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Caregivers

Archives for January 2012

Please help get to chat room
I registered, did the email confirmation, filled out the about me etc. every time i click on the chat it comes up just long enough that i think the red lettering says im not registered then goes back to the same page i was on. It says im signed in on the website i desperate to talk to someone...
very overwhelmed right now
It didn't really hit me until today. Took mom who is 70 to chemo yesterday. She was on round 6 of how many we dont know. This is the 2nd time she has gone through chemo. First set of chemo she struggled(almost anaphalyxis state) with the taxol so they give it to her really slow takes about 4 hours to get it in her. So this…
Valuable resource to share - Caris LifeSciences "Target Now" screening
Hello everyone, I wanted to share an extremely valuable resource that is helping guide my mother's Stage 4B uterine cancer chemotherapy treatment. Most important for everyone to know is that this was NOT something that was provided by her oncologist. My two sisters and I had to research this testing/profiling ourselves and…
young caregivers.
I'm new to this whole thing, so bare with me lol I am 19 years old. my mom was diagnosed with stage 4 lung cancer on November 18, 2011. A fairly new diagnosis. on the 21st of November she went into respiratory failure and was on a ventilator for 6 days. she came off of it like a fighter and after 6 weeks of in and out of…
Hospice - what I would give to know this before I brought my lovely young wife there -
Full post here. If this post helps you, or can help others, please share the link or site. It's heartfelt and a little edgy and except for this post, usually some caregiver humor thrown in for good measure http://hoogenakker.net/?p=516 First excerpt of 1/3 of post: Ok, we might have been just like you. For us, after…
For us caregivers who are now just survivors, how do we explain to family and friends what we're fee
A short story that in a somewhat light fashion (and who can't use a little of that now and again?) will help you frame yourself and tell friends and family what you might be going through. The blog is heartfelt,powerful and a little edgy with some offbeat cancer humor because it we don't laugh we'll cry right? Anyway, here…
Reflections of 2011
I have a journal that I write in daily. I started it the day after my husband passed away. I never go back and read what I wrote except for January 1, 2012. I read it to the grief counselor that comes over once a week because she asked me to share it. I would like to share it with all of you. "Sunday 1/1/12: Well the worst…
Dad is through with his Melanoma battle
Just wanted to thank you all for your support; it really helped a lot. I posted on the Grief board.
Reactions
I have a question do you know if you can get any reactions from your husband that has been on chemo for 2 years.
I lost my best friend
I lost my husband last Saturday to Liver Cancer. He put up a good 2 year long battle. I am lost right now and don't know how I will go on.
Will it ever be the same?
My wife has been getting treatment for 4 years now. It seems the only questions that I get are how is she doing. WHats going to happen after the fight is over. Will we be able to have some extra money to do things that we haven't been able to do in so long. Will I be able to talk about something other that this curse. Do…
drinking
Hi everyone, just thought I would post to see if anyone has this problem. I am a recovering alcoholic now for over 30 years but as of today I have drank 1 half bottle of bally high Omg I have never drank anything for so very long, but this thing that my husband has been going through now for 15 months I just can't find any…
stretched again...
Hi Friends, Lately I have been overwhelmed. I just don't know what to do. My husband can be sooo mean. Sometimes I just want to do something like run away. I love him but sometimes I feel so abused. He can be mean, thinks he knows it all. I am just venting and I feel bad for saying it. Sometimes I feel like I am being…
My husband will be gone by tonight...
It will be almost two years since first joining this site. I have met lots of people in the same situation that we have been in. We have even made some friends that I hope to keep in contact with. Sadly today I will be saying goodbye to my husband of almost 40 years. I still can not believe we are at this point. We have…
troops
Hi, my hubby's been battling cancer now for 15 months. I've been trying to do everything myself, I am one of those persons that HATES to asks for any help. My sister told me yesterday " IT'S TIME TO CALL OUT THE TROO[S " MEANING, HAVE TO ASK FOR HELP. Just thought i would bring that up if there is anybody out there that…
Mom admitted to the hospital.
My mom completed her chemo 2 weeks ago . Jan 5th she finished her last radiation appointment on her throat Cancer. But on the same day. I had her admitted to the hospital. She won't eat Nor drink any nutritional supplements and she refused the placement of a peg feeding tube before we even began treatments. I had taken her…
Husband has survived Esphogeal and Lung Cancer but quality of life is terrible...so sad
It has been some time since i posted last. But i am tired now...My husband has survived having esphogeal cancer stage 3b which they removed his esphogus and replaced with a piece of his colon. Then a year and a half later stage 1 Lung cancer that resulted in removal of his right upper lobe. He is so sick and in so much…
New member
Hi, My 55 year old mom is battling esophageal cancer. On Easter day of this year, she was working (at a hospital luckily) and started to feel faint, several of her nursing co-workers forced her to go to the ER. She was treated by a wonderful doctor that admitted her with the suspicion of a bleeding ulcer due to the stress…
mom passed 12/31/11
mom is finally at peace. She lasted 11 days without water and 13 days without food. She struggled and was in unbearable pain for the last two weeks but in the end she died very peacefully. We had her funeral on Wednesday and the services were beautiful. This week has been just a fog for me. I know she is gone, I was there…
Dr Visit confusion
Hi Friends, I think it has been a minute. Husband went to chemo today. He had a tumor in his neck that he knew about. He let me feel it the other day. It started out as a popcorn kernel, now it is the size of a quarter. Well, we have been off chemo since November. WBC was 2.2, and we already know that he is anemic, but he…
Can you guys see me???
Feeling a little invisable to my husband lately... he had the embolization a week ago and has been very tired since. I totally understand that but when he is up he doesn't seem to see me and others take priority. I am feeling alone and lonely, missing the man that loved me so much. Last night as I layed in bed I couldn't…
In Hospice Care now
What a ride this has been. It's been up and down for the past two plus years and we now find ourselves at the end of the road and in Hospice care now. I am trying to find the strength to see us through this terrible disease but everyday it has it's challenges.
So much Stress
I am the primary care giver to my mom who has stage 3 throat cancer. She has done amazing through this whole thing with 6 chemo days and 30 radiation treatments. We have only 3 more to go now . I had a bad day. My mother's been emotionally challenging for me since this whole thing began. She has terrible mood swings. She…

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