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Head and Neck Cancer

Archives for April 2014

Waiting to meet NED, not so sure after PET
Hello all, Had my PET/CT with FDG Tuesday 4 1/2 months after radiation and surgery and today finally got ahold of my radiation oncologist with some results. He said it showed "abnormal hypometabolic activity" along the neck muscle where my neck dissection was done. He was reassuring and said he thought it was the muscle…
Anyone have experience with Carcinoma Menegitis from Esophogeal Cancer
My father was dx with this on Monday. They said very rare for EC to spread like this. I wanted to know if anyone has had treatment for this and if it worked.
Debbie Jim & I
Hi Debbie I can’t help but think about you and how you are doing now that Jim is resting. Please continue to be a part of the family here as you have a great amount of knowledge that can help other caregivers in dealing with what we go through. I will continue to keep you in prayer and thank you for all you did for Jim, I…
Radiation Therapy Help?
I wonder if anyone could help me. I'm trying to do research so as to better inform myself to the best available options for radiation therapy. I've looked at IMRT but am wondering if there is an even more advanced system that would help limit the side effects and, or damage to sensitive areas that do not require…
Which type of Radiation?
Hi my son (14 years old) has NPC. Doctors are discussing the type of radiation he should receive. All doctors thus far agree that IMRT isn't the best for him because of his age and additional radiation to other parts of his body, that are still developing. They are suggesting proton therapy, which eould take us away from…
cleaned my own stoma/prosthesis
I cleaned my stoma/prosthesis yesterday but didn't do it right. I couldn't see the prosthesis so i never go the brush in it to clean it. I cleaned the stoma and prosthesis again today and I did it right! I know I did, because I actually saw the prosthesis!! my caregiver showed me where to point the brush and there it was!…
need help swallowing
Just a quick note about me...tongue cancer with two lymph nodes affected. Have had surgery, 37 radiation treatments and six Erbitux chemo treatments. Treatments ended almost six months ago. Recent PET scan shows that the cancer is gone! YEAH! But, I'm still living on a g-tube and am getting so discouraged. The only things…
Good Vibes needed
After several months of anticipation and wishing there was another option, I'm having my jaw resection on Thursday. And, none too soon. I have another bone shard on the brink of coming out, which would leave very little of my left jaw intact, and open to easy fracture or a break. I am as ready as I can be for the long…
Olfactory neuroblastoma - a new member - my first post
3 weeks ago I had an endoscopic surgery to remove a tumor that spread in my left sinus area, around my eye and in my left nose. The doctors say surgery went well, they took out all the tumor, but the biopsy test came and it was an Olfactory Neuroblastoma. The doctor said it’s a very rare tumor, mine is at low grade. After…
Condolences for Guzzle
I think the worst thing for Guzzle as he gets into the treatment for his affliction is to do so on the heels of a loss by his beloved Liverpool football team. I have just watched Liverpool playing Chelsea and was rooting all the way for Liverpool and Guz, alas LFC did not win, they suffered a loss of 2-0. This game had…
One week and soon to be alone
My daughter and her family are leaving in the morning. My sister left Thursday. My son lives here but works long hours and my sisters who live near have jobs and family, so tomorrow I will face my first day alone. No one to stay strong for, no one to distract me, keep me busy or make me laugh. Just me and my tears. Oh how…
John update **Wed, April 30th**
Well folks, John should be up and walking a little bit today. Shelley stayed on a recliner in his room last night, so I think both of them are more calm today. They are still tweeking the pain med schedule a bit, but this was some major surgery so a little bit of that is normal. Let's hope he continues to improve so he…
Biopsy positive: Cancer
I've been dealing with oral cancer that started out with a small sore on my tongue about a year ago. My dentist ignored it despite the fact that I repeat lay asked for help. I was diagnosed with tongue cancer in August 2013 and had the leison removed in September. Second surgery to remove lymph nodes in October. no…
end of my 4th week
Hi everyone I'm at the end of my 4th week of radiation and 5th week ebtux.Been lucky with little side effects so far.Only some pimples and itching.But am wondering.I thought my silvia would be gone as I still fill up with mainly when talking.Mouth is full but throat slightly dry.I was hoping with mouth being full would…
John (Skiffin) 4/25/14 Update
Hello Friends John has been trying to get back on track with his pain med schedule. After yesterday's issue with the nurse from he** and the timing of the meds, it's a bit tough to get back on track (as most of us know all too well). Shelley has made arrangements to stay overnight -- so both of them should be a little less…
prayers for a friend
The 3 year old daughter of some very dear friends of ours was diagnosed with kidney cancer this week. They were shocked to find that it has spread to her lungs so they have staged it as stage IV. She will have to undergo six weeks of chemo before they reevaluate for surgery to remove her kidney. This little girl was my…
Oral cancer Tongue
last July I was diagnosed with tongue cancer. I had the leison removed. Margins looked good. Next, lymph nodes were removed no cancer. My first follow up PET CT showed one lymph node. I had surgery to remove it. Encapsulated. Only one node. Also had my submandular gland removed. I just had my next follow up scan and…
One Year ago Today
Hard to believe but it's a year ago today that I ended treatment. I went from ringing the bell to surgery to have a PEG tube placed and was home three days later. Thus began the journey of healing that I'm still on today. It didn't really hit me until mid afternoon when someone asked how I was doing.... then it dawned on…
Life Insurance
As a cancer survivor do we have a life insurance we are able to get or will all life insurance companies provide us with insurance?Was thinking that as of the end of this month i'll be 1 year post and wanted to try to purchase extra life insurance,hopefully not needing it for a long time just something for peace of mind.
John 4/24/14 update
Good Morning All: Our good buddy, John, is already SITTING UP IN A CHAIR and entertaining Shelley this morning. Just keep those prayers (and pain meds) coming. I will bet he will post on here himself before too long !
In honor of you all...
I've been away from this site for a while, only because I've been insanely busy. New house, TWO new puppies and WORK! I miss you all, think of you all, and include you all in my prayers daily. I just signed up to do the survivor lap at our local Relay for Life. A luminary is being purchased and will be released in honor of…
Skiffin (John) Update **Doing Good at 10:30 pm Central**
Just heard from Shelley that everything with John's surgery is going as expected so far. Will get another update in about 2 hours. Continued prayers much appreciated. Ingrid *****POST SURGERY UPDAT,E**** Surgery was a success and they confirmed the mass was benign. John moving to ICU, Shelley waiting until she can see him.…
flooding you with positive thoughts and lots of prayers, John
john, just want you and shelley to know we are all thinking of you and praying for all to go well. we will contiue praying until you are back to being john 100% again. i hope shelley will be able to give us updates on your progress now and then. will be patiently awaiting posts from you. God bless you and bring you thru…
Single Digits!
My hunny if finally in single digits! we have 9 more to go..tomorrow is his cat scan and then he gets two more treatments and then the final 7 "boost"..please keep him in your prayers that his stays as good as he is right now! He is doing so very well! Thanks yall!!!
NOMANCAMPAIGN.ORG
Friends, you may be aware of this web site. A charity to raise awareness and destigmatize hpv related cancers. Also to push policy to extend vaccination to boys. Interesting reading. G.
Throat Blisters
My husband is now 10 weeks post treatment for stage 4 tonsil cancer. His PET scan came back free from cancer. Praise God. However, he had an extreme reaction to chemotherapy and radiation therapy and developed mucositis. The sores healed by six weeks out. However he still has thick phelm and blisters in his throat. The…
Mom just diagnosed
I am writing this in the hopes I can get some opinions and feedback. My Mom was diagnosed 6 weeks ago with cancer under her tongue and floor of mouth near her jawbone on the right side. At the time the biopsy results were told to us, the doctor said it was definitely cancer and that she would need either surgery,…
It's been a long time
Hello Everyone. I've been missing, but not by choice. For some reason I got blocked a while back. I have no idea why. I haven't been involved in anything controversial to my knowledge. Anyway, it took until this afternoon to get me up and running again. I have missed being able to chime in many times with words of…
The vigil goes on HAS ENDED AT 2 AM TODAY
12:50 am and the vigil goes on. All the children are here safely. Jim has went through a lot of changes in breathing, temperature and heart rate. I slept well last night know he had good care. I didn't hear the nurse come in three times, Jim's Nurse and Cna last night were angels. So gentle and loving when handling him. I…
Stage 3 Tonsil Cancer- 16 Months Post Treatment-How are you??
Hi Friends, I am 16 months out from treatment (35 radiation and 3 chemo). I am wondering if there is anyone else here around the same time after treatment and if so, how are you doing? What after treatment effects are you dealing with? How are your taste buds and saliva glands? How are you doing with eating and swallowing?…

Head and Neck Cancer

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