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Ovarian Cancer

Archives for May 2011

My hair is coming out again after16 months past chemo
Anyone else had their hair come out past chemo? It has been almost 16 months sinice my last chemo and my hair is coming out by the handfull again.
LEESA IS OUT OF SURGERY AND DOING WELL!!!
This was her husband's FB post: Leesa is doing well. She's in the PACU, and is alert, oriented, and following commands. We were joking about how many times she's going to be asked who the Prez is... so I suggested a unique answer. When I saw her, the nurse asked, and she responded, "Not Ron Paul - darn it". A very good…
Does Ovarian Cancers metastasize to the Brain?
Hello, I had to post this because as of late, I had a friend and now see a couple of our warriors who it appears their ovca has met to the brain? I was told that ovarian cancers are generally limited to the trunk/torso region that it originated in and that it typically doen't mets to the brain regions. Was I given…
Tingly fingers
Hi to my teal sisters Whenever I have a problem or question I always know where to come. I just know there will be one of you out there who can answer my questions. Question 1. "Has anyone experienced tingling and numbness to one or both hands AFTER chemo?" I often wake to 'pins and needles' in my left hand and arm and the…
Lisa13Q Legacy Thread
Barbara53 here, proudly hosting this legacy thread for all the sisters who are holding Lisa13Q close in their hearts, and want to join in celebrating her mother's full and beautiful life. The photo here was one of Joan's favorites. Her obituary is posted below. Feel the joy. Mrs. Joan Levering Jack, of Palm Beach, Florida,…
OK sisters, time for our Big Girl panties
Whoa, we have been on a h*ll of a ride lately. Almost too much heartbreaking and terrifing news coming in all the same time. I'm having a good hard cry and then I'm putting on those Big Girl panties because we have many newbies who have joined us lately. They are overwhelmed with being diagnosed and fearful of starting…
Leesa G
I guess this is the week for bad news, girls. All I can say is, it's a good thing I don't have an abundance of liquor in the house. Ken, Leesa's husband, posted earlier on Facebook that she was in the hospital. I was reluctant to post anything here without his permission, but he sent me this message tonight: Hi Carlene, Of…
EC145 new chemotherapy for platinum resistant cancer
Very exciting news from Endocyte, Inc.: http://www.msnbc.msn.com/id/43099665 EC145 is the first drug to demonstrate a significant improvement in PFS (progression-free survival) in a randomized study in patients with platinum-resistant ovarian cancer. The results are particularly important for these patients because there…
Kindle and IBooks
This may not seem important to some, but I have found that many people going through Chemo and Doctors Appt. that don't know you can download free Kindle and I book Apps on your touch screen phone, a 3rd or 4th generation I pod touch or even an older laptop. They also have free book downloads that may not be Stephen King…
Ports....kind of in a panic...sort of alone
Licha's question about the 1st chemo and your response's got me thinking about ports. I am supposed to have 4-6 treatments of Cisplatin and something else. Each treatment is going to be spaced out about 3-4 weeks apart. I have crappy veins. Just to get blood work, most techs have to poke me more than once. I did not think…
Question and need a pick me up.
For all you ladies who have or have been going thru chemo did you get scans during the process? My oncolgist told me that after my 6 rounds of chemo they will then give me a scan to see if the coast is clear. My gyn/ onc said they got the big stuff just some residual left on my liver and the chemo will kill it. I have 2…
Any experience with navelbine chemo?
Hey all, its been a long time since I have posted on here. I still read all of your posts frequently. As a recap-my mother was diagnosed with stage IV ovarian in january 2010 at 57 years old. She has had some tremendous battle! She has never had a debulking surgery since the docs say that it is too advanced.... but none of…
Was this doctor in the wrong?
On another board, a member posted that she had posed a question to her oncologist's wife (an internist, I think), a doctor she had consulted professionally for other issues. She asked (and I'm paraphrasing here) a question about the future "for someone like me." The doctor responded that the cancer "will kill you." "Right…
Hello Everyone . Journal Entry Number who knows....
Good Morning everyone.....first, I want to thank each and every one of you for every post you have made to me over the past 2 years....I am printing some of them up for who knows what reason, but it seems to soothe me....I promise I won't shred them when I'm done...I can't really remember the past few days....we are…
So sad to hear about Nancy
I was so sad to hear about Nancy. I've always found her to be a very special person. I haven't been on this discussion group very long but everytime I had a question, and asked Nancy, she always responded. I was so hoping she could beat this and I knew when we didn't hear from her for awhile that something wasn't right.
Pain after Taxol
I just finished with carbo/taxol and have quite a bit of body aches especially in my back. How long does it take for that to go away or does it ever go away?
Survival of PPC
Hi, new to this forum and into the "world of cancer". My mom is 60, diagnosed with PPC and lives in another country (Europe). In Europe we have very few "cases" of PPC per year and therefore little information or in our case consulation about this cancer. Thats why I have turned to this forum. Mum is staged with PPC stage…
Emotional Freedom Technique (NOT SPAM)
I know, I know, I keep getting all of these wacky alternative therapies from well meaning friends. And this falls in that realm. BUT I found it LBC (life before cancer) and it's simple, free, it makes sense and it worked for me. I am now using it for Stage IV OC. It is basic self-affirmation mixed with acupressure and some…
Scattered my sisters ashes today
My sister Darlene's birthday would have been today, so her children choose today to spread her ashes at her favorite place. Ii couldn't make the trip so all of us that live at Arizona all let yellow ballons into the air at exactly 8 pm in her memory. Yellow was her favorite color. My nephew went to her farewell and when he…
FYI - MY NEW JOURNEY AGAINST THE OVCA FIGHT! - 33 treatments of radiation, Has anyone had this?
It's been about 9 months of remission for me; however this has been my 3rd remission! LOL! Seriously, after my last cat-scan (prompted by my ca-125 count rising from 14-23), activity was present once again in those same two para-aortic lymph-nodes near my kidneys. So a pet-scan was ordered. This is what I don't understand,…
Lung Nodules
I am just curious if anyone else has reoccurance ovarian cancer in the lungs? Every since my initial surgery four years ago, the cancer has shown up only in my lungs as very tiny nodules. Two were removed and they were ovarian cancer. The various chemo treatments I've been getting do reduce the size of these nodules, but a…
Temporary Disability/Lay Off
I have been fighting stage two ovarian cancer for four years with chemo on and off over the years. I am recovering from 9 rounds of chemo and need to recoup due to fatigue and memory problems. I live in New Jersey and will go out on temporary (short) term disability in a week and just received a lay off notice from the…
Lisa13Q said "thanks for all the wonderful posts"
She wrote a post this morning but it got eaten by the cyber moster, who obviously does not like Fang Fish. Lisa is doing the best she can, all things considered. She is at her mom's and finds comfort in surrounding herself with her mom's things. It's been really hard, of course. Her mom fought very hard, right up to the…
Nancy is very ill....
I talked to Nancy's mom and her sister today. They said she had been asking about us, saying she needed to call or text me so I could keep everyone up-to-speed. But she is very, very weak. She cannot stand without help, although her mom said she wants to get out of bed. She just doesn't have the strength. The mets to her…
onto the next chemo
Hi everyone, I am hunkered down in my easy chair, waiting for the typhoon to pass over my house (coming in from the Philpines and hitting Japan today) and catching up on the boards. I'm happy to see some new names pop up. After a short chemo break and much discussion/research/long travels to Tokyo etc etc and prayers (I…
can ovarian cancer actually be cured?
My mum got diagnosed feb this year, and was set to have 6 sessions of chemo, surgery then another 6 sessions of chemo. After her first 3 chemo sessions she was told she could have her surgery which was done this tuesday.surgeon said he thinks he got all of the cancer out, and that he was vey pleased with how it went.She…
Scared and need advise...
Hi Everyone - I have been looking around this site for a while, and am inspired by your strength and support. I have NOT been diagnosed with OC, and hope that I am not, but here is my story. Any thoughts are appreciated. I am a 31 yo mother of 3 who has been experiencing OC symptoms for about 10 days. Very gassy, burning…
Happy Memorial Day!
Hope all of you have a great holiday weekend. I thank God for another holiday with my family! Never stop fighting ladies :) Blessings, Natalie
Will have my first chimo Tuesday, please need advised
What should I keep with me duting my first chimo next Tuesday, I had hystrectomy 4 weeks ago, dr. remove 95% of cancer but still there is a 5% that need chimo. I will have Paclitaxel and on Wednesday Platinol. I have app Monday to cut my hair, I am from Guatemala and they will be here Monday fro 2 months, also my sister is…
Strength/Fitness program for cancer patients and survivors
I joined the Living Stong Living Well program sponsored by Stanford. It is a 12-week program that includes two days of strength/fitness training and one optional day of group support. It is geared to cancer patients/survivors who need help getting through treatment or getting back in shape after treatment. I was referred…

Ovarian Cancer

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