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Ovarian Cancer

Archives for September 2010

Today's CA125
No change.....it's still 6.9, the same as last month. Pre-surgery it was an unbelievable FOUR THOUSAND. I'm one year from diagnosis, 7 months out of active treatment, and have had 7 out of 12 consolidation doses of Taxol only (AKA maintenance therapy). God is good. Carlene
Libby??
Hi Ladies, Anyone hear from Libby or her daughter...I know she's in same trial as my mother and I have PM'd her and her daughter but not heard back...am a little concerned...I know her 2nd CT was at same time as my Mother's (2 weeks ago)....Hope she's doing well...I know the doxil dosage in this trial is high....hope she's…
WEDNESDAY UPDATE ON BONNIE
As posted on Caring Bridge today: 'as i lay with bonnie last night with many thoughts racing through my mind i thought of God great Love for all creation that he sent his only SON to pay for our sins that all who believe will have lifeeverlasting reading the daily devotions this morning john 15 16and17 youdidnt choose me…
AVASTIN Treatment for O.C
Is anyone on Avastin for Ovarian cancer? I was on Taxol and Avastin. Now just on Avastin. Was wondering if the results are as promising as they say. Also I was told I would not lose my hair on Avastin...well treatment 7 and I have no eyelashes and thining eyebrows...You know cancer is tough enough can it just leave our…
Letter to a boy/girl
So, in another online community I participate in, we have a thread called "letter to a boy/girl" where we generally write a note to that special someone. you can vent or express your undying love or talk about how you stalk them on facebook or whatevs. Due to some circumstances in my life the past few weeks, thought it…
You Ladies
Are awesomesauce. That is all. Carry on.
Confused and upset over doctor's visit
I just don't know what to think. I got my results from PETCT Scan today. Frist, my CA125 when up from 30 to 34. Then the last spot I had, which is in my liver, has not shrunk anymore. My doctor wanted me to do the two more infusions of doxil and thought it might kill it like it did the other spots I had. But it stayed the…
sepsis
Hi to everyone,maybe this could help and avoid this for someone with same issues.I dont know. My father has said that the infection is in my mothers blood.apparently its the cancer.Its in her chest cavity.They have taken her off the TPN,Can not give it to her,it was fueling the infection.Her count is still relatively low…
crap
My ca125 took another 10 point jump and is now at 43. PET/CT on 9/1/10 showed stability. A new treatment regimen is probably in my immediate future. If so, I will probably go with the clincial trial oral EMND-2076. I've been on chemo non stop since January. I am on my 2nd regimen. Thankfully the bowels are moving fine and…
Well isn't he an idiot?
So today I got home from school. And I have this project that nobody told me about until last minute (I was absent last tuesday) And they told me a few days ago. Now here I am with this stupid project I have to do. So today I'm almost done but i'm in a group with boys and they don't like to co-operate so i've been doing…
Well isn't he an idiot?
So today I got home from school. And I have this project that nobody told me about until last minute (I was absent last tuesday) And they told me a few days ago. Now here I am with this stupid project I have to do. So today I'm almost done but i'm in a group with boys and they don't like to co-operate so i've been doing…
CONTINUED PRAYERS FOR BONNIE
Just asking that we continue to keep our thoughts and prayers with Bonnie. She's back in the hospital, with pneumonia and a possible bowel blockage. This is according to the Caring Bridge journal entry by daugther, Michelle as of Saturday. And I know all of you ladies will rally with me this morning to lift her up in…
*2 things..*1 question & *1 request ..
Has any one heard of Dr .charles b simmone?any info,comments on his work,anything at all? and ! request, i want to ask if you have a moment please say a prayer for my mom,she was taken back into Boston to emergency room,staying,shes so weak,her count is 122,was 33 few mnths ago but no chemo since then,she cant handle it,…
Meghan....our little adopted sister
I had quite a long conversation with Meghan today and she is doing really well, all things considered. I told her she needed to log in here and give all her big sisters a heads-up. She said she would. Her dad has found a counselor for her, but she hasn't met her yet. Hopefully, it's someone Meghan can bond with and who…
Yesterday was my anniversary, but not the good kind
One year ago yesterday I was diagnosed with Stage IIIc Ovarian Cancer. I had seen my PCP the week before, about a gall bladder issue. At least I assumed it was my gall bladder, and was already fussing and complaining about having to have surgery. (Gee....I wish I could have had gall bladder surgery surgery instead. I…
does anyone know if acupuncture will help with fatique?
I was wondering anyone tried acupuncture,or new someone?For fatigue from ov cancer.My mom has recurrent ovc,put back on chemo,it landed her back in the hospital.No food since January because of the tube.If she had energy to get up,move a bit,outside even 5 min,i think shed better her chances of beating this.Muscles are…
Delayed effects of Chemo? or Horomonal Issues?
I had a hysterectomy and removal of one ovary in April followed by 8 weeks of Chemo which ended July 7. I am Cancer free and obviously very happy about that! But I'm concerned I may be suffering from some hormonal issues. My hair did not start thining until week 5 of Chemo, it was very minimal but about a month after my…
primary peritoneal spread to breast
I am wondering if any of you have had ovarian/primary peritoneal spread to the breast? Or two primary cancers...ovarian/PPC and primary breast cancer? My mom was diagnosed 1.5 years ago with primary peritoneal, stage 4. In the spring, they found cancer in her breast. Since she was already back in treatment for the…
New to this board
I am new to this particular board. I was dx with Stage IV Colon cancer last July and was declared NED on April of this year. On Sept 13th, my dr removed my left ovary and a cyst. It turned out to be cancerous. I don't have any other details right now and probably won't until Tuesday when I go back to the doctor. I really…
New genetic marker for Ovarian Cancer
July 22, 2010 -- A newly identified genetic marker may help predict ovarian cancer risk, Yale University researchers report online in Cancer Research. Variations in the KRAS gene occur in one-quarter of women with ovarian cancer, and 61% of women with ovarian cancer who have a family history of breast and ovarian cancer.…
Tamoxifen pre-op
Hi there, was wondering if anyone has had to take Tamoxifen as a pre-op measure to try hold back the rate of recurrent cancer growth, whilst waiting for surgery? I am waiting for my surgeon to return from holidays (3weeks away yet) to do a laparoscopy/ laparotomy? and probably follow with more chemo My oncologist has…
Getting the word out...
Here's a link to a local TV news show, spotlighting our local NOCC chapter, and the mini-interview with our coordinator, Karen Zeitman. http://www.wfaa.com/news/health/Break-the-silence-on-ovarian-cancer-102670169.html I am participating in the 5K on September 25th. Carlene
Starting Doxil Thurs. WHEN do I use the ice packs, Eucerin cream, & Instant Ocean soaks?
I've read the posts on Doxil recommending Eucerin cream (original), ice packs on the palms and bottom of feet, and cool Instant Ocean foot baths. I did my shopping and have all my Doxil "stuff", but I couldn't find a post that said WHEN you use this stuff. Should I bring my ice packs to chemo on Thursday and 'chill' my…
I am my mothers 8th child
I am the youngest out of eight children.Today is my parents 53rd wedding anniversary.My Mother has recurrent ovarian cancer,she was diagnosed two years ago right before Christmas and was flown immediately in to Boston for emergency surgery.When they heard the news,my Father just dropped and layed over my mother at the…
Unwanted hair
Ok. I'm not sure why the original post was deleted, perhaps the powers that be who deleted it could enlighten me? I realize this a little bit frivolous and vain, but darnit I survived chemo, I'm entitled to a little frivolity and vanity. (Yes, I'm irritated that this post was deleted with no explanation, especially…
Don't meet the criteria for research trial..now
I had to call my onc. nurse today- as I was due to go in for my CBC before chemo tomorrow. A week or so ago she had called me to see if I wanted to participate in this research trial on a vaccine for OVC- as I met the criteria. However- I wouldn't be able to do my maintenance chemos while in the trial. I had to have a CT…
Good News
After 9 months when is my beautiful mom's dx,last night was one of the happiest night that we had together. Her Oncologist said the scan was clear. Though she has 4 more sessions of gem/campto to go and by then it would be 1 full year and she will be a "one year survivor". Along this way this board has been such a blessing…
Back to it: Taxol and Cisplatin for Linda
We start our third round of treatments tomorrow. Linda's last treatments ended February '08. Obviously we were hoping it whacked it completely but there is a tumor in her lower abdomen so we're going after it. You all know the score. Those two drugs are strong so we appreciate your prayers and well wishes. I'm going to try…
Jayne is still at home, treating her blockage and trying to avoid the ER
Jayne has been told that she has just weeks to live. The pain is so bad, she and her husband are thinking of discontinuing the TPN feedings. Jayne has a bowel obstruction and will probably be heading to the ER before long. She is hoping the doctors can resolve it quickly and send her home. Carlene
Chemo "lite" for my mom who is still in ICU?
Hi everyone---I wanted to let you know that my mom is still hanging on in ICU. She has been in ICU on mechanical ventilation for three three weeks now. We had a phone conference with the MD's today. Her pulmonary status has been stable for the last week on 40% ventilation. She is no longer on paralytics but continues to be…

Ovarian Cancer

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