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What do I do next?
Hello, I have not posted in a while. I was diagnosed in 04/09 w/stage 3c serous papillary ppc.Had suboptimal debulking....only rt tube and ovary, omentum. Underwent 6 rounds of carbo/taxol and avastin. ca-125 started to rise after about cycle 4(only got down to 57). Swicted docs....my new doc was more aggressive and I had…
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Mom is back in the Hospital
Well, the cisplatin did it again, and Mom was admitted again tonight. Her counts and electrolytes are dangerously low all around. My sister spoke with the oncologist who said, "no more cisplatin". She just can't tolerate it. I'm on a 6:30am flight to NY tomorrow and hopefully will get out through the snowstorm. I am a…
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Gemzar and Cisplatin
Hello everyone, I've been wondering how all of you on this regimen are doing? What's happening with your marker, and how are you tolerating this combination now? I still deal with some nausea off and on. I'm getting a lower dose than we started with because of my blood counts. I get an Aranesp shot every other week and…
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Monitoring a cyst after cancer in the past
Hello to all. I haven't been on this board for a bit as I struggle with other health issues but I want to take a minute to thank all who helped me on this topic board while I was struggling with what way to go with a cyst that was found on my ovary a few months back. I fought to see a gyne/onc as I had a history of NHL in…
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Is this normal chemo therapy procedure?
Monday was my chemo day and as usual, I was the last one left in the infusion center when the nurses and techs started getting ready to leave. It was after 5 PM and there was no one there but my husband, myself, and my RN. Judging from his earlier remark that I had 45 minutes left of the Carbo, I would say there was about…
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port removal
I have just reached the one year date of remission from IVA cervical ca. Yesterday my oncologist scheduled to have my port removed 12/21. I fear that this is too soon. Has anyone had their port removed so soon?
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My mama is in heaven
My mama passed this early morning, December 7th at 1:15 am. My grandma and I were asleep.. or trying to sleep on recliners that were on each side of my mom's bed. Mom had been asleep for 2 days without opening her eyes. I was restless because nurses kept coming in. I was restless for a reason. I was on my phone texting…
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I've had a recurrance and will need you ladies as they try Ovarian Cancer chemos on me.
My oncologist told me from the beginning that Uterine Papillary Serous Carcinoma (UPSC) is every bit as aggressive and recurrant as Ovarian Cancer. But he still wanted me to go for all-out for a cure, as sometimes if you can get it all in the first battle, you can actually get away clean. So I did the major debulking…
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Use of hot tub when on chemo?
Hello everyone, I've received conflicting answers to my question about the use of a hot tub while on chemo. Several years ago an oncologist told me "no." Recently, when I asked again, the PA said: "Yes, certainly." The oncologist told me to "just wait until you finish treatment".....but, unfortunately, that still hasn't…
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Pleural Catheter
Hi Ladies, Have any of you had a pleural cathetet inserted to drain your lungs? I had my lungs drained two weeks ago because I had a large amount of fluid buildup. Within 2 days I was back in bed unable to walk around my house without being out of breath. My dr. scheduled to have a catheter inserted so I could drain at any…
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Mass growing and a few questions
I posted a question on here a few weeks ago. In the middle of Oct. I had an ultrasound after having pain, upset stomach, bloating and they found a complex bilateral mass with some solid compotents. The doctor ordered a ca-125 which was within normal. The mass about 3.5cm x 4.6. Went to a Gynecologist Oncologist and decided…
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Ok, Ladies, When Do I Stop Worrying That Every Headache is a Brain Tumor?
Ladies - I am new here, and yet I feel as if I just found a huge new group of friends! No one in my inner circle has had to live through diagnosis, treatment, baldness and recovery (thankfully!), so its nice to have a group who really understands what I've been through. I was asymptomatic when diagnosed at 39 last August.…
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bowel surgery complications
Hello Ladies, I had surgery on Nov.11 for two complete bowel obstructions. I still feel just awful. 'Saw doc this week and had a T scan, which showed fluid buildup. I was told this would gradually go away and that it is the source of my pain(I can hardly get in and out of bed) I'm not buying into this! Has anybody ever had…
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Gemzar/Avastin
Hi ladies, It looks like Gemzar/Avastin will be my next chemo. I was hoping I could get some idea of how frequently the treatments will be? I think I read that it's 3 weeks of treatments, and then one week off. I was also wondering how long each treatment is, and are the drugs both given on the same day? Third, do the side…
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removed from clinical trial part II
Hi- As of yesterday my counts met the criteria so I received chemo but the research team suggested I start shopping around for another PARP Inhibitor trial as I will most likely not remain on this trial very much longer. My oncologist asked the drug company to dose reduce the chemo but they said "no". It went against the…
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Perspective on a CA-125 of 128 for my Mother after all this
Can someone give me some perspective on what this means? When she was diagnosed her CA-125 was 1645. Now it is 128. I was hoping for somewhere around 7-10 after all the chemo and surgery and post surgery chemo. Am I dreaming? Doesn't 128 mean that they didn't get it all? My mother said that her oncologist was happy with…
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PET scan questions
I was hoping for some insight on a PETscan I recently had. Since I've been having ongoing bowel obstruction symptoms and a SLOW rising ca125 my surgeon wanted me to have a PET/CT. The CT scan was clear but the PETscan showed one hotspot on my colon. The oncologist said it would unusual to have only ONE hotspot on a PETscan…
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Trying To Get On With Life
Hello Ladies, Yesterday I started my first day of nursing school. I am so very, very excited. I just hope and pray that I can stay healthy. After I take my state board exams I am hoping to get sent straight up to the oncology department. I had such wonderful nurses through-out my treatment and I realized how important they…
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want opinion n some health problems....chatroom told me to get out!!!
I am a 32 year old female. I have been not feeling to well for awhile. Always nauseas have problems with constipation/diarea, just over all not feeling well. I have been having left lower side pain. I had went to my gyno explaining my symptoms. I had exploritory surgery of my uterus. They had found a large fybriod…
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Aransesp - anyone else getting this - and lab results
I had labs today to see if my oncologist would give his blessing for me to proceed with two root canals. No go. My red and white counts were both too low. He prescribed Aransesp every two weeks to build my red cells, and warned me that if my white cells go too low, he will stop my treatment. This really has me frightened…