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Ovarian Cancer

Archives for March 2011

Interperotonial Taxol chemo?
Mom's doctor suggested a phase one study with the interperotonial (sp?) nanoparticle of Taxol. Does anyone have any information on this at all? She's 78 and has undergone 6 taxol/carboplatin rounds and is now going to have surgery. The IP chemo would be after surgery. She had extensive ascites. Would appreciate any info…
Dear Kelly H and Liz.......Moms
Dear Kelly and Liz, Thanks for your well wishes and thoughts about my mother....yes, I am ecstatic and want to offer some hope and optimism to you about your Moms.....The news we received yesterday was the first decent news we have heard in this 2 year journey.....The first.....Do not give up hope.....and remember, even…
Nutrition question
Hi ladies! My oncologist told me that my cancer is very very very reactive to estrogen which is why I can't be on any hormone replacents. But my question is do you think I should cut out foods that have natural estrogen? I was googling foods that are naturally high in estrogen and they are all healthy foods that I love.…
Your opinions please
My 79 year old mom was dx 3 years ago stage IIIc ovarian cancer (by accident)had surgery, chemo. now 3 years later onco says CA 125 has risen to 49 - 39 next test. areas lite up on PET scan. We now have another appointment with surgeon. Family doc says she is not a candidate for more surgery. Chemo and surgery from 1st…
Thanks to all who wrote my mother.....
I printed them out and put them under her door so she could have them when she got up this am, and she was so delighted....she has kept them and read through them a couple of times today.....I can't thank you enough as it truly has elevated her mood.....on top of that, the doctor's office called to tell us he CA-125 has…
New, 31 with Stage 3C OC
Hi Everybody I am new to this site and it looks like there is a bunch a wonderful women here. This whole situation has been horrible. My gynecologist misdiagnosed me thinking that I had dermoid cysts on my ovaries. Even with an MRI that showed some lesions she said she didn't think it was cancer and even reassured me that…
Cytoxin ever affect anyone's WBC? I have to take 2 weeks off of it now.
I have been taking 50 mg Cytoxin daily, combined with an infusion of Avastin every 2 weeks. I had my 4th Avastin infusion today, but only was allowed to get it contingent on coming in tommorow for a Nuelasta shot. And I was told to NOT take the cytoxin the next 2 weeks to see if my bone marrow recovers without it. I was…
would some of you write some encouraging words to my mother
She has been doing great until this last round of taxol...it has knocked her on her butt! She needs a break...Her CA-125 has gone from 136 to 104, and her blood counts have held their own, they are low, but not transfusion low....the past few days she can't do anything and is feeling discouraged.....and anxious....I go…
Does anyone else follow Sarah's (Carcinista) blog?
God love her, she is hanging in there, but not doing so well. She is now on oxygen round the clock and feels like she is looking at the final act. Her spirit and sense of humor have not waivered. She is so courageous and her quick wit never fails to put a smile on my face. www.carcinista.com Carlene
Mom had ? about post surgery
Hi everyone. My mom is 74 and was diagnosed with stage IV ovarian cancer on Jan 15th. She had a full hysterectomy (ovaries,tubes,uterus), and a bowel resection (about two inches) where the tumor had wrapped around it. The procedure was preformed on Feb 9th and we (brother,sister and I) had her back home on Feb 17th. She…
CA-125 Help!!!!!
I now this may be a very supid question but I just received my ca125 results and it has gone up from 7 to 9 and I know that is normal range up if it is going up does that mean the cancer is coming back--I have been done with chemo for 1 year now and was just VERY scared. Lately have been feeling very warn out so I am…
Tiredness
As you ladies are probably aware I finished my treatment (18 weeks dense dose Taxol, every 3rd week Carbo) Dec 8 2010. I actually feel worse since finishing treatment than I did during it and certainly worse than I did before dx! I am soooooo tired nearly all the time, I work 3 days a week, near my home so I don't have to…
Internal shaking!
Hi Ladies, Thank you again for answering my repeated questions. I am wondering if anyone else experiences trembling or shaking. Thanks again, Kelly
Types of Support for Ovarian Cancer
Hi Ladies, I have been researching and looking for varies types of support for medication, financial etc. and am not finding much luck. Are there programs out there supporting Ovarian Cancer? Most of what I came accross supported nearly everything but our's. Any input would be greatly appreciated. Thanks and God Bless,…
Carol848 - How is your sister?
Hi Carol, I've been hoping you would post and tell us how your sister did in surgery at MSK on the 15th. Please check in with us and let us know. I have been thinking about the two of you and how difficult it is in the beginning. Hoping for the best. DB
PPC vs UPSC
is there a difference? I'm trying to keep up with everything on behalf of my sister whose initial diagnosis was serous carcinoma of the endometrium, stage IVB. She went to MDA for a second opinion which validated the first. I will have her ask for the written diagnosis from MDA, but in the meanwhile, can someone unravel…
Neuropathy
Hi ladies , Right mum is complaining of a cramp like feeling in her hands and ankles , is this neuropathy ? And what do suggest we do ? Icepacks? Thanks Liz.
Clarity Foundation
I found this on another board and thought I would put the information here for anyone who might be interested. I have heard of blueprinting tumors before and it sounds like a good idea. Keeping everyone in my thoughts and prayers! Kathryn For Patients There are just over 20,000 women diagnosed with ovarian cancer in the US…
Anti depressants.
Hi ladies, I was wondering how many of you have taken anti depressants through this ordeal? I spoke to my sis , mum has stayed with her since her first doxil infusion, she is still feeling really tired and flu like. Catherine said she was very upset Saturday night, I am going to suggest anti depressants but I know she will…
Mopar----did you get the CA125 retested yet?
Mopar, I saw your recent post regarding the unexpected jump in CA125. Is everything ok? Did you get it re-tested? Perhaps the jump was a false read? Please let us know how the re-test results. I am sending positive thoughts you way for good results. In peace and caring. Cindy
The Verdict Is In!
All that worry about my ca125 going up, I thught it was nothing to worry about. Not so! Went to visit my son and grandchildren March 3rd. Had a heck of a time breathing and thought for sure the altitude had something to do with it (even though I have been to SLC many times before and never had a breathing problem). Came…
Partial Remission Vaccine Trial?
Thank you for your your reply Nancy, you are in my thoughts often! Could you give me any guidance as how to find to the vaccine trial you mentioned? I know that Carlene and Linda gave information about how to research trials going on, but unfortunately I can not recall where their posts were. Thanks again, Christine
Taking a Break
My CT scan results showed that I'm close to remission, except for small tumors in the abdomen. Both the chemo doctor and GYN/ONC said that if it were them, they'd take a rest from the chemo and its side effects and watch it. My platelets and ability to fight infection did take a beating. They say that surgery would be too…
Just a quick question!
My mom has a cancer of unknown primary. However, her oncologist suspects that ovaries are the source due to her blood tests. She has had 4 sessions of radiotherapy so far to treat the lesions in her back that are pressing on her nerves. She will be doing chemo after she finishes radio next week. However, she had severe…
Thank you Nancy
Thank you Nancy for responding. No, I haven't kept the skin gathered after putting in the needle, we were told in the beginning we didn't have to. I don't know what's right anymore. I am getting so disgusted with this whole injection bit. And, I do get a little lump afterwards. It's a shame, my whole belly area is full of…
What are the chances
Hi, I have been a member here at CSN for a few years due to having Follicular NHL and have been NED since Aug. 2008. A few days ago my wife went to her ob-gyn and found out that her right side ovary was enlarged. The Dr. said that it has to be removed to find out if it is benign or not. The Dr. I saw back in '08 told me I…
Rise in CA125 but CT scan shows everything has reduced
I went to see my oncologist for my CA125 results from #4 and my CT scan. He began by saying that it is good news. The fluid around my lungs is very small now and had reduced considerably from the previous scan. I had a soft tissue cyst in my pelvic area that had reduced in size by half. All other major organs completely…
Been Awhile
Wow! Lots of new names and faces! I have not been on in awhile! Finally baby Reid got home from Children's hospital after almost 8 weeks (we have been watching his 22 month old sister 3-4 days a week). But Praise the Lord he is home! Today he is 2 months. Let's see I can now get my senior citizen since last I was on! LOL!…
All's Well
Chemo ended Friday 3/11. CT SCan on Wed. 3/16. Dr. called today and said it is all clear and no evidence of DVT. So not only am I finished with chemo but I can discontinue blood thinners. I'm numb.(with joy, of course!).
venlafaxine (effexor)
hi my doctor prescribed to me venlaflaxine for hot flushes , even though it is anti depression/anxiety medication, please let me know if any of you Ladies know anything about it or taking it, what are the positive effects, and negatives. Side effects? thank you Victoria

Ovarian Cancer

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