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New here - want to share and looking for hope
Hi, I’m new here and just looking for a place. My husband (52yo) was diagnosed in Sep 2018 with stage 4 Mets to liver and has in the last year spread to lung. He had surgery in Oct 2018 in the colon and then started chemo in dec, followed up with radiation, and then tried ablation in the liver to remove the liver spots.…
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Helen321 saying hello. Boy these new boards are horrible
I am just checking in. Hard to tell who's on here with these new boards. Not at all user friendly when you actually care about the people and not just the disease. I see Kim, Due and Beaumont Dave. Hi all. I made year 10 this year. Finally getting the help I needed for all the pain I've been in. They're finally hearing…
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Collapsed Ascending Colon/Tumor on pancreas tail and spleen
Hi, My 81 year old mother has stage 4 colon cancer. She finished 12 rounds of treatment and most things shrunk and some went away. The nodules in her lungs grew a tiny bit so they won’t give her radiation. She has a 4 cm tumor on her pancreas tail and spleen which might even go onto her stomach a little bit. We met with…
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survivor story
In 2010, I was diagnosed with Stage 3B colon cancer (sigmoid colon) at age 50. I had surgery first followed by 12 rounds of FOLFOX chemo. I have been NED since then. (I'm a woman, BTW.) I followed the advice of my original doctor to get surgery first... A second doctor advised the opposite -- chemo first and then surgery…
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ISO Surgical Oncologist recommendations
I'm looking for recommendations for a surgeon (or team of surgeons) for a friend of mine who has stage 4c CRC. He was expecting liver resection along with peritoneum surgery next month but they found new lymph node mets and just informed him they won't proceed with the surgery now. Can anyone recommend anywhere we should…
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Chemo working after treatment ends?
Hello. I just finished my folfox treatments. My MRI just posted and it shows no change in the tumor. I’m just wondering if there is any hope that the tumor will shrink in the months following treatment. In other words, does the chemo continue to work when treatment is finished or does my lack of shrinkage mean the chemo…
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Rising CEA with Clear Scans
Hi there, I am a stage 3c colon cancer (transverse colon) survivor and out of treatment/surgery for 19 months now. My CEA level when I had stage III was highest at 6.9 after my cancer surgery and was 5.4 when I first met my oncologist. Now declared NED, the last few CEA levels have been rising and I am at 5.1 presently.…
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Thoughts on LAR surgery
I was recently diagnosed with rectal cancer. A large polyp was removed during my colonoscopy but came back with cancer still located along the margins. All other tests have looked good (MRI, CT). My surgeon is recommending LAR w/ileostomy to remove my rectum and surrounding lymph nodes to make sure it has not spread. She…
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Stage 4 Bowel / Liver Mets - CEA
Hello, hoping someone can confirm if this normal or expected but my Dad has stage 4 Bowel and is currently on his 5th cycle of Chemo. His CEA was over 24000 before Chemo and the speed at which he has improved is amazing (I have my Dad back!) he is on 9 day cycles of tablets, 4 days rest in-between (40% of dosage due to…
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And The Drug Trial Keeps on Working - CEA plummets, Cancer Activity Drops, Tumors Shrink
The tumors being tracked have now shrunk a total of 14% since I started the drug trial in July. Had some bad reactions a couple of sessions, but since then it has been easy. PET scan showed that some lymph nodes that had activity/uptake are resolved - no sign of cancer activity in some locations. My CEA (which is always a…
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Cea levels jumped fast.
Hello my father had surgery for colon cancer chemo and then chemo embolization procedure to one metastasis on liver. He was scanned and all showed cleared then put on remission. Three month follow up was last week and CEA jumped from 10 to a 400. He will have his petscan Friday. Has anyone experienced this before hoping…
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Round 3 of FOLFOX
Hello everyone. In July I went to the emergency room with severe stomach cramps. Tests showed thickening of my transverse colon. When I finally got in for a colonoscopy on August 29th a mass was almost blocking my colon. The next day I had surgery to remove and all margins were clear. T3 with 3 of 16 nodes adenocarcinoma.…
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Cytoreductive surgery
Hi! Anyone here had succesful cytoreductive surgery, with or without HIPEC (hyperthermic intraperitoneal chemotherapy) for peritoneal carcinomatosis? Stage 4... If in Canada, what hospital? Thanks!
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Possible Mets
Hello, Has anyone had the experience where the radiologist has said mets on a MRI result and your CEN is lower than 3 and you CTDNA is 0. Right now, Doctor wants MRI's every two months and if CTDNA comes back positive, mri's every month. I have been diagnosed with stage 3 C on 12/2019. Had a sigmoid ectomey with Capeox…