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Ovarian Cancer

Archives for May 2009

Finally some good news to share
Good morning, Yes, I finally have some good news to share with you, I picked up my CT scan report and after 10 months of Topotecan chemo, my pelvis, abdomen and lymph nodes are stable with no sign of cancer. I guess that means that I'm in a remission, but I'll meet with my oncologist Monday and go over the report with him.…
Thank you for your welcome
Hi ladies, I wasn't on the board yesterday, too much going on here and I'll write about that later. I want to thank all of you for your warm welcome, it means so much to me to have found this board and, as ladyjogger Terry says, the "awesome" group of ladies who post here. There's something special about you, and it warms…
Anomalous behavior prior to diagnosis
My aunt recently passed away due to complications from ovarian cancer, but a short while before she was diagnosed with it, she had suddenly started drawing the coolest pictures. This from a woman who, in fifty years, had hardly ever picked up a pencil to write, let alone draw. I was wondering if others had noticed…
Waiting game
Hi Everyone, I just saw my gyn/onc since I'm back home. He and the doctor in Florida agree the cancer is back, but nothing showed up definitively on the CT scan in April. So, I have the choice to start chemo now based on the CA125 reading or wait. I'm going to wait and see him again in the middle of July after another CT…
Finding the answer
Hello to all - The cause to the rise in my CA-125 level may be close to being found (I hope). I have an appointment with a urologist on Thursday. There is a spot on my bladder that is suspect, and there is possible invasion to my bladder. I will post when I know more. Love you all, Sue
My Wish Came True
Hi Ladies. Had some major computer trouble the last few weeks. A virus blew out my keyboard of all things. So all I could do was read the boards and not reply. But I just got a new keyboard yesterday and now I'm back online. I had a very wonderful thing happen to me last weekend. As I had posted before my big wish for this…
OHIOGIRL
Hello, I am posting in behalf of OHIOGIRL, an ovarian survivor who has been active here at csn for several years. Her son wanted me to let all her friends here know that Marie is in the hospital in her last days or possibly hours. They are keeping her comfortable. She has let it be known for some time that she is ready to…
Living with Cancer?
Hello, My mom was recently diagnosed with ovarian cancer 2 months back. She has since undergone 3 chemos and the doctors are suggesting an operation to remove her ovaries, uterus and fallopian tubes next week. Her CA 125 was 1150 before her chemotherapy began and it is now down to 13.5. The oncologist said that she has…
BRCA 1 and Ovarian cancer
Hi- I posted on breast cancer discussion board too...not sure where this belongs! I am a 50 year old surviving 1 year from stage 4 ovarian cancer. Recently, I was tested for the BRCA 1 & 2 gene. I am positive for BRCA 1. Both my oncologist and internist want me to begin tamoxifen. Unfortuantely, I am one of those patients…
What happens now?
My step mother had surgery today for an intestinal blockage. In February 2008, she was diagnosed with ovarian cancer, had surgery and finished Chemo in August 2008. About a month ago, she went into the hospital with severe stomach pain and vomiting. The doctor that did her original surgery, did all kinds of tests and said…
CA125 up again
Hi ladies, Today I saw my oncologist for my pre chemo meeting, he told me that my CA125 has gone up for the 3rd straight month. He feels that the Topo has stopped working the way it had, and it's time to switch to a new chemo combination of Gemzar and Avastin. I'll be having a CT scan on May 26th, but he said that even if…
Genetic Counselor
Update................. Finally I met with a genetic counselor. My sister who is also BRACA 2 went with me. It was a very informative appointment. Since we both have had hysterectomies (mine b/c of the cancer and Karen by choice) our percentage has dropped from 87% to 40% of getting breast cancer because of the mutation.…
ginger for nausea
Hi everyone, I just heard a news report that stated that ginger caps (with real ginger) taken 3 days before chemo can bring down nausea. I have extreme nausea after cisplatin/gemzar for 4 days, throwing up every two hours. The steriods and anti-nausea don't seem to work and I have tried alternates for both of those. (One…
Any one use alimpta?
I will be starting on Monday to use alimpta. Comments, discussion? I'd love to hear your thoughts.
Farah Fawcett
Hi Ladies, Tonight on NBC TV they're showing a documentary of Farah Fawcett's journey with her cancer. I hope I got this right from the reports, but she went to Germany to have a treatment where the chemo was delivered through an artery, to the cancerous organ and directly received the chemo drug. The person reporting said…
Hi ladies
My daughter-in-law found this site and told me about it. I'm so glad to have contact with other women with the same cancer. I wasn't diagnosed until I was a stage 4. I wish I would have been more persistant with my doctor. I look forward to communicating with all of you and getting and giving support.
A Difficult Question
Hello Ladies, I just read a disturbing post on another forum. The poster says,"All of us at stage 3 or 4 are going to die eventually from this disease." I am not a big statistics fan, but I thought there were a few lucky ones who were acually cured, not just surviving from one chemo to the next. I don't mean to be…
Hello
Hello all. So nice to find a support group online. I'm making my way around so I hope I post in the correct places! I have OVCA and have just finished #5 carbo/tax but will begin something new on Monday as this last is not working to keep the fluid out of my lungs. We shall see. I am hopeful. My gratitude? I have…
for B.Strange
Email me at reinierconst@aol.com. I have something to tell you..I did not know how else to get hold of you. Thanks. Smiles RASUNSHINE
NEW CHEMO
I finished my 3rd round of chemo on April 6th, had a CT scan on April 13th. The scan showed that I have a Liver Dome Lesion that is enlarging. My ONC wants to put me back on Chemo starting June 1st. My old Chemo was Abraxane, the new is Doxil. I am stage 4 ovarian cancer. I was wongering is anyone had been on Doxil. The…
Profile page
Hi, I don't want to seem dopey already, but how do I fill out my profile page? Jane
Still not pregnant
Hi; I am a 40yr. who has never gotten pregnant. I had a childhood accident by falling on monkey bars private area hit first.( I was 6) an remembering asking the doctor and my mom, if I was ever going to have kids.No answer, time moves on and I had cancer of the cervex at 16, doctor froze it, scraped it out. Then in my 30's…
good news about my mom!
hi ladies-just wanted to share some good news about my mom who was diagnosed with stage 4 metastasized to her liver on mar. 24 (my birthday )-:) she has finished her first round of carbo/taxol and her ca125 went from 4000 to 302! i almost fell off my chair! she is feeling pretty good except for constipation issues. not…
New Member
Hi Ladies, I'm a new member to this board, I need your support and help as I go throught this horrible journey, with all of you. I was diagnosed in 2007 and have pretty much been on chemo since then, with only a 3-4 month remission, Optimal debulking surgery, I was staged 4B, grade 3 epithelial OVCA which had metastasized…
Great news!
Hi Everyone, I'm home from my surgery, and everything went great! My cyst turned out to be just that. Apparantly my original surgeon (not a gyno onc.)missed a piece of my ovary when he removed the cancer. My body decided that it didn't like that piece and sealed it off in a cyst. My new surgeon (who is a gyno onc - thanks…
Are any of you ladies from wny or nwpa?
Just wondered.
First Round of Chemo behind me
I had my first round of chemo this week. What a week it's been. I was supposed to have taxol on Monday through my ip port and it went okay. Had a reaction to the benadryl-restless feeling-but they counteracted with meds. Then I had sharp back pains and arm pains with the chemo, but they handled that well also. Tuesday-I…
Happy Mother's Day
To all of my fellow Warriors who also happen to be mothers. My sincere hope is that this Mother's Day brings you much love and happiness. As mothers,we realize that every day is Mother's Day but just on this Sunday I hope your children remind you just how special you are. You are strong, loving and very deserving of all…
Out of hospital
I came home yesterday, Not well, but no worse either. Medicare days, I expect. Will see my gyn/onc on Wed. Then the surgeon again on Thurs. On oral antibiotics until then. I am taking it easy. Won't post much I reckon...Saundra
Dr Appt today
It's me again :-) I already know my ca125 is up and now today go to the clinic and see what doc thinks. I had a ct-scan so we will have them results too. I think he will want to switch chemos but I need to take at least a month off so I can fix a tooth that is giving me pain. On the nexavar no surgery or dental work so I…

Ovarian Cancer

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