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CA-125 still on the rise
After asking several times I finally got the results of my last CA-125 and it is still on the rise. For those who don't know what the CA-125 is that the tumor markers that tell you if you have cancer. Mine started off before surgery or treatment at 2000 but after surgery and chemo it dropped to 6. It has remained at 6 for…
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new abdominal and back pain... what the....
I was diagnosed with stage 4 OC in May of 2010. My CA 125 was somewhere in the 4000 range. I had 7 rounds of carbo/taxol and a complete hyst. and spleenectomy, followed by more chemo. Finally got my numbers down to about 103 and took a much needed holiday. My numbers began going up as soon as I stopped chemo. I started…
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Worth sharing
"There comes a time in your life when you walk away from all the drama and people who create it. You surround yourself with people who make you laugh. Forget the bad and focus on the good. Love the people who treat you right and pray for the ones who don't. Life is too short to be anything but happy. Falling down is part…
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Bad day
I am sorry sisters but I did not have a good day today. It has nothing to do with me. A friend of my son's died today. He had Ewing's cancer. This young man was only 20 years old. He was diagnosed in November of 2007. When I got the news, I couldn't stop crying. He had his whole life ahead of him. He was such a strong…
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Officially Two Years NED...
This month is my two year remission anniversary. (Diagnosed Sept, 2009) I saw my doctor yesterday and he has promoted me to checkups every six months. I still have to have my labs run monthly, for the clinical vaccine trial in NYC, and they do a CT scan every 3 months, as well. My CA125 is 16 and my pelvic exam was normal,…
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Hepatic steatosis?
Hello my dear teal sisters! Final result of my CT scan from February,3 have this - "Hepatic steatosis". I did read on line about it and it is not so good news, another "silent killer". Any info about this deasis? Thanks, Zina.
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so hard to complain
It is so hard to complain after reading Shirely's post and yet I do lol. I some times wonder how much a soul can take. She already is fighting Ovarian cancer and now it is in her brain. Last April I had to put my dog down (not the one in the picture) due to him having bone cancer, June I found out that I had ovarian…
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PLEASE BE PROACTIVE
Ladies, as you can see from my prior post I'm not in a good condition now...but I have soomething I feel is important and maybe applies to you. I was dx, operated, etc. in 2009. Stayed NED 13 months, had a reoccurrence, another course of carbo/tax back into remission until Dec/Jan. It's back. But then my onc has never…
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Difficult times...need your support
Well my sisters I didn't get a good report on my last visit. Not only has my cancer reappeared, I learned that I have developed 3 significant brain tumors. Please forgive my typos etc, I am having trouble seeing and typing. I will have radiation on two of the tumors on 2/9. One is in an unoperable location and the other is…
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AMG386...anyone ever heard of this?
my friend in california has a good friend who is a research scientist....all he does is sit in the lab and look for a cure for cancer.....he claims amg386 holds the most promise for recurrence. i had my first recurrence in november after a 10 month remission. topotecan did nothing for me and so i was just switched to…
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GOG Meeting
The Gynecologic Oncology Group (GOG) held its 84th Semi-Annual Meeting on Januray 26-29, 2012 in San Diego, CA. http://www.gog.org/meetinginformation.html Presented last summer, in the first head-to-head clinical trial comparing gene expression patterns (molecular profiling) with personalized cancer cytometric testing…
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update on my update
Hi All... when I posted last week, I had a ear/sinus infection and a week long fever. I was due for chemo tomorrow, but it was postponed till next week. Can't even pretend to be sorry about that... :) . I went to my Super Bowl party last night and had a ball. As always, thanks for all the love and support........…
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Hope springs eternal
So, an update for all of my dear friends from when I began this journey in January 2010. My Ca125 when I was diagnosed in January 2010 was 9824 or thereabouts.... today it is 11. I have survived the initial debulking and 6 rounds of carbo/ taxol. I was declared cancer free with a CA125 of 14 or so in August, 2010. Nine…
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The cost of silence...a short rant
I was watching a show on TV, where a sick person was featured. They spent a good portion of the feature praising how well she dealt with her multiple illness' and "never once complained about her pain." Why do we prize suffering in silence so much? Yes we can deal with pain gracefully but do we have to do it in silence? I…
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OVC-Q & A
I am going to Danish language classes. I had to write and present a one minute intro in Danish. When it came time to present it...the Danish language was really hard and almost beyond me. The gist was my name. That I'd had cancer, which is why my hair looked strange. Also, that if I lived in Denmark long enough, I would…
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Result of PET/CT scan
I had another scan because my CA-125 went from 14 to 85 in two months. The NP called yesterday with the news that yes, my cancer has recurred, but I have to wait till Wednesday to see the doctor and go over the results. I was glad to hear something, rather than waiting the whole weekend, even if the news is not so great. I…
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This is so hard to ask
Only because this is something I would ask my mom but she has never had cancer let alone ovarian. Ok here it goes last night I was rubbing my stomach and my mom asked "are you in pain?" I told her yes not to bad but I am in pain. My Surgery was back in June last year so it's not from that, she asked "what kind of pain is…
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playing catch-up ... again
Hi All... I feel so out of touch and I'm trying to catch up with all the posts that I have missed. Last week was supposed to be my "good week" after my January chemo rounds, but I developed a high fever and have been sick all week. I'm on an antibiotic for they think is an ear/sinus infection and have had three blood draws…
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Ovarian Cancer that has spread to lung??
My mom (53yrs) was recently diagnosed with Stage IV Adenocarcinoma Lung Cancer last week. She has cancer cells in the fluid around her lung, lymph nodes around lung and up around collar bone. Her brain MRI and bone scan came back clear however, the CT scan of her lower abdomen came back with a mass on her right ovary (same…
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need a little encouragement
i had my petscan last friday and they made me stay afterwards and get over a litre of fluid drained from my lung.....fourth time in the last 12 months. saw the oncologist this morning and was told that the topotecan isn't working and that the cancer is spreading...started gemzar today...ca125 is 1300 .... has gemzar worked…
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Marsha update
I saw a GYn surgeon yesterday. He is referring me to an oncology gyn surgeon. I go Monday. I have an ultrasound today. My mind is everywhere and I try not to worry but it is hard to think of anything else.
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BRCA1, Grapefruit, and Strontium
As always, I gained a couple of new tidbits of information from my naturopath at my appointment today. Sorry, I cannot quote the sources, as she said these were just small mentions in larger, unrelated papers. BRCA1 positive wormen should NEVER eat grapefruit as it interferes wtih the p450 pathway. And BRCA1 women should…
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carolenk-ca125 &fistula
Carolenk I've heard a number of things can affect your ca125 numbers. Do you think this fistula could affect mine. Dr told me ( surgeon) that this was coming on for a long time.will be talking with my onocologist tomorrow' just wanted to know your thoughts. thanks Kathy
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Chest and shoulder soreness 4 months after radiation
I had radiation to my clavicle and chest area in September for ovarian cancer spread to lymph nodes in that area. I now have pretty consistant soreness to the chest, shoulder and axilla on the radiated side. This all started about a week ago. Just wondered if anyone else has experienced this after radiation.
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I'm lost
So Johns Hopkens medical onc has nothing for my wife either. Talked to our onc here and he see's nothing out there that would be a fit for her right now. It's an udder felling of despair at this point. I'm not showing this to my wife but every door that closes scares the crap out of me. She seems fine but slowly she is…
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Digestive problems and acid reflux after chemo
anyone else have trouble with digestion and acid reflux. I was good for a bout a year and a half, now i seem to get acid reflux and indigestion alot. at first I thought it had come back but it hasn't, anyone else having these issues? Hugs Lynda
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Ovarian Cancer returns after 14 years
Hello, I am 65 years old and my ovarian cancer has come back after 14 years! I had no idea it would come back after being gone so long. My family and I are in shock. I start treatments next week,Carboplatin and Taxol will be the drugs. The doctor said surgery was not necessary, which I am grateful for, but it is still hard…
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scan results
scan came back suspicious cystic mass. I see the surgeon tomorrow for a consult
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new frightened
My CA 125 is elevated. There is a history of ovarian and breast cancer in my family. My CT Scan is tomorrow. I am so worried