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Treatment
Friends, I start next Tue (bank holiday in UK) with a days chemo and radiotherapy and and overnight stay. Then its day patient for 6 weeks with another days chemo in the middle and at the end. I just want to thank all the wonderful people on this site who have helped me prepare. Over the years I have come to expect this…
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updates (NED ! for ME)
Hello everyone, I had 6 mo's scan done. Very good news given this morning. NO EVIDENCE OF DISEASE ! I am feeling so blessed right now ! Unrelated lung issues continue, but learning to accept my limitations and rearrange my thinking on how to live....(love that word) with 23 % lung function. My brother had all his teeth…
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Hey Guys Stage IVB Throat Cancer still around
Hey everyone been forever since I got on here and took a while to get logged in lol BUT... wanted to share that I am still around heading for the 5 year Cancerversary and what I have been up to :) Especially for Newly diagnosed <3 I still stay busy volunteering at our local community center and I have written a book which…
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Checking on all of you
Hi, well as for me .. the fight continues.. today was 11 of 38 radiation treatments.. so far hanging tough.. face is still sore from surgery but with nerves and muscle damage I think this is the new normal. I hope the fight for all of you is going well. Even though we may have never met I pray and think positive thoughts…
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Husband has sores in mouth
My husband has NPC he was in the hosptial for a week 5 days of treatment Cisplatin and 5FU. He also went through treatment last summer eurbitux and gamma knife well it didn't work and tumor grew a cm. So his onoclogist now is giving him 5 in hospital treatments. They put a port in. I am also very worried because he is very…
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Hospice Facility again
Well it is Wednesday evening 11 PM and I am spending the night with Jim at the hospice facility. This morning, Jim took a nose dive and started to decline fast. His anxiety and pain was not being controled even with the increase in meds. Jim said this morning that he wasn't going to make it back from this one. Yesterday he…
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NED
On Monday I had my 12 week PET/CT, yesterday the H&N doc showed me the results and told me its clean! It is still sinking in - Tonsil with 2 nodes stage IV advanced diagnosed 6 months ago - and now gone - I see the rad/onc in 3 months for a look see, the onc in May for his look and the H&N guy in another 6 months - they…
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Sore Mouth
I had 10 chemo and 35 radiation treatments for oral cancer to tongue. My last treatmeant was on Jan 30. My mouth/tongue is still so sore I can barely eat a few bites of soft food. Is there any suggestions on what to do to help this. I have been using magic mouthwsh and salt and baking soda water.
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Chef Daddy Mike
The last time I talk to Mike he was not doing well, it’s been two week now and I have not heard back from him. I tried to call but no one answers the phone I am worried about him because he keeps going downhill. Please continue to Pray for Mike, you all who know him know the hell he has been put through in this life. As…
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I abosolutely hate this disease
Jim was doing so well at the Hospice fascility. Since he has been home he has been very restless, angry and agitated. He keeps wanting to die. Last night I called Hospice because I didn't know what to do with him. I finally got him to sleep at 2 am with the recommended med combo of the on call nurse, The Hospice Councelor…
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New NPC
I was diagnosed with npc stage 3 (T1N2M0) in Dec 2013. I just completed radio/chemo about 2.5 months ago. I would very appreciate if you all could give me your opinions/suggestions on following matters. - I lost about 9 kg of my weight and feel very hard to gain my weight again. I only take vege, bean, fish, egg and milk…
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swelling during radiation?
Is it normal for your neck to swell up where they are treating you during radiation? he has a mass in his lymph gland but it had went down after chemo and now during radiation ..it is swelled up again..is that just swelling from the rads? did anyone else have this? scares the crap outta me...
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Gingival Recession and resection!
Hello, Like many I haven't been active on the boards much since my fraternity initiation back in 2010. I do lurk every now and then; however like most of us I had a tough go with it emotionally moving on after treatment and my counselor and I came to the conclusion that maybe it would be best to take a break from the…
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Hello!
Hi my Warrior Family, I am asking for prayers. I don't know what is going on, as I had a stomach flu last week and lost the 8 lbs I proudly and worked so hard to gain. I went to the ER on Saturday for IV fluids as I was so dehydrated, but still feel off. I live alone, so this is a concern. I have no one in my area for…
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ENT
Saw my ENT this afternoon , scoped throat all is well. He asked about the gardasil injections I had, and yes I way exceed the age of gals & guys who should get them, he said since I was never a smoker and no evidence of HPV , that my stage 4A rt tonsil cancer may have been caused by something viral , he's glad my…
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Had laser excision today
Hey all, So I had laser excision on the white patch on the right side of my tongue today. All went well, but they actually excised far more of my tongue than I was expecting. I thought it would just be the white spot, but actually they did virtually the whole of the right side of my tongue again. Obviously with so much of…
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moved appointment day
Well my husbands three year follow up has been moved to May 8th. AND guess what, Saturday and Sunay he was complaining of a really bad sore throat. He said it hurt like it did 2 years ago and it hurts on both sides. I am going to watch it for a few more days, if the pain continues to persist I am going to ask that they…
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What is standard protocol for post NPC treatment
I've been out of treatment for 4 months with PET scan negative and all normal. What is the standard protocol here on? PET scan every 6 months for a number of year? The doctor ordered for chest x-ray which I don't want due to radiation exposure. There is no indication for the order to begin with. Could this just be standard…
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Managing side effects 4+ years out
I am new and never knew this board existed. I tried calling other networks years ago trying to locate someone with a like experience to talk to. I guess I just didn't try hard enough. As my subject says I have been cancer free for over 4 years now. I had a very small squamous cell carcinoma on my right cheek near my nose…
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5th week of treatment
starting 5th week of rads tomorrow..only 3 more weeks left of rads/chemo...anyone else about at the same point in treatment? I know there were several starting about the same time my hunny was...he missed a week due to his face/neck swelling and not being able to fit in mask..but is doing very well now...thanks to all the…
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Some Will, Some Won't.
Hi guy's. Its been a very long time since I posted anything on the board. Some of you will remember me, some won't. But I felt that Today I had to as today is my 2 year anniversary from finishing treatment. I have visited the board quite often but never posted. I see a lot of the old guard are still here and I see lots of…
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Things moving quicker than originally planned
Good morning all. I received a call Friday from my Onco Nurse, she said he and pulmonary doc discussed my CT and the issue with my pleural efflusion not improving since the 8 weeks I habe been off Taxotere. Their consensus is I have a Para Mallignant Efflusion, since none of my lung fluid has ever showed the presence of…
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Six month check up...Clean
Well my six month check up was all clean and good to go. NED. However I am having some trouble with my laryngectomee as my TEP [vioce prosthies] leaks when I cough. They think it is ok, and no need to worry. But in the next breath, they want to put a custom gasket in to stop the leaking. Well that didn't work and I had to…
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Jim coming home. UPDATE
They are releasing Jim on Sunday. He is so thrilled to be coming home. Pkease pray I can care for him, ie: help to turn him and get up to use bedside commode. Debbie
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Nasopharyngeal Carcinoma
Help! My 14 year old son wa diagnosed 3/19 with Nasopharyngeal Carcinoma. He has had his first round of chemo ( Cisplatin and 5fu). His treatment plan consists of a total of 5 chemos and 7 weeks radiation. THere will be 3 rounds of chemo every 3 weeks. The last two rounds of chemo will be combined with the radiation. I…
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Shingles
I have all of the symptoms for shingles in my scalp, ear and cheek. Luckily I don't have to worry about the eye, it's on the right side, same side as eye was removed. For someone pretty much numb from surgery, little bugger found some nerves that are still felt. I figured with all of the treatments that I have had that…
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Post Treatment PET scan - just want to share good news
Got my result of the PET scan. All negative and tumor (NPC) "resolved." Four months out of treatment (radiation and chemos). Report said there is activities detected at the salivary glands as well as "diffused muscles activities." So I take it that the "physiological acitivities" are good things indicating they are…
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Things are much better now
Jim is much better but on a lot of pain medicine. He wants to come home but they feel he is not ready. He is so weak I am not sure I can help him in and out of bed. He wanted to turn on his side this afternoon and I couldn't turn him, had to get the nurses to do it. His digestion has slowed way down which is not good. I…
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One Year Scans All Clear
Met my DR yesterday and happy to say all clear exactly one year post treatment, Time really does fly. One can never relate to others that feeling in the stomach when waiting to see the DR to get the results. But boy does it feel good when you hear the words all clear! For those about to, undergoing or have just completed…
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Throat blockage
Saw my onc doc today. He showed me photos of the inside of my throat. The food pipe is completely sealed it looks like a solid pipe. He said he was discussing with other surgeons what could be done , if anything can be done. He said he didn't force the probe down as it may go through my windpipe or rip my throat. He…