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Head and Neck Cancer

Archives for September 2013

Needing your thoughts and prayers
hugs and pockets ! I am traveling to MD Anderson tomorrow for another PET scan. I am feeling pretty good about it but you all know how it is the night before so I would appreciate your thoughts prayers etc. Thanks guys I don't know what I would do without ya ! :/ / Peggy
Low white blood cell count - no second round of chemo?
Hi All - My mom is currently in Week 4 of 7 for treatment of her stage 4 NPC Cancer. So far, she has all the side effects that everyone has spoken about in this forum. Her pain level is not very high yet and she got her PEG tube in last week. She can still eat very small amounts of liquid through her mouth, but takes the…
Mouth ulcer WHICH not going away
After my husband’s neck dissection he discover mouth ulcer in is right side of tonsil area where cancer was originate in (END OF July). He was telling his all doctors including oncologist, ENT and they all said it’s just side effect of radiation. My husband has his ENT appointment last week and now ENT want to do biopsy in…
Rash
Hey Fellow Survivors! Hope everyone is well, and just checking in with the old timers. I read the old posts on rashes, but my rash has occurred 3 times on my neck where the radiation occured, and quickly spreads across, and down past the collar bone, feeling hot, very red and swollen. I had cisplatin in 2009. I read your…
TPF protocol
Hello, I am new to this site and I am glad to have found all of you. My son was diagnosed with PSCC of the tonsil T4N2bM0, and is having induction chemo using TPF. I am so concerned about his dosage because it is less than what i have researched. I am worried about the cancer cells coming back ,Plus the doc is unsure of…
Radiation DONE!
Hi all, I haven't been on in a few weeks. Finsished radiation two weeks ago and took a little sabbatical. I made it through!!! Overall I believe I beat the odds. I have to send out a huge thank you to Sandy, Rob's wife And to phrannie51. Phrannie had recommendEd Mugard and Sandy was extremely generous in helping me out…
Dreaded Erbitux
We hv not posted since our first chemo. Just so much coping going on. I will try to make a long story short. Chemo has been ok Except the evil rash coming from Erbitux ,has turned into a grade 4 . T. Has been on antibiotic for over 2 weeks. Also neupogen shots for series total of 14 shots N/V not bad,fatigue difficult at…
Impatient and scared.
hello. I'm 36 yrs old and I was diagnosed in June with stage 4 head and neck cancer. I finished up all the treatment last week but.... I'm either in the ER or back at the Dana-Farber for IV. The pain in my throat is ridiculous. Nausea is all the time. I cannot even swallow my own spit. Way too much phlem. Why??? Does…
F-C-R a real disorder
Hello everyone, I was reading an article about this in the Cure magazine (Fall issue 2013 pg. 59. ) We call it scanxiety and realize it is a part of the process. Learning to have a cancer survivorship care plan in place is a really good idea. I wasn't given a specific one to follow...kinda fell through the cracks so to…
Anyone in this forum stationed at Camp Lejeune from 1957-1987?
Hello survivors. Just wondering if any of the survivors in this group were based at or lived on the or near Camp Lejeune in NC? In case you do not know the water there was contaminated with toxins like Benzine, PCA's and TCA's. It was caused by a dry cleaner dumping solvents into the water and cleaning solvents used by the…
'Muco-epidermoid carcinoma'
I carried a tongue cyst for about 18 months after being told by doctors as a infectedd salivary gland which when finally removed turned out to be very slow growing 'Muco-epidermoid carcinoma - low grade'. The histopathology report states one of the peripheral margin is close, 0.1 cm clear. The MRI that was done after 7…
I'm just so mad!! And sad.
I'm feeling a variety of emotions tonight. TWO ladies that I know were diagnosed with breast cancer this week. TWO in one week! Plus another friends' father in law was given 6 weeks to live with lung cancer (stage IV and has spread pretty much everywhere). Every single time I hear of someone I know getting that diagnosis…
6 Years Out and Just Now Getting a PEG tube
I had tonsil cancer in 2007, and had the neck disection, chemo, and radiation. I'm now 51 (yay - I made it!) Cancer free still! However, last summer I started having a sore throat and difficulty swallowing. Finally started throat dilations in April. Today was my ninth one. The last was 7 weeks ago, and I have since lost…
9 Months After Treatment for Stage 3 Left Side Tonsil Cancer with Lymphnode Involvement on Same Side
Hi Friends, I always like to post my progression so those currently in treatment will have hope of a positive outcome. I appear to still be a friend of NED! I just had a 9 month CT scan done as part of my follow up after treatment and doctor did another scope of the throat area. Doctor said that CT report shows that all is…
No PET scan?
Hi All, I think this has come up bedfore but it's so darned hard to search this site. My husband finished his treatment (with flying colors, perhaps I will post an update) at the end of May. Since then he had an MRI which looked fine and was scheduled to have a PET at 4 months post-treatment. Like everyone else here, we…
Update..
Hello Everyone, Wanted to check in and give you an update on Kreg. He is coming up quickly to his 1 year anniversary (when tx ended) in November. Hard to believe that it was a year ago in August that we got that dreadful news. But, life has been going well for him. He has been back to all his normal pleasures in…
A Side Effect?
Hi Everyone. My brother made a trip "home" this past weekend. It was great seeing him. He looked so much better than when I visited him a few weeks back. The whole family came over to visit with him. We also celebrated his daughter's 21st birthday. It was a great weekend; we all had a wonderful time. That's the good news.…
Tips for getting through radiation...
Hi everyone. My name is Jamie, and I am the caregiver of Pat, my husband of twenty years Pat was diagnosed with tonsil cancer in late August 2013. He had a complete tonsilectomy, removal of 29 lymph nodes, and a bit of muscle behind the tonsil area on August 6th. He has healed from the surgery for the most part, but we are…
Radiation or not?
Hello, everyone. I am a new member of this group. In July I was diagnosed with tongue cancer. I had surgery (partial glossectomy) to have the tumor removed. I then had a functional neck dissection a month later. Cancer was found in one lymph node. According to the doctors, my margins were clear and the lymph node was not…
My cancer docs keep leaving! 3 now!
Quick background: initial cancer care in Fargo, ND with Dr. V. Spread, spread, spread after 3 surgeries, 2 chemos and radiation. He referred me to Dr. Kim in St. Paul, MN for CyberKnife. That took care of the last spread but Dr. Kim retired. Now 2 suspicious spots on lungs one year later. Met her replacement, he's okay and…
Awaiting meeting with medical and radiation oncologists
T1N1 tongue base SCC stage III. HPV16+. S/P neck dissection and TORS base of tongue resection. 3 weeks ago. Rad/chemo recommended due to extracapsular involvement of the one lymph node. Finally got records sent to radiation oncologist in Myrtle Beach and medical oncologist in same area. Will meet with both by next Monday…
Mango Snapper ~ Dinner for Two
Ahhh, the joys of Upper Tampa Bay... Fresh Mango Snapper, a generous portion of Cheese Grits, and a few cold beers; Get'em while you can... Dodged several rain cells Sunday morning, but mostly just a light drizzle off and on... Definitely worth it for a Mango Dinner... All of you suffering one way or another..., hang…
HAIR REGROWTH
I'm on chemo for life. Right now I have been on Taxotere for the last 19 weeks. For the first 17 weeks or so, just about all of my hair fell out. I have not shaved for a week and noticed my facial hair has really started to come back. Another week and I'll be a 70's pornstar. My question is, has anyone else who lost hair…
Not Eating
I'm new here so I'm not at all sure I've placed this in the correct forum, so please forgive me. A life long friend is a throat cancer survivor now for about 6 months. She still has the feeding tube which the doctors wanted to pull 3 months ago, but because she is not eating, relying solely on 3 Ensures daily through her…
diets and Jack
Hey everyone, I have so many concerns for people on so many levels with this one. I have been reading more and more about using alkaline diets and their proported wonders. When asked how they are gauging their PH levels they respond with (the over the counter urine sticks). Oh my ! I kind of thought this one went out with…
Side affects
Side affects already 4th rad. My skin is sloughing off my tongue and inside cheeks, my neck looks like a chipmunk one side and my teeth feel coated. the mask had to be loosened a bit this morning to allow for the swelling. Tomorrow I have the op for PEG, and dental assessment, and rad. I can't eat or drink for 6 hours…
Just curious-What was everyone's initial PET UPTAKE VALUE's?
I'm just curious to know what everyone's initial (beginning) PET SCAN uptake SUV values where? High-Low?
MEDS TO COMBAT FATIGUE
I am getting more fatigued with each treatment. My weightlifting has gone to hell in a handbag. Has anyone been prescribed anything to fend of chronic fatigue? I'm livin on 5 hour energy. Hope all my CSN buds are having a good Monday. Mike
First day of radiation tomorrow
Hello everyone, I have been following this forum for almost two months now and have learned so much from everyone's experience. I'm a 26 year old that was diagnosed with mucoepidermoid carcinoma two months ago. The tumor was located on my hard palate and was surgically removed about a month ago. my staging was t4n0m0.…
Anyone with P-16 know their EGFR and type of SCC?
I have read my biopsy pathology report and the tumor excision and neck dissection pathology reports and cannot find any notation about the EGFR. Have read the ratio of High P16 and low EGFR is a good indicator. Also have seen nothing about the type of SCC classification basil, adeno, VCC, etc. I do not know if this is…

Head and Neck Cancer

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