when I came upon MrsBD post about acupuncture during her treatment. She mentioned that she used a protocol developed by MD Anderson Cancer Center in Texas. So, I downloaded that protocol and took it to a acupunturist.…
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Concerned
Hello, I have never posted anything here before but the information I have learned from this forum has been so helpful to me and I'm very thankful and hope the best for everyone In their recovery. My name is Paul and I was diagnosed with stage 2 (T2,N0,M0) SCC on my vocal cord on 1/21/16. I have currently had 26 of a 29…
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Roller Coasters & Old adages that are true..
Good Morning all, We are back home after the long weekend in Philly. I apologize for not logging in and responding over the weekend as I had planned. I forgot my laptop! And not the best at websites on my ipad. Here's what happened around the surgery that didn't take place on Friday. Here's a timeline of what happened so…
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Scanextity
Hi all Here I sit on Sunday evening trying to occupy myself and not think about my next 6 month CT scan tomorrow morning , while I'm 4yrs 4 months out of treatment , I don't think the feeling of this beast coming into my life ever goes away , especially when I read of the brave warriors we've lost , the reoccurrences some…
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Sad Announcement
My husband was diagnosed in Dec. 2015. He was determine to be a survisor and fought with all his might. Each time he got chemo, his WBC count went down the following week. He was given Nupergen shots and count rose. He finished his first session he had some kidney complications and ended up in the hospital. Treatmen…
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One of those moments
a good moment that is. You know sometimes when something happens and you feel it was not just a coincidence? Well, that happened last Saturday when I went to book the cruise my husband and I had to cancel last summer so he could be treated for stage 4 nasopharyngeal cancer. Luckily we had purchased insurance on the trip so…
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Air travel post op
Has anyone had to travel back home after their H & N surgery? We are due to return home exactly 14 days post op. I asked my plastic surgeon if flying was okay and he said yes. A nurse friend however thinks the pressure might be a problem for me. They removed 3 test, did gum flap, some bone was removed also, and there is…
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Showtime!
Well, Tuesday is the big day. Danger Will Robinson! The robot goes in for a whack at my left tongue base and lingual tonsil. Also, there will be a partial neck resection on the left side. I am sorry that I have been absent for a while. I have been withdrawing from most everything these days. Richard
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Update and a few words about HPV+ SCC
I haven't posted in the past few months because dealing with treatments, etc. was pretty draining. For folks who may have missed my few posts last year, I had Stage IV HPV+ SCC in my left tonsil and soft palate in 2012. I was all clear for all scans and exams in that area. In late 2015, I had a persistent cough. When I…