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Bonnie - visit
Bonnie, I don't know how to email you or tell you anything except through this board (I tried facebook, too). But I did want you to know that we have canceled our trip to Minnesota in August. The wedding is scheduled for Sunday, August 9th and my chemo is scheduled for that following Monday 10th at 7:45 a.m. in…
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Variances in staging diagnosis
Good Morning friends: I am in need of some information and support as I am very very confused about my current situation. To refresh you , in October I had a hysterectomy and debulking and was diagnosed at Stage 1C. That was followed by six rounds of Chemo. Thankfully my CT scan was clear and my last CA125 was 15. I have…
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BrittanyC
Hi Brittany, You haven't posted for a while, how is Mom doing? Jane
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Out of NED
I saw my gyn/onc. and he felt a mass during the physical. I am scheduled for a CT scan tomorrow morning and they did another CA-125 to see what has happened in two weeks to that number. He is agressive minded and wants to get on this ASAP. I have has pain in my left groin and he thinks that is a growing lymph gland. CT…
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LUNG NODULE
Well, I have a couple more questions regarding that lung nodule that was reported on my CT scan in June. As I mentioned, it's 3mm (quite small according to my doctor). It is in the left lower lobe. My doctor just wants to recheck in 6 months. I asked, 'well should I be watching for symptoms'? He said, 'we're always…
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UPDATE :They all say ' Don't Wait, Get it Diagnosed Early' - Ya, right. Sigh.
PREVIOUSLY WRITTEN: Shoot me now. I am in Canada so this might just be a Canadian health crisis issue, don't know but I am at wits end trying to help myself. I have posted a couple of discussion topics and covered all my health info but suffice is to say that I am an 18 year survivor of non hodgkins lymphoma with…
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side effects of gemzar
I'd like a little info as to the side effects of Gemzar, in particular, Hair Loss. Anyone help?
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Side effects of Gemzar
I begin Gemzar tomorrow. I would like to know some of the side effects with this med. Do you lose your hair?
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My CA after finishing Gemzar
Well, I got my CA done today. Mine is on a scale of "normal" being 3.5-17.0 Naturally I am still at 18.1 and my treatments are finished. I'm not scheduled to see my Dr. until September, and I will wait until then to find out what he suggests our next move be. I will certainly be asking about a possible PARP research study;…
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Gemzar and Platin
Hi: Recent PET revealed a few more spots in abdomen and pelvic area. These are too small for surgery so I'm starting chemo this Thurs. Had carbo and taxol last time so don't know what to expect from GEMZAR and PLATIN combo. Does anyone have any advice?
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Thank you all !!
Thank you all for your kind, warming words. It is so difficult for us caregivers.. not for the burden or stress of taking care of a loved one may cause..(which is I told my Mommy all the time, please dont thank me, I do it for love and you have done so much for me this is the least i can do for you.)What makes it so so…
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Really Scared
I'm sorry I have to be here, as I'm sure we all are. I was diagnosed with Stage 3 -O cancer back in May, and after a lot of crap, was able to have surgery. I am appalled at the healthcare in this country-truly. As some of the other ppl here, when I first found out, I had no ins, no $...and no one one wants to know you.…
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TO BLUEROSE
Please let us know how your appointment went. If you posted somewhere else about this, I'm sorry. Can't seem to find anything. But I'm very interested to know what the doctor said. Update us when you're able. (((HUGS))) Monika
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thank you
I just wanted to say "thanks" for all the info and support I have recieved so far. I am anxious about my first chemo on Wednesday, but I am ready.
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My first chemo will be Wednesday
Hi friends! My appointment to meet the chemo doctor went well. My sister went with me for moral support. I feel as though our roles in life have changed quickly. As the big sister, I always take take care of the tough things in life, she has really stepped up and it has been a real blessing. My doc said I will be getting…
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Getting Concerned
Some things that are going on in my body are starting to concern me, especially since I've been on a chemo break for about 6 weeks. My belly feels stuffed and I get pains occasionally, my right ankle is swollen again, like it was when the lymph nodes on that side of my body weren't letting the lymph system drain, and I've…
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First whisper of trouble?
Hello folks. I track the board, but being a guy I don't always have much to contribute to many of the discussions. My wife Linda ended treatment for recurrence last Feb 08 and has been healthy this whole year and a half. Other than a hernia resulting from the surgeries, she's been active and looking ahead. But our most…
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CA 125 still rising
My CA 125 continues to rise. Now up to 212 but my oncologist does not want to start chemo until it shows on a CT scan or physical. I will see what the gyn/onc says next Wed. as to his thoughts. I have take off to Colorado to see my daughter and family while I can in the meantime. Funny how we all seem to be going in the…
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New with ?
I had a full hysterectomy on May 7th and since the surgery there has been a spot at the top of the incision sight that looks aherniated. It poaks out quite a bit when I stand and gets real hard. The Dr's don't seem worried about it they say they will keep an eye on it even though since then I go up to 4 days with no bowl…
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Questions about Neulastin vs. Neupogin
I haven't been posting too much lately because I've been pretty weak with anemia, for which I'm receiving Procrit injections. I haven't had too bad a reaction to the Procrit, just achiness that is relieved with Tylenol and occasionally Ibuprofen. My white count is also very low which lead to bronchitis, which I've also…
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Quick Update
God's morning to all :-) I know some of you read caringbridge so this is old news and a bit more. This is the day ~ this is the day ~ that the Lord has made ~ that the Lord has made ~ we shall rejoice ~ we shall rejoice and be glad in it and be glad in it. :-) Yesterday's clinic visit was good and I recieved another dose…
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chemo
my mom had reaction to carbo -platin and she had to stop.Anybody can tell me if there is a similar chemo that works as well. thanks julia
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1 year or less without Cancer
It`s been 7 mths since my last chimo treatment. So far so good,My 3 mth, 6 mth,all good ! I`m scared everyday it will come back.I wonder what the normal reacurance rate is ? My Doc says I have 70-80 percent chance to live 5 years.
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Starting Chemo Again
Ladies, Had my followup today. My CA125 went up 80 more points to 193.5. CTscan of pelvis and abdomen was inconclusive, but physical a week later still felt 4 cm mass in colon area. So I will begin gemzar/cisplatin on Monday, followed by Neulasta shot on Tuesday 24 hours later, then chemo again 2 weeks later, and so goes…
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Feeling Depressed and Guilty
It's been 2 months since my Mom is with God..My Mommy was never told by the Doctor that she was dying.. he said that profesionally he is allowed to say when the patient asks..and my Mom didn't. He said as Dr. her must always give a ray of hope. When we got to the hospital she had 3 weeks left due to bowel obstruction but I…
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3rd Recurrence
Scheduled for a PETCT tomorrow as CA 125 has risen to 121. This is the 3rd recurrence in 10 years. I am very anxious and going through lots of emtotions right now. Reading all of your notes and letters gives me strength that I am not going through this alone. Keep me in your prayers. Jean
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Prayers Needed
Hi, I need some prayers. I’m having my 1st radiation treatment for the 1 ½ inch tumor on my vaginal cuff. It is in between my bladder and colon. My CA had gone from 241 to 865 in a month. They stopped my chemo. I will be having radiation everyday for 4 weeks, except Sat. and Sun. I heard that the side effects can be worse…
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help?
hi. i recently had surgery to remove two tumors. i was told that they were 'borderline malignant,' and that i was really lucky that the malignancy didn't spread... but no one ever told me that i had cancer. the only incidents that i've read about and were similar to mine were about people who do have cancer. so i'm just…
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questions for first appointment
Dear friends, I have my first appointment with the chemo doctor this Friday. I am sure I will be taking in a lot of information at my appointment. Are there any specific questions I need to ask him? Special123
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chemo and cancer vaca
Good morning ladies, I have finished 6 cycles of gemzar/cisplatin. My CA seems to have leveled off at 16 or 18. (My NED norm is 5 to 8) My Japanese doc recommended I take a break, do a PET, maybe femara and see..... I was having a hard time thinking about stopping for many reasons. I think this cheno stuff is awful but can…