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Esophageal Cancer

Archives for May 2011

Barb " mrsBotch" and I meeting
Hi Everyone, I was fortunate to meet Barb "Mrs Botch" in person today. We meet so many people on this site and feel like we know them, so when we do have the opportunity to meet, it is a blessing. I felt like I already knew her. Barb is the one who made our Governor aware of Esophagus awareness. Governor Deal signed the…
CBS News in Atlanta will be doing a segment on EC tonight at 11:00 P.M.
Today myself, and some friends, my 2 stepsons and Sandy1943 and her daughter and 3 grandchildren were in Atlanta at Govenor Deals office to have the photo op for April being declared EC awareness month in Georgia. It was wonderful meeting Sandy and her family. They are lovely people and hopefully we will get to know each…
Dad Diagnosed with Esophagael Adenocarcinoma Ca, HELP Please!
Dear All, I am a 23 yr old Son (Arjun Sahu) of my father (50 yrs old), who has recently been diagnosed with Esophagus Cancer. We reside in India. My Dad kept complaining about his food getting stuck at times (not always) when he took the first bite of his food, he used to spit out the first bite, then he was able to…
Our oldest son and his family came in for the weekend
Our son, his wife, grandson almost 11 and grandaughter 8 going on 16 all arrived from Maine Sat around noon. We had a suite rese4rved for them at our local Hampton Inn...with a sweet indoor pool..which we all used. We were out there last July. Tom's chemo treatment that he started in Jan...taxol and carboplatin has left…
Update on Rickie- - Feeding tube success!
We returned to Houston on the 18th for another go at inserting a feeding tube and a PFG (percutaneous fluoroscopic gastrostomy)feeding tube was placed using fluoroscopy. I know everyone has been telling us we should ask for a j-tube, but we consulted with 5 different doctors (2 here at home and 3 at MDAnderson) and they…
Respiratory failure after ivor Lewis esophagogastrectomy
My father had the surgery done on May 3rd. In the first week my father was doing excellent. He passed the swallow test. However after the first week he was having major breathing problems. On May 15th my father was put on a Ventalitor. They did cultures on everything which includes blood, chest fluid and abdominal (fluid…
Headed Home
We will be headed home to Kansas City tomorrow to start a new chemo regiment. He was unable to have surgery. Thanks for all the kind thoughts and prayers. Susie
Remembering all this special weekend.
Hello everyone, I just wanted to say that I'm remembering all this special memorial day weekend of all the people who have left us this past year and gone to heaven, including my husband and my mother. It is a very tough weekend and I'm sure it is for alot of you. Just wanted everyone to know they are in my thoughts and…
DOCUMENTARY TONIGHT 8pm on HBO, WHAT U NEED TO KNOW ABOUT MAKING END OF LIFE DESCITIONS&YOUR RIGHTS!
"How to die in oregon" is a documentary that will be airing tonight on hbo at 8 pm. It follows the lives and the struggles of quality of life over quantity of life. It is definitely something to see. Best documentary at Sundance Film Festival. Tell your friends and families unfortunately this is something we will all face.…
For those thinking of Dana and Billy
Well...No more cyber hugs for us!! They are right across the hallway from Brendon and I! I got real live hugs from them!!!!!!!! Billy is doing good and will be realized to Shadyside Family house tomorrow morning. He was sitting in a chair eating 4 oz of soup when I got to their room today. They both looked great and are so…
TheraSphere treatment????
My husband, was searching the internet for 'the cure' and came upon TheraSphere therapy. I searched this site for any additional information, and found several mentions of it. Since the web site is not really set up for this kind of research, I was wondering if any of you have had any experience in this type of treatment?…
Neulasta
Has anyone here taken Neulastan? My brother is receiving this this morning.
Great news
Great news gpa's results came in = NED!! Wow what a relief! After the surgery they said that he was T3N0 not T2N0 they said even though everything came back great they will most likely still do chemo. I Might sleep tonight!! Thank u so much everyone!
The Big Cannons V A Compromise Approach to Chemo - Last Post
I regret that I have to advise you that my 50 year old brother, whom I sought your advice on with my "Big Cannons" posting passed away on 19th May. Thankfully the end came relatively quickly and although he went downhill fast, he was still in a position to pass on his final thoughts to most of his close family and friends.…
Allergic Reaction to Taxol.......Now on with plan C
I went for my first round of chemo/radiation on Monday. The Taxol almost did me in. BP dropped to 80/46 and the doc decided it was probably not a good idea to try and continue. So now we're on plan C which is Cisoplatin and Xeloda. Had my first round today along with the first round of radiation. Tolerated both…
UPDATE on Brendon....continued prayers.
I don't have much time, so this will be short and to the point... Pathology reports are not back yet. However, the oncologist did tell us that he is 99% sure it is cancer in the stomach lining. They drained 5.5 liters of fluid off of Brendon's abdomin, and wow, he looked like a new man when he came out of radiology. He…
?'s
Back with some ?'s My grandpa gets out of breath when he talks, gets very tired walking short distances, and is having some numbness and tingling in his hands. I was wondering if anyone else had these things happen after surgery and about how long it lasted. I know how big of a surgery this is and things are expected but…
One week after the MIE: good and bad
It's been one week now since Tom was admitted to get his surgery done. We are still in the hospital, and would probably be here for few more days. First, some good news. No, GREAT news! The pathology report indicated no evidence of disease in any of the removed tissue, including lymph nodes. Yay! All indicators (blood…
new stage 4 with mets to liver
Hey everyone I am pretty new to the site, but have been reading yaws post since the early April. I am a 37 year old male with stage 4 EC and mets to the liver. To begin my story, in the late spring I started having pains in my chest around the sternum area. I figured it must be indigestian, so I blew it off for about a…
Things are holding
Just returned from seeing my onoclogist for a follow up. All is well. My labs are all with in normal range and I started on my 17th cycle of Xeloda this morning. I am very pleased with the way things are going right now. This time last year I was literally at deaths door. CT scan scheduled for June 13th. That will tell the…
Best B-Day Gift!!
I am getting the best birthday gift of my 31 years, Grandpa is coming home!! Danielle
Need your input, please share!
Has anyone been prescribed medication to aid in digestion following their esophagectomy? If you were, did you experience any side affects you can contribute to the medication?
Please Pray for Brendon
I come to this site today to ask for many prayers tonight and tomorrow. Brendon went in the hospital on Saturday morning with bloating, a feeling of fullness, and an unexpected weight gain of 12 lbs in a couple of days (with no feeding tube and very little nutrients)... Blood work shows no signs of infection. CT scan shows…
My diagnosis & some questions
Hi, William wrote a few days ago, but I was a bit late replying (I won’t blame the time difference between US and Australia). I got pernicious anaemia (Vitamin B deficiency) for the second time last December and my GP sent me to a gastrologist as someone my age (35) eating all type of foods shouldn’t be getting that again.…
Ivor Lewis Esophagogastrectomy post surgery complications
Hi everyone. My father was diagnosed with T3 esophagus cancer in January of 2011. In the past months my father was going through chemotherapy and radiation. Recently on May 3rd my father had the Ivor Lewis Esophagogastrectomy. After the surgery he was doing pretty well besides a little breathing problem. About 10 days…
Endoscopy Monday
Hello,newbie here. I am not ever sure I need to be on this site. But, I have been have difficulty swallowing for a couple of months now. With the feeling of food and liquid always getting stuck. I have been vomiting several times a week. I have lost weight because of this. My question is, how soon after the endoscopy will…
HOW MUCH RADIATION?
And yet, another question for my oh-so-knowledgeable friends on this site. I start my Chemo/Radiation journey on Monday, May 23rd. I saw in the paper today they've updated the Star Wars ride over at Disney. I'll bet it won't even compare to this ride that I'm about to embark on. My question........I was told when they did…
beautiful song written by a friend
The following link is a song written and preformed by our dear friend Jane Kennedy. She wrote it following my husband Lee's diagnosis with stage iv EC. It is very touching and definitely worth a listen. http://www.youtube.com/watch?v=bM1Q6JM7LqI Enjoy, have a lovely weekend! Chantal
Finally...Good News
So my StepDad went to the hospital and after getting the GI Scope they found that the sphincter between the stomach and intestines needed to be stretched. The first, smaller scope opened it a little, then the DR used a larger one to open it more. He will go back in 2 weeks for a repeat stretch. Since the Scope he has not…
Good results!
Good News!! Gpa did the barium swallow and passed! The doc said as of now Mon. or tues he will b able to come home. I asked the doc about the pathology report and was kind of discouraged by his answer. He said the results could be in anytime between mon-wed and that he tells all his patients, mostly those that have had pre…

Esophageal Cancer

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