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Vomiting up anything he swallows
Hi, my dad was diagnosed with oesophageal cancer in September last year (as a result of Barretts disease). He had a round of chemo and radiation in preparation for surgery early 2011 but the PET scan in January showed the Cancer had moved to a node in his neck. He is no longer a viable patient for the surgery. He is…
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from 2B to 4A in one appointment
Well, we certainly learned not to pre-guess the tests or take one doctor’s opinion. This past Monday, June 27th, We saw the general surgeon who would be putting in the J-tube and portacath if we choose to stay with the Reading Hospital. At that apt we learned that the local lymph nodes had shown a reaction in the PET…
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to eat or not to eat....
My hubby, stage IVB, has been doing very well with eating, until recently. He is having a wee bit of a hard time swallowing, and usually needs to chase every bite down with some water. He has been having some pain most of the time, and especially during and after eating. (not sure if it's his stomach, esophagus or liver…
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esophgeal
My mom has stage 3 esophageal cancer health wise she wouldnt do good for surgery how is chemo and radiation can that make things worse
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Post Surgery Radiation?
My husband started his 3rd of 4 rounds of post surgical chemo today and we met with his oncologist. She surprised us by telling us that after he was done with his 4th round of chemo, he would start radiation approximately 3 weeks after (she also mentioned Taxol and Carboplatin weekly during radiation). We were floored.…
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Please pray for my dad
Good Evening - I want to thank you all for your advice and support. I don't post much, but I read everything. My dad had MIE on Friday and is now back in the OR for emergency surgery as his stomach has become diseased. Please pray for him.
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From Kateel-Interesting Info After Brochoscopy
This morning, my husband, Bill, had a bronchoscopy, because he has been coughing, gagging, and throwing up phlegm after his esophagectomy on April 25th. We thought for sure that he would need a dilation, based on his symptoms, but that is not the case, according to his surgeon. It seems that his muscles are still weak and…
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Diagnosed May 9th-stage 2a (t3,n0,m0)
I'm a 50 year old male who has been physically active his whole life. I run and bike, and I did P90X for 9 months last year, largely because I just "didn't feel right" and I thought beefing up the workout would help. I ran 4 miles on May 7th and 8th. On May 9th, I went to the doctor's for some difficulty swallowing and had…
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Surgery soon
To my many friends and comrades in arms in the battle against this horrible disease. I have just finished eating my final regular meal with my diseased esophagus. I start my pre-op diet tomorrow and surgery is Friday in Pittsburgh. I know there has been some debate about the MIE and Pittsburgh lately but I have every…
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Toga Trial - Stage 4 EC
Hi. This is my first post. My dad (54 years old) was diagnosed with Stage 4 EC on March 5, 2011. He's undergone several treatments and he's responding well so far. His first scan after a few rounds of treatment showed a 54% reduction. As you can imagine, we were thrilled! The only complications thus far have been severe…
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Chrissiebass
I left you a message when you posted regarding "My Last Post." I don't think you received it. Please email me at dana_moore@verizon.net Anyone else who ever feels that I can provide any answers to their questions, or need prayers for specific concerns, plse feel free to contact me at that address. Luv U Chrissiebass.
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Need Help
My 59 year old husband was diagnosed on May 17, 2011, T-3, N-1, M0. He started Chemo/Rad. On June 1, 2011. We meet with surgeon last Thursday; He only does Ivor –Lewis approach. My health insurance (he is insured under me) will not let me go out of network (to Moffit in Tampa). I know we should get a second opinion…
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Antidepressant for terminal patients
Anyone have some experience here? My counselor tells me that most terminal patients are often on anti-depressants. I've noticed my own husband becoming more withdrawn, although that could be his struggle with breathing issues, too. Since time is dear I so want him to find some joy in the days we have. I want to ask his…
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An item of interest for our Stage IV survivors
I found this posting on another EC posting board and I thought I would be of interest to our Stage IV survivors. Please note Lois' contact information in the "From" line. Subject: Television Interview From: Dickerman lxd4@ATT.NET Reply-To: Esophageal Cancers Discussion List EC-GROUP@LISTSERV.ACOR.ORG Date: Sat, 25 Jun 2011…
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navigating this site
Can anyone tell me if there is a way to find postings from a certain person? For example, if anyone wanted to follow my story, but missed a few postings, how would they be able to backtrack to do so? (I've been doing it by scrolling through all the pages of the site, seems like the hard way.... takes forever and I get…
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Our fight is over!
Since March of 2010,my husband has fought hard to obliterate the Adenocarcinoma that invaded the distal third of his esophagus. The diagnostic testing, chemo/radio therapy treatments and surgeries large and small are over! He put up a brave fight, even though he was stage III b at the time of diagnosis,14 months later-the…
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New here and asking:
Is there really some hope? HI. I'm new here and apologize for jumping in with a long post but figured I may get a true picture here. My hubs is 53 and was diagnosed end of May. We are still in the staging process (taking too long in my opinion) but he has Adenocarcinoma, a 6 cm tumor with type 1 and 2 cells. The CAT scan…
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Cowboy passed away
I know i didnt post much, but i avidly read everything you all posted. Cowboy (also known as Donald William Poppell) was born 8/20/55 and left us on 6/15/11. The 28th of this month will be our 13th anniversary. We held hands and told each other we loved each other every day. This is what i want to say to all on this forum.…
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For Susie and family
Susie I tried to send you a private message but it kept failing. Paul was diagnosed 4 days before Brandon and their journeys have been horrifyingly simular. I posted a while ago that we were even due to be in Pittsburgh the same week. Paul is currently heavily sedated and on a ventilator in ICU at Celebration Hospital, we…
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Why all the disagreements
I am a fairly new member here. I come here to get helpful information andinput to cope with this grave illness. I am curious as to ask everyone here "why is there so much infighting and disagreement? I thought we were all here to support and help each other. I think this is behavior is terribly counter productive. Please…
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My Mom age 71 with T3 M1 esophageal cancer
Hello, My name is Eric 4 weeks ago my Mom was diagnosed with Esophageal cancer she has been @ Cleveland Clinic ever since as she would not go when she needed to & twice was severely dehydrated because she could not eat could drink a little but would cough up phlegm & fluid, We finally got her in & has had a stint in place…
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GLASS HALF FULL - HALF EMPTY
When I first joined this site in April after being diagnosed with EC (T3N0M0) I found a wealth of information and found myself intertwined with those sharing the same struggles. In the past couple of weeks, I've noted disention on what should be and should not be posted and just generally depressed at some of the (for a…
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Vale Br Kevin Friel
My Uncle died this morning from stage IV. I am now releasing his name, Br Kevin Friel a very well known person in Australia and across the world who has helped many people. Unfortunately due to the passing on of my wife, his funeral will be held off for a little while. I and my family have to deal with 2 funerals back to…
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genetic
does anyone here know if this form of cancer is genetic or by association. it seems that more than one person in a family is getting this horrible disease. Also a question, how long does it take before you can eat more than a few bites at a time , I eat a foldover pimento cheese sandwich and I feel overfull. I am so sorry…
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feeding tube---a question
Hello all, My cousin had a feeding tube put in this past Wednesday, and basically I'm just wondering if that's a "death sentence" or if it's just one more ray of hope for him. I saw him this past Sunday and although he's only 50, he looked 80 (easy) and although he was a tall husky built man, he is now of skeletal frame…
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Any advice
Hi all It is fantastic to be able to come to this site and ask for help, these are only small things but maybe some of you have come across these problems along the way. Mark is once again losing weight 4kgs in less than 2 weeks, I am feeding him up with protein shakes filled with ice cream and fruit, last night he enjoyed…
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Post Surgery
I post this tonight as I read some of the not so inspiring stories this week. My heart pours out to so many of you tonight and please note that we are praying for all of you. God is the only place we find true peace and understanding about life and what we are experiencing right now. I want to tell my "short story" to give…
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It's not all rainbows and puppies
I've been lurking around for a while, but I figured that I would share my family's experience with EC and MIE. My dad (age 60) was diagnosed in January with stage 3 and subsequently received chemoradiation. My dad had the MIE with Dr. Luketich at Presby on May 20, 2011. Although he came out of the 12 hour surgery doing…
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Squamous Carcinoma StageII 10 cm tumor in sub-mucosa lower esophagus just above stomach not yet spre
Hello all. I seek input from people who have personal experience of treatment for this specific type of cancer. I am Male age 59 and otherwise quite healthy, I have been active all my life and am trying to identify the best options for quality of life not just longevity. I have been advised that two Chemo sessions (96 hrs…
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My Last Post
First of all, I’d like to thank all of you…those with whom I’ve talked to directly and those of you who I have not, but have read posts that have helped and informed me. I have said before I have become a praying warrior for those suffering with EC, since arriving in this forum and that will not change. To the Marshalls-…