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Esophageal Cancer

Archives for September 2011

How do you "feel"?
Hi everybody; I have a question for you.. how do you "feel" most days? Pain aside, do you feel normal, sickly, weird? Lately I've been feeling really sick every day and I wonder if it's my liver acting up. I choke a lot which is unpleasant, and am finding it really hard not to just sleep the day away (which ruins my night…
cher76
Just worried about you, haven't heard back from you. Send me an e-mail or something!!!
MIA recap and Emotional Bag Check
Hey gang -- sorry I've been MIA this past week, my husband and I took a trip to Disney in Orlando with friends and I thought I'd have some down time to chat online but we really only spent time at the hotel to pass out. (I'm working on uploading some photos, I can post a link later if you'd like to see some). Quick update…
Kateel
Hi Just wanted to know if everything was ok, so worried about you, keep in touch if you can. Ann
John Looking better
John is looking and feeling better. He has been on continuous feeding through j-tube (he started Tuesday @ noon). Once he started the tube feeding I could see the difference in a few hours. The infection looks ( to me) like it is clearing up. He started antibiotics on Sunday afternoon, the incision site is still draining…
Mom just diagnosed
Report used words like: large, friable, frond-like/villous, fungating, and infiltrative. Then went on to say "very large esophageal malignancy at the distal esophagus just above the g-e junction. It is at least 8 cm long." So I googled this. Nothing I've read sounds positive. I did not share this info with my mom (84).…
Hopper52 Update
Well, it's been a week since my aborted surgery and the bad news. I feel I should share what transpired and where I am now. I had my MIE scheduled for Oct 07th. Not having difficulty swallowing but it seemed like nothing or very little was passing through. On Sep 12th my abdominal pain got unbearable and my research…
IL vs. MIE
So, I've been doing more research and right now we are set to do the IL but we are also talking with Luketich to get more info. And what we are reading from the studies and all the literature is this: Seems that the best benefit of the MIE is that if you are a more frail and older person you might do better with the MIE.…
Happy New Year
To all of our Jewish friends, L'Shana Tova A very happy, healthy and peaceful New Year.
Good day today :)
Hi all, Just an update on Jeff. This week we met with his oncologist (Tuesday) and then surgeon today. Both of them remarked that he looks very good for someone only three weeks out from surgery. Both also agreed that Jeff should keep his j-tube until after chemo, just in case, but they said he should try very hard to not…
bailey1459, ANYONE stage 4 help please (again, more questions)
If this is a jumbled mess I am sorry in advance, things are just going real fast all of a sudden and I am not ready for the roller coaster to start down hill yet!! Dad went on Monday because he had to meet with Dr. to decide what new drug they were going to start. they stopped the others because it wasn't affective and…
First Post-Op PET/CT Scans Results
I had the big surgery in April and was scheduled for my first PET/CT Scans and blood work for last month but I had to testify at a trial so it was all rescheduled for last week and the meeting with my oncologist was today. All clear!!! I am sooooo relieved...
Here we go again (or maybe not?)
As some of you may remember I was recently diagnosed with a recurrence in the right paratracheal node. They found the distant metastasis 9 months out from my MIE. My surgeon said surgery was not the answer and sent us to our oncologist. We met with our local oncologist last week and he said he could only offer palliative…
John Recovery Update 19 days post -op
OK this is where we are today. One dose of Imodium and a script for Zofran cleared up the diarrhea and helped with nausea. The Home Health agency delivered the pump & supplies to start the tube feedings on Tuesday. John did look much better Tuesday morning. John did eat a little bit yesterday (not much) but it was…
JThomas, thinking of you
Hi Jeff, If you are checking the board I wanted to let you know you have been in my thoughts. I am hoping that you are home and working on gaining your strength back. I am sure there are others who are hoping the same for you. Let us know how you are doing when you are able to. Niki
Stage IV, Chemo, and other drug regimens
I would like to know how other Stage IV patients are being treated and how they are handling treatment. I wonder if we can learn anything from sharing. My husband was diagnosed with Stage IV in August of 2011 age 45. Has a 5cm tumor at the gi junction. There are multiple enlarged lymph nodes in the paraesophageal region…
For Marci Madigras
PLease Please Please Marci, do not wait to call UPMC. This is a brutal cancer. My husband was early stage, had surgury, at an o.k. hospital no chemo radiation was offered and his came back about a yealr later. DO NOT LISTEN to family , friends ETC. Listen to your heart and call a well renouned DR who has done Many of…
Claims for Agent Orange Exposure
I talked to our County Veterans Service Officer today and she said to encourage EVERYONE who has EC and exposure to Agent Orange to file a claim. Even though your claim will initially more than likely be denied you should still file. The more people who file, the greater the chances of EC making it onto the presumptive…
Newly diagnosed and don't know what to do!
Hello everyone, My husband Rob was diagnosed with EC three weeks ago. He has an 8cm tumour at the base of his esoph. with a suspicious looking ganglion close to it. The surgeon says that, from the scan, he does not think the tumour has spread to any other organs. Rob has minimal discomfort when he eats, which led to the…
Had to share :0)
So excited to share with everyone that my dad has had a "good" weekend. After some very long months of little (if any) eating, unhealthy weight loss, fatigue, depression and confining himself to the house (other than Dr. and chemo visits)...I am so excited to tell you all about it. This weekend he had not only lunch, but…
John Recovery Upddate!
John was discharged from hospital little over one week ago. He continued to have pain in his right side (the area where chest tube was). He really has not moved too much in the week he has been home. I thought it was because the pain medication was not as strong (IV vs. oral). I encouraged him to walk and move (he not to…
Question about sweats/chills
Hi everybody; One of the most unpleasant sensations I have is when I get the sweats, you know, when you're just sitting there minding your own business and it's suddenly too hot, or a light breeze feels freezing, or half of you is on fire and the other half is chilly? and your whole head starts to sweat at once but your…
A thank you to my animal caregiver
This may be silly, but I wanted to write a thank you note to our dog Daisy. Daisy is a 6 year-old beagle, and has been with us since she was a pup. She howls a little too much, but once those big brown eyes catch you, you don't care. Dear Daisy; I want to thank you for all your help with the family for the last year. As…
MIE??
Okay, to you old pros this may be a silly question but I don't understand the numbers and letters and what is MIE? My husband is stage IV and that's all I really know. Thanks, Rita
Just a thought...
There are some remedies worse than the disease. There's more to the truth than just the facts. By daily dying I have come to be. You never know what is enough, until you know what is more than enough. Some people walk in the rain, others just get wet. The obstacle is the path. It is better to know some of the questions…
For Chemosmoker and LeeinLondon
Although I've been hanging around for months, rarely do I post on this board. I usually just read (several times daily). Anyway, I wanted both of you, Eric and Lee, to know how much I have enjoyed your banter back and forth. The two of you are such an inspiration and you have touched my life more than you could ever know.…
Update on Bob
I wanted to let everyone know that Bob's MIE surgery went very well - approximately 5 hours. He's currently in the surgical ICU until later today as beds become available on another floor. More details to follow--- Thank you for all your kind thoughts and prayers. Carol (Bob's wife)
In a fix???
My dad was diagnosed with stage 4 cancer in Feb this year. He went through 4 rounds of chemo and 35 days of radiation. Now after the treatment, his pet scan has shown an hot spot at the place of origin but his biopsy report has come clean. Radiation guys have been suggesting that keep biopsy away as the more biopsy may…
husband stage 4 Cant Eat
My husband has had 2 chemo treatments for stage 4 he is having such a hard time eating. I thought after chemo this should shrink tumor. Other then pudding nothing is going down. Does the eating ever get better?
Drug Shortages
As if people with cancer and/or needing surgery don't have enough to deal with, here's a news item from today: http://tinyurl.com/3ml4gpx My daughter is a pharmacist at a major university hospital and has been talking about this for quite a while. In her area, currently the anesthesia drug shortages have been worse than…

Esophageal Cancer

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