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Ovarian Cancer

Archives for March 2011

Why no sponsors?
While signing up for the winners walk of hope i realized that ovarian cancer gets almost no acknowlegement from the big guns. Everyone sponsors breast cancer. This really ticks me off. Why hasn't always or tampax or someone become a major player in trying to help those diagnosed with this type of cancer. I did send an…
Another Birthday
I was diagnosed 22 months ago when I was 59 with stage IV OVC and told I had weeks, or at best a few months, to live. Today I'm celebrating my 61st birthday and still going! My son who lives about 300 miles away has travelled up for a few days which has made a great day perfect.
vaccine trial cvac (dendritic cell vaccine) phase IIB
Hi everyone, I'm considering going on a cvac trial for stage 3/4 ovca who are in their 2nd remission. Has anyone else been on a cvac trial? Thanks for any input Take care, Carolyn xx
Seeing things
Okay this is the weirdest question that I ever had to ask but has anyone else started seeing things after starting chemo. Mostly just bugs on me and things moving. It's really freaking me out. I think that I am actually going mental. I am in no test trials or anything like that. Just carbo/taxol. Any kind of info or…
WWOH
I just signed up for the winners walk of hope. Is anyone else doing it this year? It is not until September 11th here but i signed up early hoping I can get lots of sponsors! I wished one of you lived in my area so we could do it together. I am hoping my sisters and daughters will do it with me.
CA125 - COME ON DOWN!
To both Cindys and everyone else who was concerned and supportive: CA125 DOWN FROM 26 TO 18!!! YAY! So in the absence of any indications of disease (exam and CT clear), we are going to follow up in about 2 months. Thank you to everyone - all your continued support and prayers. (((HUGS)))!!! Monika
PET Scan, has anyone had one that was bright yellow and later found out that it was inflammation, no
Angela's PET scan showed bright yellow. Her doctor and California said the cancer was back. The doctor at Anderson said that inflammation can cause the PET scan to show bright yellow and said she had to have a biopsy to know for sure if the cancer is back. Does anyone know how common it is for a PET scan to show bright…
Clearity Foundation in "O"
The Clearity Foundation (the one that did my tumor blueprint) got an article in "O". http://www.clearityfoundation.org/default.aspx
Celebrating 31 years Married
Today is a great day. I have been married to my loving and caring husband for 31 years. Last year I had just been diagnosed with ovarian cancer 3b and uterine stage 2, so I was not feeling the best then. I had my surgery on February 1, 2010 and then lots of chemo. I am NED right now, and I pray everyday that I will remain…
advice
I am here from the breast cancer board. I am a three time survivor. I have a dear friend with ovarian cancer. I dont know what stage she was diagnosed in. she had debulking surgery then chemo. She now has a recurrance (mesenteric) I hope I have the wording correctly. She had carboplatin and taxol now she will have…
Another year older
Well I just celebrated another birthday and had a great day since being diagnosed with cancer a year ago!!! Birthdays are now good thing and love getting older!!!! Enjoying life! Joan
Hissy fitz you ok?
Not seen you on here for a while, you are normally quite vocal!!!!! , hope you are ok?
If PET/CT scan is clear but CA125 is 160 would you go back on chemo
Mom did 7 infusions of carbo/taxol and got her ca125 down to 89. She had the PET/Ct scan that showed no cancer. But her CA went up to 160 and now gyn/onc wants to try Gemzar. Mom got such bad neuropathy in her feet that she can barely walk. Has to use a walker or wheelchair to get around. She's started to do physical…
PARP Inhibitors in Ovarian Cancer
Some cell-based assay labs have explored the biology of PARP inhibitors, alone and in combination, in actual human tumor primary culture micro-speheroids (microclusters), in breast, ovarian and other cancers. In these investigations, the lab applies the functional profiling platform to understand how PARP inhibitors…
i cant wrap my mind around this
I have known for over a month I have cancer. I already had my first chemo treatment. I cant stop crying and I have an overwhelming feeling of doom. I am scared to the point that I can hardly function. The doc has said things look good for me and It hasnt spread but i cant contrlo my emotions. i am currently taking xanax…
Ovarian symptoms
I am a member of the Breast Cancer forum, having been treated for breast cancer. I am currently having problems, with some symptoms that are frustrating me. I have been feeling bloated, full feeling in my abdomine, with some lower pelvic pain at times. I have also had to stop eating way sooner than I normaly would because…
Low body temperature
Mum has got a low body temperature, what does this mean ? She has had one infusion of doxil, 3.5 weeks ago, she is now gong to the hospital :(
whew.. had a tough time
Hi Loves, I've been away from the board for the last two weeks with extreme fatique from my last carbo/gemzar and gemzar cycle. I had had a month break prior to this and the good news is that I didn't lose any ground with my CA-125's (yeah), so maybe I'll be able to do that again. I'm going to try to catch up this morning…
Our cancer "ordeal" blog
I asked my husband to keep a running blog of my ovarian, stage 4 cancer treatment. I told him to hold nothing back and tell it like it is. I am hoping that it will help someone about to start the treatment process to know what to expect, and maybe learn some things sooner than we did. Good luck to everyone out there and…
Opened the 1st of my 'posthumous' birthday cards to my grandkids today! :D
When I had my 1st recurrence, back in November of 2009, I read the survival statistics of my rare aggressive uterine cancer, and got my affairs in order. I felt I needed to have all the loose ends tied up so I could concentrate on LIVING for the time I had left. A part of those 'preparations' was to write out birthday and…
After de Vinci PSA .01 up to .06
Prostate was 86 grams - containing high quantity of cancer. Gleason score 3+5, staging pT2c, lymph staging pn1. Other Gleason values 50% grade 3, 30% grade 5, 20% grade 4. PSA @ surgery 9.3. Surgery evaluation (clear: bone scan, CT, margins, pelvic lymph nodes, seminal vesicles) & no bladder invasion. Post surgery report…
Hot tub
Hey guys. I was reading an old post that it was not healthy to get in a hot tub unless it is obviously clean. I would like to know the health risks and, if any, benefits of a hot tub while I am going through chemo. Everything hurts so bad and I don't know what else to do. They gave me 500mg hydrocodone for pain but it does…
Anti-cancer Diet
Dr. David Servan-Schrieber (2-time survivor of brain cancer) wrote a book called the Anti-cancer Diet--he makes a lot of sense. Here is a link to his YouTube video. http://www.youtube.com/watch?v=xfddD6keYq0&feature=player_embedded After listening to him, I want to EXERCISE more to stay well.
confuzzled has passed on and is with god now
this has been the hardest day in my life , before she passed she want me to post here and tell you all , that reading this board had helped ease her thoughts in the last few months . before she was incohearent we had our last chat and kissed and hugged and said our good byes, i was there every step of the way for her!…
cunfuzzled in the final stage :(
as you all know we were engaged to be married ! this is bob on janes account . i have been at the hospital for 2 days with little sleep. jane told me yesterday her body was shutting down ! i am in tears typing this to you! i sat for hours on end telling her how much i love her and had our final talk with saying good bye to…
How do i help her with this?
Hi Ladies, My Mom (Saundra although she goes by Sam) is having a very difficult time with her diagnosis/prognosis. How do I help her with this? She was told in September that she has one year to 18 months. How do I help her with the fear of dying and the fear of the unknown? I have talked to her about her wishes and I have…
A question for Monika (Mopar) or anyone else regarding flax seed and fish oil.
Hello, This question is for Monika (Mopar) and anyone else who might know more about the benefits or risks of flaxseed for ovarian cancer. Please correct me if I'm wrong, Monika you said that flaxseed as related to estrogen should not be used? Can you or anyone else expand my understanding as to the risks or benefits of…
Science/Nutrition Lesson?
I've had four treatments of Doxil, and thankfully the tumors are getting smaller. Out of the blue, I had a vivid mental image of a bunch of dead cancer tissue floating around inside me. I know that the miracles that are our bodies "clean this all up" somehow. But I'm ignorant about how. What are some trustworthy resources…
Re: Nutrition Question..... Flaxseed?
Hello, This question is for Monika (Mopar) and anyone else who might know more about the benefits or risks of flaxseed for ovarian cancer. Please correct me if I'm wrong, Monika you said that flaxseed as related to estrogen should not be used? Can you or anyone else expand my understanding as to the risks or benefits of…
abraxane
hi, i had 3 treatments of carbo/taxol, but my onco change taxol to abraxane, to minimize body ache. just today i had my treatment #4- carbo/abraxane. do not know what to expect. please let me know if any of you had experience with abraxane. side effects? thank you victoria

Ovarian Cancer

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