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Uterine/Endometrial Cancer

Archives for February 2018

Genetic Testing Medicare proposed new rule
WASHINGTON — Patient groups and drug manufacturers say a proposed rule from the Center for Medicare and Medicaid Services would dramatically restrict coverage of genetic tests for patients covered by those programs — a move which may specifically impact patients deciding between various cancer treatments. The rule,…
Drug Reaction
My scalp started itching in January. I went and saw my PA. I thought he'd tell me the itching was a side effect of the Metformin I've been taking to try to prevent a recurrence of my UPSC, but instead, he told me I had psoriasis. He recommended Neutrogena T-gel shampoo, which I bought. When I first used it, I thought it…
Reoccurence Symptoms
Hello ladies, Just wondering if anyone on here has had a reoccurence of the cancer, and if so, how soon after initial dx and what were the symptoms? Appreciate any response...I think I might be experience something again...yet I just had the surgery in December, dx in Nov 2017. Hope everyone is staying strong and positive!…
Genetic & Genomic Testing – Your Experience with One or Both?
These types of tests have been discussed in many posts, but I thought it might be helpful to bring together the experiences from different ladies in this single thread for the newer members. For those who are new to the subject, there is a nice explanation of the difference between genetics and genomics (and the related…
Gastro problems post-hysterectomy
Hello, everyone - I last posted just before my hysterectomy, but then I got the flu and surgery was delayed a week. I had a DaVinci total hysterectomy and lymphadenectomy 6 days ago and came home 18 hours later. Had only tylenol and advil after surgery, and 3 doses of senna (2 at hospital, 1 right after coming home). No…
Weakness in lower body, pain when standing from sitting position.
Hello Ladies, I'm new to this Discussion Board...and have a question with regard to the stiffness, sore muscles and very weak legs and ankles I'm experiencing lately. I had utertine cancer in May, 2016 with a total hysterectomy that August and treatment beginning that September. I had Stage 1b, grade 3 and the 6 lymph…
Expander after radiation
I finished radiation two weeks ago. I was given an expander but told not to use it until I see the radiologist in two weeks. I’m wondering how long is normal to wait before beginng use of the expander. Also any suggestions?
Chris (aka Editgirl) Celebration of Life
I was able to attend Editgirl’s (aka Chris) Celebration of Life on Thursday, February 22nd. It was held at a beautiful winery called Viaggio, in Acampo, California. There were many in attendance, celebrating with complimentary wine, which Chris loved, and a beautiful lunch served outdoors. As we had come to know, through…
Driving myself crazy searching my pathology report results
First, thank you. So happy I found this site. I love Google but I can't stop researching and the more I look...the more I worry. Seeing the oncologist on March 2. Has anyone been treated for: Endometrial, large and polyps, curettings: High grade endometrial adenocarcinoma with serous and endometrioid features in a…
Lymph node transplants for lymphedema
On Feb 19 or 20th, 2018 - National Public Radio in the morning had a brief segment about lymphedema and breast cancer. It said that there are currently 5 medical centers or hospitals in the USA that perform lymph node transplants to alleviate or improve lymphedema. The procedure entails taking a group of lymph nodes from…
Pelvic radiation and Cisplatin for recurrance
I am starting a new link to get as much input as possible. I saw the radiologist today and he is very encouraging that the 2 spots on vaginal wall are very thin and tiny. He will start pelvic external radiation on March 5th and then do braky at the end of that. He is suggesting I try the Cisplatin chemo and know I can stop…
A run a day keeps the tumour at bay
There is no shortage of articles indicating how exercise can help prevent cancer (and recurrence). Facebook (which I suspect knows I have cancer at this point. Big brother is watching you :) ) brought up this article from 2016 and I thought I would share it. Researchers are actually investigating what aspect of exercise…
Clinical trials
Dear all - got my uterine cancer dx a month ago. Had hysterectomy last week. Awaiting path results and treatment from the doctor. In the mean time I am researching on any clinical trials available currently that is suitable for uterine cancer patients. How does one go about finding this? Appreciate any information.
Biopsy results
Mona Lisa Touch laser
My radiation oncologist's office has 'MonaLisa touch' laser for vaginal restoration; not something I would normally notice but, given how thinned out everything has become post-treatment, it caught my eye. I did a search of the entire ACS website and didn't find anyone who'd used it so am posting here. Below is a comment…
Long Time Listener, First Time Caller
Hi everyone. I've been reading these boards faithfully since my diagnosis in April of 2017, and have learned so much from all of you. I waited to join because I didn't think I had anything to offer, but I don't want to let any more time go by without saying a heartfelt "thank you" to everyone here. (I wish I had been in…
Neutrophils count
My neutrophil count is .6 on Friday and doing chemo on Monday. The doctor said previous it needed to be at 1. My WBC is 1.8 and Lynphocyes is .9 all are red flagged. Does anyone know if they did the treatment with numbers red flagged? I don’t want to delay my treatment with the radiation following. Any options I can…
Should I get a 2nd opinion?
Happy Friday everyone... I've been experiencing a lot of deep bone pain and tiredness, yesterday I went to see my family doctor who is aware of cancer dx. I explained how tired I have been and the pain I"ve been having this past week. When he looked into my recent blood work, it showed my hemoglobin and magnesium levels…
Need to hear from you ladies re path report
Drat it all...just was on my way to feeling 100% - had my 6 month check and just got the news - cancer was founf on the vaginal wall. Next step is a full body scan w/contrast to see what else might be lurking. I will be 78 in April. I am not sure I want to fight the cancer with treatments that are going to make me sick and…
Short review of surgery
Since I was out for most of it, hopefully there will be more info shortly. My husband didn't take notes. I may be changing info here, so please forgive me for that. The lady parts all came out laparospocially/vaginally (from my husband's description, I'm guessing an LAVH), as did part of the omentum. When my surgeon looked…
Gynecologist appointment
I had my appointment today to discuss my u/s results. I so did not want to go, but I am loathe to cancel an appt. last minute unless it's something extreme like I'm sick or can't stay off the throne. It's not fair to them or to patients who could have had that time slot. Anyway, it went pretty good. I consented to the…
GREAT NEWS!
Hello everyone! We got some fantastic news today. My mom FINALLY got the results of her biopsy back and the tests that were done on the cervical polyps that the doctor removed and everything is NEGATIVE! We are so freaking relieved. The doctor is recommending a hysterectomy in the future so she never has to worry about…
Valentine's Day? really?
I guess when you get cancer, nobody including husband has any use or feelings anymore. I have not received a rose or even a heart box of chocolates. Been crying all day today. I just went back to bed. I told him what I thought. He said I am "abusive." Really? I am in pain from my blood clots and they are not getting any…
Need some guidance - In a lot of pain
Hi Everyone.... I have not been sleeping very well. I am assuming it is due to my surgical menopause...insomnia part. Ugh! However, that being said I have a scheduled repeat CT Scan for my lungs and abdomen/pelvis in March, it's my 3 month check, since 2 soliditary nodules were found in both lungs a long with thickening.…
Any survivors with Nadir CA125 in two digits?
Hello all, Hope everyone is doing well. Happy Valentine's Day! Yesterday I had my last chemo treatment (Carbo/Taxol) with mixed feelings. On one hand I do feel accomplished. I am grateful that I was able to tolerate the treatment well. After the 3rd infusion CT Scan showed no evidence of the disease anywhere. The only…
Hope
i was diagnosed with Stage IVb about a year ago. I had a complete hysterectomy and a month later I started 18 weekly rounds of taxil/carbo. In August I was declared in remission, my CA-125 was 7.2. Three months later the cancer is back. Last week I started doxil and in a few weeks they’ll add avastin. I went to the…
Intestines are playing musical chairs now....
Dear Friends: In the past week, I've had some problems with the bathroom habit if you get my drift.... I am on stool softeners and maybe over doing it but in fear of that dreaded Rectocele the doctor warned me about. I am reduced to a very watery stool and lots of bloating and gas, which I am sure if all my doing. I told…
Lou Ann Needs Extra Prayers
I learned from Facebook that Lou Ann has had a very rough couple of weeks and needs our extra prayers.
papillary serous carcinoma specialist
Can anyone make a suggestion on a Specialist Oncologist in Papillary Serous Carcinoma?
vitamin c supplement to build immune system?
My sister suggested camu camu from amazon to build my immune system. It is a high potency vit C powder that she mixes into her morning smoothie. Has anybody heard of this? I will check w/ my oncologist first to see if this would cause problems during chemo. I am surrounded by sick people at work and, as most od you, am…

Uterine/Endometrial Cancer

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