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Ovarian Cancer

Archives for September 2010

Houses passes Johanna Law for GYN cancer eduation
Use this link to email your senator http://www.capwiz.com/ovarian/issues/alert/?alertid=18035546&type=CO
cancer color wars
This is an interesting article I read on the inspire board and thought I'd share it. http://www.politicsdaily.com/2010/09/28/cancer-and-the-color-wars-pink-teal-purple/
"Break the Silence" tee shirts
For the benefit of those who asked me via Face Book and CSN e mail about purchasing the tee shirts we wore in the NOCC 5K last Saturday, they aren't technically for sale (ours being such an exclusive group and all...ha ha), but I think I can score a few shirts. I promised to be responsible for the postage and for mailing…
Ovarian and Liver
Has anyone had a recurrence and it shows up in the liver? I asked my doctor if I now have liver cancer and he said, NO this came from the ovarian cancer. I guess I am not understanding. He says this can happen because everything is procesed through the liver. I have just completed my Doxil chemo infusions and the doctor…
Looking for NCEllen
I would like to get in touch with you Ellen. I believe I saw somewhere that you live in Matthews? Please write back.
Anyone experience burning in their throat
Has anyone experienced a burning in their throat or feeling of not being able to swallow food while on carbo/taxol? My mom is feeling like she can't swallow and this burning sensation in her throat and nothing seems to help it. She has is getting severe heartburn. She's tried Pepcid and similar drugs and they don't seem to…
Primary Peritoneal Cancer - new thread
Many thanks Tina for the valuable info you've posted. I checked and you're right, she is on carboplatin 550mg and taxol 330mg. Does this sound right? She's also been given sickness tablet, so that's better now. But she hasn't been eating, so she was admitted to hospital again to check her immune system, apparently chemo…
vaginal bleeding
I know this topic was addressed before but I cannot find much on it when I search. Has anyone experienced vaginal bleeding. I noticed a very small amount of bright red blood today. None on my underwear. A bit on the toilet paper. Sorry to report that it cannot be from rough sex..or any sex for that matter! Have other women…
Good news on such a sad day
Dear Friends, Ive been chemoing since Jan. carbo/taxol x4, Doxil x4, now Gemzar/carbo and gemzar the second week. Except for a 10 point drop in Feb., I stayed even at a CA-125 of 110. Yesterday, I had the first good news.... my CA-125's dropped to 72.6! I choose to believe that wonderful gift came from our sweet Bonnie.…
My wandering mind and rambling fingers...
It's getting late and the house has been quite for about 3 hours now, everyone including the dog is asleep, except me as usual. The TV is turned on low, can't really concentrate on any one show, so it's just background noise. My mind keeps wandering and zeroing on this nasty entity that bedevils me!! I was first…
For Bonnie
A new thread. I find it so appropriate that Bonnies profile picture on FB is of a angel. My heart is heavy with this loss of a fellow warrior. Heartfelt sympathy to her family.
I AM NED!!!
Just go thte news----I am NED. Thankful and celebrating!!! Had to share. V
My chemo held hostage update
Finally... my insurance company has released the funds that they owed to my Oncologist and after a very long and even more stressful 5 weeks for me, I return to chemo today. I'm terrified to find out if my counts have risen. I'm trying to think good thoughts. (((HUGS))) Maria
Jayne is doing quite well, all things considered
She had surgery to replace the stent in her kidney, which went well, and today she posted this... Thanks to good old Yoga, walks with my cat and dog and sunshine; the pains in body are much better...glad we didn't go to ER! I'm so used to this waiting it out!)
What are you reading for fun?
I thought I'd start this topic so we can share the great books we read for fun. While these can include cancer books, it's also a place to talk about books we read to "escape" for a while. Some of my favorites: The "fever" series by Karen Moning DarkFever, BloodFever, FaeFever and DreamFever. Fantasy series. Along the same…
Has anyone been perscribed opium for diarrhea ?
My daughter had her second chemo and has had severe diarrhea. Her white blood count was zero, even after having the shots to raise her white blood count. She still had one shot left and we are hoping that the shots have not kicked in yet. Has anyone been perscribed opium for diarrhea?
I'm beginning to understand something
I've wondered, this past year, why we can't just stay on some kind of maintenance chemo after our initial treatment is finished and we are NED, as is so often the case. I asked my Gyn/Onc and he cited several reasons, the primary one being a reluctance to pump poisons into a person's body forever, without knowing if it…
Oh my gosh .... My mom is awake in the ICU!
I would never had expected it, but despite all that is going on she made amazing progress over the last 12 hours or so. She is following commands, trying to talk and make her hands work. I'm just astounded that she has woken up after 5 long weeks of being unconscious. Im driving up tomorrow morning to Buffalo and should…
Tenth Annual NOCC 5K Break the Silence "Race"
It was a rainy morning in the Dallas/Ft Worth area, but the NOCC Walk to Break the Silence went off as scheduled. I walked, as did 7 other friends and family members. See the photos on Face Book (search Carlene Mullins if you aren't already on my Friends list). We had a balloon launch for all the women who lost their…
Libby's Update
Good Afternoon, Ladies!! I have had 3 infusions of Doxil (dose is 50 or 55 which is a higher dose because of being on PARP clinical trial). After first infusion I had heartburn like pain in esophagus, had 2 shots of Neupagen for white count (already). Second infusion I had constipation, mouth sores, some itching around…
Chemo Brain
Okay what is chemo brain? I went to breakfast yesterday and my daughter kept asking me if I felt alright. It wasn't till later in the day that I realized I was like kinda in a fog , is this chemo brain ? I can't recall the conversation and barely recall her boyfriend being there.
Need advice. :)
Hello!! I am new to this board. i am so glad some one told me about it. Finally have a place to talk to people who know what i'm going through!! :) I need some advise and info. I was diagnosed at stage 3C on Feb. 1st this year. i underwent a massive surgery including ovaries, appendix, omentum and 2 bowel resections. 5…
Update on my mom in ICU
Hi everyone. I wanted to give you all an update on my mom who has been in the ICU since her colostomy surgery on August 20th. She is trached and received her second weekly dose of Cisplatin on Tuesday. She has finally had a slow down in the chest tube drainage and they were able to do the pleurocedesis this week as well.…
Taxol treatment
I am interested in what warrants getting taxol treatments after completing chemo. Is this a maintenance procedure or does something else have to show up. Thanks
Haven't been on in awhile, but need some help
Hello Ladies~ To refresh, I was dx Stage 2 Ovarian Cancer in August of 2005 at the age of 34, just had my 5 yr. anniversary a little over a month ago. Underwent complete hysterectomy with removal of everything, including omentum, and 9 lymph nodes which were negative for cancer. My gyn onc was able to remove all of the…
Someone please help me
I am barely able to sit at the keyboard because I am weak and lightheaded but I so need someone to help me feel I can get through this. I am sobbing and feel like everything is so futile. I will probably reread this at some point and wish I hadn't posted it but at this moment it is what I need to do. I am having such…
I have a question..
Did anyone have vaginal watery vaginal discharge AFTER hysterectomy and debulking surgery? After my internal radiation - I was extremely dry... that was 2 years ago. Now over the past few weeks I have been extremely watery. This makes me nervous but it doesn't really make sense to me because I have no uterus or ovaries...…
Lynch Syndrome
Was wondering if anyone was familiar with Lynch Syndrome. Mom has to have a genitic test next month to see if she may have it. Her oncologist believes she may...due to her having colon cancer at such a young age then the reoccurance of the colon cancer then the ovarian cancer. He also stated if she had it then all of her…
our sweet BONNIE
Caringbridge jourbal post on Bonnie's blog today, not sure who posted it: "Biblestudy time look up Isaiah 43 1 3 one special verse that Bonnie has walked with 7.5 years and shared with many friends Bonnie did wake a couple times through the night from pain the nurses uped thr amount of pain meds and now she receives adivan…
Second round of chemo
Mom just had her second round of chemo and is so sick. Yesterday whole body feeling tight, today throwing everything up. Her first round she didn't have any of this. Will round three be as terrible as this? She was so hopeful after her first round and only have fatigue as her side effect. Now, she's a little depressed at…

Ovarian Cancer

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