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Ovarian Cancer

Archives for March 2011

TEAL WARRIOR MEETING
KATHLEEN HAS BROUGHT UP THE IDEA OF A TEAL MEETING....SOMEWHERE...IN THE MIDDLE...I AM WILLING TO OFFER MY HOUSE UP AS A TEAL MEETING PLACE....WE LIVE IN A WOODED AREA AND HAVE A 4400 SQUARE FOOT HOUSE...WE HAVE THREE EXTRA BEDROOMS DOWNSTAIRS, A SAUNA, AND 2 EXTRA ROOMS UPSTAIRS THAT WE COULD CONVERT INTO ROOMS AS…
I met Nancy 591!!!!!!!
She is just as cute and perky in person as her virtual self is here on the message board. Maybe cuter. And her husband is soooooooooo nice. I am delighted that I have had the chance to meet 3 of my wonderful teal sisters in the flesh: Joanie (JLo), Annie, and Nancy. It is so nice to put a face and a real voice to the words…
Low Hemoglobin
Has anyone else having or had problems with their Hemoglobin count being way low? My wife dropped 3 points in her red blood cells in two days. Symptoms of extreme fatigue, nausea, and dehydration.
I AM STILL DANCING WITH NED
Praise God I am still cancer free, God has answered my prayers yet again. I will no longer have to get PET scans unless my blood counts start to go up. I can now get my port taken out of my chest and be back to normal again. God bless you all for praying for me and my family Hugs Lynda
My heart is with you
I just wanted to wish you all comfort and healing. My mother died at age 49 from ovarian cancer. She was a great mom and I'm so lucky to have known her. I was by her side for her 3 year fight -every hospital stay, each treatment, and I held her at the end. Her bravery is reflected in so many posts I have read on this site.…
topotecan/irinocan
Hi again, anyone had either of these with any success, or know of anyone that had success? I am torn between the two. My US doc is saying topo (although he says irinocan is very much the same thing) and my Japanese doc is saying irinocan, but if I want topo then that is basically the same thing. I think, translated they…
Nancy591 - hate to bother you but could I ask you something about your blood thinner injections
Hi Nancy, first I saw your video and I thought it was beautiful. Your son was absolutely adorable. I'm not sure if you're up to it, but I need some help with the blood thinner injections and I know that you're currently getting them. Are you still on them? Do you black and blue after the injection? I seem to black and blue…
moving on from dose dense
Hi everyone. I started dose dense taxol (every week for 3 weeks) and carbo in September. Although, initially i did great, the numbers have crept up evrery month now. After consultation with my doctor in the US and here, I am on a short chemo break, and gathering myself together physically, mentally, and spiritually to go…
beauty tip for eye brows
hello, About a moth ago i have lost my hair and one of the ladies on this board gave me tip to use BROW EX-PRESS by ANASTASIA. I have purchased on ebay, but you can also buy it on amazon or sephora. great product! brows looking very real and easy to do it. set includes 2 powders, one highlight, one wax to keep it in place…
(May have seen this posted earlier?): Ovarian Cancer—New Thinking on Old Regimens
Ovarian Cancer—New Thinking on Old Regimens 2011 Feb 23, Nelson Teng Nelson Teng, MD, PhD, is Director of Gynecologic Oncology and Associate Professor of Obstetrics and Gynecology at Stanford University School of Medicine. Dr. Teng is also Program Director for the Stanford/UCSF Gynecologic Oncology Fellowship Program in…
Sad retrospective study: Recommended Treatment Eludes 39% of Medicare Patients With Advanced Ovarian
This is a retrospective study, 1995 to9 2005, and I sure hope this is no longer true. Recommended Tx Eludes 39% of Medicare Patients With Advanced Ovarian Cancer Elsevier Global Medical News. 2011 Mar 7, D McNamara ORLANDO (EGMN) - Only a minority of women in the Medicare population with advanced epithelial ovarian cancer…
Bevacizumab (AVASTIN) Doubles Risk of GI Adverse Events in Key Ovarian Cancer Trial
I LOVE how I feel on this Avastin/Cytoxin chemo I'm on, so I'm not going to let this stop me from taking this combo. But I wanted to post this recent article anyway for those of you who have had bowel issues or bowel resectioning: Bevacizumab Doubles Risk of GI Adverse Events in Key Ovarian Cancer Trial Elsevier Global…
compassionate use
Hi everyone, just checking in to ask if anyone has applied for compassionate use for avastin. If so, I would love to check in with you offline, if possible.I know that Bonnie was on top of that game and received it several times for different chemos. I wish I could check in with her for advice. Thanks, Kathleen
Has anyone done Topotecan chemotherapy
Hi, I was wondering if anyone has had Topotecan chemo treatments. What I'd like to know is were there many side effects, how was it tolerated, was it by IV, I noticed that there is also a pill, although I don't know if it is approved for ovarian cancer. Anyway, any information that could be given would be greatly…
Results of my CT Scan today (Letter too)
Hello, I saw the GYN/ONC today and he gave me the results of my CT scan. Not the best news I could have gotten like remission, but close to it. My CA 125 is now 22.7, physical exam was clear, some small tumors in the abdomen. He said that if it were him, he would give my body a rest from the chemo (I had six rounds…
Ca 125
Hello again!!! I have been off the board for a few weeks. I guess sometimes, i need to "get away from it all." I have a brother in law that is in the final stages of colon cancer. He is at home with hospice. Yesterday, the visiting hospice nurse has called in the "crisis team" which means that now he has a nurse with him…
Shopping Karma
I read her blog the other day and can't stop thinking of what she went through and her pictures shows she was a brave soul, and so beautful. I loved the way she lived her life to the fullest and had the love of her life take such wonderful care of her. She lived life her way and said don't worry about recurences. Live…
Mumto Bella and William
I hope this post finds your mum well. I have been thinking about her and haven't seen any posts lately. Last I heard she was starting on doxil and making her sick. Please keep us updated...val
Alcohol During Chemo
A while ago, in a topic I no longer recall, I said that I had been "told" not to drink alcohol during chemo. I believe it was one of several dietary guidelines in a handout I was given prior to my first chemo. Carlene had asked me about that, but I've been unable to find the source. I do know that it did not come directly…
I don't want to read it!
Hello all, I have applied for disability retirement from the California Teachers Retirement System. Today I got a phone call from the caseworker assigned to me at CalSTRS. She said that due to the severity of my condition (Stage IV OVCA) she would not be requiring medical records, but rather a letter from my doctor stating…
CT Scan contrast
Scheduled for my first post chemo CT scan tomorrow. I am told I will be getting IV contrast plus I have to drink some. Previously I only had IV contrast. Can anyone tell me what to expect with the drinking contrast? Is it difficult to get down and/or nauseating? Thanks, Susan
Red Meat
Do you all know of any reasons to avoid beef other than that it's from animals treated with hormones? Someone kindly gave me lots of beef from a locally raised, grass fed cow. No hormones were given. Shouldn't that be OK?
Feeling Very Lucky Today :)
I just got home after my 6 month check-up. Everything seems fine, and my CA-125 is 12.5, no change! I had to call for the result because it wasn't ready before I left the office. My doctor is such a gem! I had my list of questions, and after the first one, he just kind of segued on to the next, so I really only asked 2 as…
Stool Softener. Warning TMI!!!
Hello. This is embarrassing for me but I don't have an answer so I am just going to ask. I am still constipated. Been like this since my surgery. I take the stool softeners like I am supposed to but it is not working. I took miralax so that I can actually "go". It did work but caused more pain to my abdomen. The thing is…
ENDOMETRIOSIS HISTORY?
Hi, Ladies: I would be curious to get some feedback from all of you. Any of you have endometriosis prior to your cancer dx? I was diagnosed with endo in 1973 after several years of suffering. At that time, there wasn't a lot of info out there, and there really still isn't. However, around the time I was diagnosed I…
Do I Need a Medical Oncologist in Addition to My Gyn/Onc?
I really hadn't even thought about this, until I saw references in various posts about medical oncologists. The only doctor I've seen about my cancer is my gyn/onc at NYU Cancer Center. Do I also need a medical oncologist? What differences could I expect from a med/onc?
Heading back to NYC tomorrow
I will be getting my 4th round of the clinical trial drug (ovarian cancer vaccine) on Wednesday. When I go back in April and May it will be just for labs and exam. My last injection will be in June. Carlene
video
I was trying to organize some older videos. I came across this short clip with me and one of my sons. This was taken after my 'big sugery' but before I started chemo in 2008. You can notice the puffiness of my ostomy bag so the one side of my leg looks a bit distorted. I think the video clip is totally adorable and I hope…
In the grand scheme of things this is not important
but I was wondering if anyone lost their eyelashes a second time after chemo was done. I had my last chemo on 9/16/2010 and my eyelashes grew in soon after. I don't wear makeup that often since I retired and stay home a lot but the other day I started to put mascara on and noticed on my right eye that there were three long…
A Trick To Help With Fear
My mother died of breast cancer when I was 4, and her 3 sisters also died of cancer fairly early, so I grew up in fear that it would be my fate also. One day I realized that I might live to 90, and would have spent all that time in fear. That day I chose to fight the fear and it gradually stopped being a factor in my life.…

Ovarian Cancer

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