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Colorectal Cancer

Archives for December 2008

Honor -- How did you do?
I'm checking in to find out if Honor has felt up to posting after her Lung RFA treatment. Having mine canceled and rescheduled has certainly been a bummer and even today, I'm feeling a little on the down side. The good news, it isn't snowing! The roads and sidewalks are clear, although it is kind of chilly out there (about…
update
Sitting in chemo with mom right now. We have just been told that she has the kras mutation so erbitux is out. She also has an enzyme deficiency that makes her body tolerate folfiri more harshly than the normal person which makes giving her a normal dosage out of the question. She rec'd half the dosage last time and still…
Happy New Year
I want to wish everyone a Happy New Year and I hope this new year brings only the best to all. I'm on my 9th treatment of 5fu (I had 6 with oxi), onc took me off due to the bad neuropathy I was having. My feet and fingers are getting much better now. The closer I get to the end of the treatment, the more nervous I'm…
Dr. Lenz
I have discovered that Dr. Lenz who has been mentioned in previous mails as a renowned physician in the field of colorectal cancer is blogging on the Colorectal Cancer Coalition website starting in January and that he can be found now on Revolution Health website by entering Lenz in the search mode and that will take you…
UPDATE ON HOP --- GREAT NEWS
Evening folks: I'm tickled to death to report some great, great news.....The doctor's office called this afternoon, after the PET and CT scans...They said the scans showed no evidence of the cancer metastisizing to other organs AND the CEA test indicated same. They also "finally" gave us the results of the biopsy on the…
maintenance of chemo
Has anyone been on maintenance chemo and for how long? I just finished 13 rounds of folifri with Avastin. I was going to go in for surgery to remove the nodes in the lung and liver but they are too small to find so they put me on a maintenance schedule of xeloda and Avastin. I just don't know for how long. What side…
Shouldn't have looked
Hey, guys. I might have myself unnecessarily nervous. I got copies of my medical reports from the last year, because I'm seeing a new gastroenterologist in January, and his office requested stuff. For those of you who remember my story, I was diagnosed very quickly and had surgery the same week, so I didn't have time or…
First CT Scan after chemo
I completed 6 months of FOLFOX earlier this month and am scheduled for a CT Scan on Jan. 9th - have to wait until the 21st to get result at my follow up appt. I was wondering if anyone had something show up on their first CT after chemo. Seems to me that any remaining cancer cells will still be "hiding out" at this point -…
You have to see this
My dear friend (and the Managing Editor of both the magazines I publish) Kit Robinson is a fabulous, award-winning art quilter. For Christmas she made me the most incredible wall quilt. Last Fall (before DX) I took a drive into the Rockies (about an hour from my home) and photographed the brilliant yellow/gold/orange Aspen…
RIDDLE ANSWER
msscolon had the correct answer. CONGRATS!!!!! :) :) Riddle: I am large as a castle, yet lighter than air. 100 men and their horses cannot move me. What am I? Answer: The castle's shadow
Good news
Dear Everyone, I can never thank you enough for all your prayers. I had my colonoscopy this mornig-After being so sick for the past 3 months. No Cancer in the colon,No polyps. I have sever Diverticulotis. Controled completely by diet.Tho Family history I must repeat every three years. Joke for my family and kids Besides…
Why?
I have reached an anniversary, one year ago this month was my last of 12 grueling chemo treatments for stage 3 colon cancer. Found it during my 50 year old check up in May 07. I have just had a wonderful christmas with family. I had my 12 month check up with nothing but good news. But... I can't sleep again. I feel like ?…
abnormal papsmears
i have had abnomal papsmears since my chemo and radiation. My pet scan and rs. say everything is ok but i still worry. They found my cancer though a papsmear the tumor had broken though the colon wall.My gyn is going to check me every three months . I guess what scares me is he says its pre cancer. Has anyone else had this…
PET SCAN PREP
We were given instructions for prep. for the PET scan and it includes... The day/night prior to and morning of the PET, Hop is to do absolutely NOTHING, including reading, any exercise, if he wants or needs something, I'm to do it for him...No chewing of gum.NOTHING...Can someone explain why for us? Marygale
Hello from Holland!
We (I) installed our new high-speed internet today (Sunday afternoon...lol). I LOVE it that I am connected!!! As I have shared, I wasn't looking forward to this trip...so many memories from when my beau's mom was alive... Our trip was good...when I checked in the night before, I changed seats...to seats in Business…
On the Home Stretch
At 12:45 am my 5FU pump shut down for the last time (this round)! Really weird, I have the nausea, etc, pretty much under control, but about an hour before it stopped, I was violently ill, vomiting, the whole 9 yards. Then it all went away. I decided it was chemo's last hurrah and I won! I still have to wear it until…
HAVE ANOTHER QUESTION
I know....I'm getting way ahead of the situation here, but this has been bothering me....If, IF they find the colon cancer has matastisized to other organs, do they normally do the surgery on those other organs while they're already inside? Or in most cases do they do this as a seperate surgery? I'm sure a lot depends on…
A knitted digestive system
Found this link on another site. Some people just have way too much time on their hands! http://www.strangebuttrewe.com/knitGI.htm mary
Invited to speak
I've just been invited by our local Relay for Life organizers to be a speaker at the kickoff event. They said they just need a short little bit on my "cancer experience." I want to do it, but I hope I don't stand there and cry. Cancer always makes me cry. Yikes. I'm not a shy person, but I don't want to mess this up. Help!…
PET Scan- what's it like?
Hello, fellow semicolons and a Happy New Year to you! In early February, 2009, I'll go in for my first PET Scan. It will be the first such scan for me and my first ONC checkup since my colon resection in October, 2008. After the surgery, the ONC took a baseline blood work-up, so they'll be doing another blood checkup for…
CARINGBRIDGE
Just me again. I just set up the "Caringbridge" for us to use when we're in the hospital. It looks very simple to use and I've sent the boys emails advising them of the site. Thanks to all who suggested it. I think it'll be a great help when we're in the hospital....for keeping family / friends up to date, etc.…
Merry Christmas and Happy New Year
Merry Christmas and Happy New Year to everyone. I have lost some weight since I was last at colon doctor, No other symptoms, but had none before. My colonoscopy is scheduled for Friday Feb. 13 at 8:00 at a hospital in Martins Ferry Ohio. It is aa good thing that I am not superstitious. Have a great 2009 everyone. Ladybug
Actual Colonoscopy almost here
Well in just 3 days I will recieve my first colonoscopy. Right up till today I have been some what relieved. Now the fear has begun-For the ladies-My friend decided to visit.Everything I read says they will still do it-wont interfear.I told my husband today I am not sure what I want out of it-For them to find something and…
Eartha Kitt
Sad news that Eartha Kitt died today, from colon cancer. I have long admired her spunk and talent. This beast can strike anyone. My prayers to her family and friends. Vicki
Bowel Prep
Hello all, What kind of bowl prep do you use? I was using the Phospho-Soda®Products and found out that they have recalled it due to causing kidney failure problems. Geessh. That is what I used last year and the year before. Before I have my colonoscopy I'd like to go to the doctor with ideas! Yes, he does have the prep he…
Merry Christmas
Merry Christmas to all! I wish you all the best in the New Year. Cheers, Lance
CEA Level - Over 5,000
I am in shock. Last year at this time, my dad's cea was around 35. Now, it is over 5,000. Has anyone had a cea this high. It started to climb in June. He was going to switch treatments then he got penmonia so we could not start treatment till almost October. So, he was not on treatment for almost two months. He is…
Dealing with partner's depression
Hi: I live in Australia and my partner was diagnosed with colon cancer in October. After seeing an oncologist and getting info about chemo (and having appointments set up for chemo preparation and delivery), he decided he did not want to go through with it. He did talk it over with the doctors and instead will be…
5Fu ???????
Can some of you tell us what exactly is 5FU and what does it do? I just remembered the surgeon mentioned it and I forgot to ask him this question. Thanks to all, Marygale
Post treatment blahs
Hi, Valerie here. stage 3 colon cancer 1 positive node. I have completed my 12 rounds of chemo, it's been 2 1/2 weeks. I'm still feeling some occasional nausea, and diarheria, fatigue and just an overall blah some days. Is it normal to feel this way after treatment is complete and for how long? Thanks so much for your…

Colorectal Cancer

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