Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Esophageal Cancer

Archives for September 2011

Not Expected But Not Surprised - STAGE II TO STAGE IV.
My wonderful daughters posted an update on my status earlier. I'm not feeling that great yet after my surgery so this will be very short. Just wanted to let everyone know how much I appreciate the prayers and words of encouragement. I'm in good spirits and my family has handled the news pretty well. They,as well as I, know…
Not Expected But Not Surprised - STAGE II TO STAGE IV.
My wonderful daughters posted an update on my status earlier. I'm not feeling that great yet after my surgery so this will be very short. Just wanted to let everyone know how much I appreciate the prayers and words of encouragement. I'm in good spirits and my family has handled the news pretty well. They,as well as I, know…
pain management
Hello to all, I linger here every single day and have posted occasionally. Wondering if anyone can shed some light on my husband's pain. Update is as follows - last chemo (taxatere) was July 11th, 8/3/11 - right lobe of the liver had the radiation infusion (SIR-spheres) - 9/9 MRI showed right lobe tumors were responding to…
Update on Mike (hopper52)
Hi EC survivors. This is Linda, Jennifer, and Lisha, writing on behalf of our father, Michael (hopper52), who is an active member and friend to many of you. We wanted to first thank everyone for being such a source of inspiration, hope, and guidance for our father. All three of us live in the northeast, so we are certain…
New and nervous--Any suggestions?
I just joined this group this month and have been amazed at the loving, caring community here and the wealth of information shared. We had never even heard of anyone having esophageal cancer when my husband was diagnosed as Stage IV in late June of this year. He will finish his 4th round of chemo on Monday and have his…
Special day for Bob Haze
Today – September 23rd – is the day they will be removing the cancer from Bob Haze. Please take a few moments in your day today to say a special prayer or send your positive thoughts along to Bob, his family, and his surgeons. May the surgery be successful and may Bob’s recovery be rapid and complete. Best Regards, Paul…
Stinky gassey burps
My fiancé had a MIE in the middle of May 2011 and is slowly but surely recovering. Eating has become a learning experience again, to say the least. Off and on for the past couple weeks he has had these stinky gassey burps. I wondered if anyone else has experienced such a thing and if you were able to pin point the cause? I…
Post operation concern
Hi all. My dad (stage 3 EC) had his surgery exactly one month ago, and is recovering slowly but surely. He looks a little better each day. I've heard from many people on this site that it is quite standard for post-operation chemo to take place. Several lymph nodes surrounding the tumor that were removed during the…
Taxotere
Just got home from my first infuson of Taxotere. Glad to report that I did not have any of the reactions during infuson they were looking for. Two nurses stayed with me for the entire infusion time. New port work perfectly. Old one never worked perfectly. Anyway, all in all things are ok. Hopefully this drug will work for…
Ray (Jr.)
From Kathy, Ray's wife: pray for ray, well the test was good,,God is sure answering our prayers..he had a bad reaction to infusion today, but that was taken care of after about an hour..that wore him out.keep praying. It was a good scan,the tumor has shrunk alot, the area that was massive has reduced, there are a few spots…
Lymph Node Changes
I had this idea 3 weeks ago and when you find out you have EC cancer, the chemo starts right away before it can spread any further. But here we are on with my mom starting on the 21st of September on Chemo/Radio when we found out on Aug. 26th that she had cancer. In this amount of time, can the close lymph nodes spread…
Port Cath
Hi My mom had the port cath put in last monday(10 days ago) and she told me tonight that it still hurts. How long does it take before it doesn't hurt anymore? She is supposed to start her Chemo tomorrow, can they even use the port if it hurts that much?
Lee blog
Lee, I am new to the forum. Just wanted to say how much I enjoy your writing. You really have a gift. Very courageous and raw writing. I hope it helps you- it sure is wonderful to read as the spouse of a man with EC. He's going to read it too. Thanks so very much- hope you are doing ok. Cora
Lee & Chantal
Hi Just hoping everything is OK with you two, you've been really quiet lately, know that I am thinking of you both. Ann
Dr. OZ sheds light on EC today!
Hey gang, Dr. OZ did a great segment today on his show (it was a rerun but still) covering Barrett's Esophagus and Esophageal Cancer! He put in a big plug for The DeGregorio Family Foundation for Gastric and Esophageal Cancer, but hey, no harm there. Anything that helps get the word out is great to me, and for us. He did…
Ayurvedic Cure- ray of hope
Hi, I am mishti and I am from India. My dad has been diagnosed with stage 4 mid range esophagus Cancer in Feb 2011. I got in touched with one of individual who was suffering from brain cancer. After getting range of treatment from chemo to radiation, he went in for ayurvedic treatment in Varansi , India and find remarkable…
Another post on agent orange and EC
I have contacted both my VA senator and our govenor from Georgia and The white house . I have received letters back from the govenors office and from our Va senator but nothing from Michele and Barrack. Not a word. I am VERY dissapointed that someone on their staff could not take the time to write as they are SUPPOSED to…
Update on Jeff T - pneumonia, A-fib and pathology
Hi All- Luis and I stopped by to see Jeff T. Luis had a post surgery checkup and unfortunately Jeff is still in the hospital. I believe his surgery was 9/8. It sounds like he's had a bumpy ride and I hope I get all this right. Sorry Jeff if I mess this up. Jeff had a bit of pneumonia last week but he's feeling better after…
Where is Eric?
Are you o.k? Eric. I haven't seen you post . I have been a bitt worried. Love ya barb
New member, Newly diagnosed
Hi, so relieved, not happy, but relieved to discover this site. My otherwise rock solid healthy happy upbeat amazing husband who just had a "touch" of heartburn for a few weeks... yes... just got diagnosed with T2N0M0 adenocarcinoma of the GE junction. Like all of you, it was devastating news and we are just coming to…
End of Life Issues
Hello, My mother is 86 years old and has esophageal cancer which has spread to an area of her chest between her lungs. My mother’s doctor told us that she cannot be cured since the cancer has spread to her lymph nodes. But the Doctor said that he can “sustain her.” Over the past few months, I’ve gradually learned, and I’ve…
Another step closer
My wife and I spent the afternoon yesterday at Mass General in Pre-Admission testing. I was surprised to realize going in how anxious I was, because any problems might mean my surgery would be postponed for whatever reason. Just to be conservative I've stopped riding my motorcycle, using the chain saw, going up…
Cellquest??? Check out this video and discuss....
Hi all, Stumbled on this video from youtube the other night- http://www.youtube.com/watch?v=xIpOmRhDKc0&feature=related About a stage four man who took a supplement called Cellquest. Apparenently it worked wonders for the gentelmen who took it (cancer free) and the report seems credible as it was a local news broadcast.…
Esophageal Cancer Surgery
My brother has stage III esophageal cancer. He has done 28 days of radiation and 24 days of chemo. He got a staff infection and had to stop the chemo but is now doing an IV of antibodies every day. He has the next pet scan on the 29th which is about 3 weeks after the radiation. Is this normal? After the pet scan he will…
The Morning Dawns
Just to let you know there is a wonderful website out there called the Mourning Dawns and the ladies are all EC widows. We e-mail back and forth and they have been my life line. You need to be invited into the group so if you are interested let me know and send me your personal e-mail address and I will get you hooked up.…
To all of you wishing info on Vietnam vets and Agent orange
Hi For any of you deaking with this issue thru the VA. What I have done in Georgia is 1) contacted my local congressman( Got a good response from him) 2) Contact your govenor( He denied me as EC is not on the Va list of cancers relatated to EC. 3)Contact you senator or whomever handles VA matters in your state. 4) Try to…
Micgrace
For those of you who have been on this forum for a bit, we had a member Micgrace post in about May about his uncle Fr Brian Friel who passed about June from EC. His wife, Grace, also passed from a brain tumour in the same week. Well, unfortunately, I read elsewhere that Micgrace has now been diagnosed with melanoma. I just…
Update on Dad
Hi everyone, it's been a while since I last posted. Dad (Jerry) just had his third PET scan done the other day, results were yesterday. MD said that nodes and tumor has shrunk by fifty percent, with NO mets. He had his feeding tube removed about 2 weeks ago, since it was no longer in use, and he's able to eat REAL food…
Routine blood test not so routine
Chad went in today to have his INR checked as he is transitioning from Lovenox to coumadin and they are trying to find the right dose of coumadin. I knew something was wrong when two nurses accompanied him out of the infusion center. Apparently he has skin erosion from his PowerPort. Has anyone else experience this? For…
Waiting for Discharge
Update on John Well things have progressed very fast (since swallow study) on Wednesday. John had the test around 10AM & we thought he had a small leak (per PA in Radiology) Surgeon came to room around 5 PM told us he saw Images and there was not a leak and he would have nurse pull NG tube and start with liquids, if…

Esophageal Cancer

Discussion List