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Question for JoanC
Hi, I noticed on one of your responses to Blood Clots, you said you were on Fragmin. I was too. I was on this for 6 months and couldn't take the shots any more. The doc told me if I go back on Avastin, I'll have to go on the shots again. Did you give the shots yourself? Did you black and blue, I was full of black and blues…
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Blood clots
Has anyone been diagnosed with blood clots in their lungs from chemo? I was on chemo for 18 weeks with taxol/carbo (carbo every 3 weeks/with taxol), towards the end I had a hard time catching my breath after doing anything. My ct scan revealed no sign of decease but the radiologist spotted a blood clot so I had to go back…
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New CA125 numbers and Reika
I just got my new number......13! After 2 treatments! I started at 1150 before surgery. YIPPEE...so happy and smiles all day. I also went to my local American Cancer Society and scheduled a Reika treatment. Has anyone had this done? It was described to me as a massage without touching?? I am also scheduled to attent a…
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Bone pain???
Just wondering if there is anyone who didn't/doesn't have bone pain after chemo? I'm wondering if having bone pain is preventable/treatable or just related to individual differences. And if someone did AVOID having bone pain, was there anything that you may have done differently than the women who DID have bone pain? Or…
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Garlic Festival
Went to Garlic Festival today with my friend Martha and her friend. It is a big deal here in Gilroy. I have only gone three or four times since it started in the late seventies. I always say it's for tourists. The weather was beautiful. Hot but in low nineties. There was a cool breeze blowing. I haven't been doing too well…
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Square ladies...I need your paragraphs.
If you asked to be represented in the OC quilt. I need a paragrph or two Bout you (or your mom, if she is the honoree). Linda Jonie Kathleen Leesa Lisa 13Q Meghan Mary K Did I miss anyone, Mary? My email is in my profile. If you guys have not seen the squares, check out my Facebook page, or Mary's. They are powerful and I…
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Low white blood count and diet?
Today I went back for lab work. My second treatment was July 19. My white counts were pretty low. They gave me an antibiotic to take for a week as a precautionary measure. Are there any foods I can eat to help build this count up as much as possible? Thanks ladies, you're the best! Carla
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If you thought...
To whomever thought my post was offensive, I find that to be rude. Since this is supposed to be a place for SUPPORT. I didn't offend anybody. Your the offensive person whomever you are. Power, PEACE, PURPOSE Joyce
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After Chemo Steroids....
Hey all....I have had 2 of 6 treatments. Each time they pump me full of steroids during the infusion and the side effects are a red face and INSOMNIA. I have never taken the oral steroids that are prescribed for the 3 days post chemo. Does anyone know what the purpose of these steriods are? If it would lessen the bone pain…
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DNA
Someone told me Chemo can change your DNA, is that true?
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Interesting OC Vaccine trial coming up
FDA Approves Immunovaccine's Application for a Phase I/II Clinical Trial for an Ovarian Cancer Vaccine HALIFAX, NOVA SCOTIA--(Marketwire - June 20, 2011) - Immunovaccine Inc. (TSX VENTURE:IMV), announced today that the US Food and Drug Administration (FDA) reviewed and cleared its Investigational New Drug (IND) application…
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Dr. David Servan-Schreiber - RIP
author of "Anti-Cancer: A New Way of Life" Obituary: Dr. David Servan-Schreiber Empowered Cancer Patients http://www.cmu.edu/news/blog/2011/Summer/obituary-david-servan-schreiber.sh tml (very sad news)
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Good Exam
It will be two years since my surgery on August 7th. Three weeks ago my CA-125 was 4. I saw my gyn/onc today. Upon examining me he said, "Everything looks good. No lumps, bumps, or bulges." Whew!
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Insurance Issues and Costs
Hello Everyone- I just stumbled over this website and SO HAPPY!!! I was diagnosed with Endometriosis Cancer October 2010. I was unemployed at the time and still have not found a permanent job. However, my COBRA just ended and it has been a challenge to find health insurance. (Obama does have a reduction for COBRA-- Mine…
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The Hospice Conversation
First, no, I'm not ANYWHERE needing hospice care. I still plan on returning to school, cancer free, on August 22nd. However, it occurred to me that it would be easier to get honest responses from my husband if I broach the subject of hospice while I'm still healthy. (It's hard to tell a very very sick person that it would…
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Post Chemo Fatigue
Yes I know it takes a year to feel like yourself again. :) But I'm still wondering if the fatigue I am feeling is chemo related. It's been 5 months and it hasn't improved. I expected to get tired more easily and not have the same stamina. But I wake up tired, go to bed tired and never get any relief. My eyes want to close…
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Claritin to help with Neupogen side effects?
I noticed that one or two of you mentioned taking Claritin the day of your neupogen shots....I assume this abates some of the side effects. Can someone verify/deny this? I'm in treatment and have had to take the neupogen shots from the get go (4 each chemo session). I am getting increased bone/joint pain which I attribute…
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I'm back :)
Hello!!! It's been a long time, huh? So, unfortunately I haven't got a chance to check in on anybody, I took a break from here for a while, I needed time to myself, sort everything out and whatnot. For those of you that aren't Facebook friends with me, I chopped my longgg hair off. Poof. Gone. I had more than 15 inches…
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Had a great foot massage yesterday
Stopped by Face in the Mirror yesterday and Particia gave me the best foot massage I have ever had. She is going to let me come once a week for a massage, she says it will help the neuropathy in my feet. If you get a chance to stop by face in the mirror, i highy recommend them. Hugs to all Lynda
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I have a date for hernia surgery
August 9th. Unfortunately, I won't know until I wake up if he could do the repair via a laparoscopy route or not. If I luck out and get the lap procedure, I will be home the next day. An open abdominal surgery will mean a week in the hospital. I have a 14 inch incision and he plans to reinforce the whole thing with mesh. I…
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End of maintenance chemo and CA125 numbers
CA125 has stayed 3 and below though out maintenance treatment. The last one is Aug.18. The question is: Should I EXPECT a rise? Is the chemo keeping the number artificially low? Cindy
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I met one of our teal sisters today!!
It was cafewoman and she is amazing. I feel like I have known her for a very long time. We sat on a bench near the Niagara river and had a cooltreat on a hot day 88 degrees. I think we should all try to have mini-meets with our sisters. I live in New York so any one who can meet, the more the merrier. Thank you Colleen for…
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HIke takes a toll
Went on a hike with my Living Strong group this morning. I worked out yesterday and my legs were already a little sore. Well now I am experiencing a consistent ache in the joint at the top of my left thigh. I am going to take tylenol and just try to feel good that I am getting out and doing something physical. I am still…
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FINISHED VACCINE TRIAL - EVERYTHING A-OK!!!!
Hey my sisters - just to let you know i am done with the vaccine trial at Sloan in NYC - had my final monthly check-up and scan yesterday - to quote scan: Everything - UNREMARKABLE (LOL) and "No Evidence of Disease" !!! Will now be checked every 3 months for the next 2 years - at this time I am 2 years NED from the end of…
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Update from a few weeks ago. My insurance has approved Avaistan.
I had my first treatment with it on Tues. Other than fatigue and bad taste in my mouth, I'm doing okay from it. I also had Taxol/Carbo. This was my second treatment. 2 down; 4 to go!
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Starting chemo again!
I finished my last dose of carbo/taxol 5 or 6 weeks ago and my CA125 is now slightly over 1000. Apparently the chemo stopped working after the fifth infusion and my cancer began growing again whilst I was still receiving chemo. Which means I suppose that the last 6 months have largely been wasted. All I got out of it has…
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First Treatment-was quite an experience
Well, my first treatment is over. For the most part it was just as many of you ladies described to me. The Benadryl didn't really affect me very much. So after the nurse talked to me about Chemo, filling my brain with all the information I needed to know, we got the Taxol started. She checked on me at the 10 minute mark.…
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Still here
These last few days have been rough. This chemo round is kicking my butt. Sending my best wishes to all.
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Subscribe Comments for no offense to anyone, i neeeeed clinical, non inspirational answer , bottom l
July 21, 2011 - 1:25am > I have been asking for a detailed description of what to expect, physically , on progression of a dying patient. I have always walked my life in gratitude and love.I am not ready to die....but I know that I am. With never having more than 4months remission.I am fearful of the unknown part. I am…
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Christine B How are you???
Hi Christine, Haven't seen you on here in quite a while and was missing you. Hope all is well. ((((hugs)))) Linda