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Lymphoma (Hodgkin and Non-Hodgkin)

Archives for April 2014

I started a nlphl blog.
Since there seems to be no way to add pictures and csn technical assistance seems nonexistance, I just wanted you wonderful people to know I started a blog at www.olympiajeff148.blogspot.com I think pictures make things much more personal. I will be trying to make a post each week with a picture, and my experience that…
Day -7 through Day 0
Howdy! I'm keeping this short but obviously my stem cell transplant has started. Day -7 through Day -2 was filled with high dose chemo. I am told I experienced worse than most because I'm coming right in from another chemo. Lucky me. Most of the issues were just diarrehea and overwhelming fatigue. Day -1 was 'flush day'.…
Packed up and ready to move!
Hi Guys, Well...after tomorrow afternoon/early evening, my internet, phone and cable will be disconnected, so I'll be unable to participate in the group. However...our service at the new house in Oregon will be installed and up and running by late afternoon Saturday, so it will be a brief shutdown period. "yeah"! I'm so…
Latest Pet Scan
We got our end of chemo pet scan today :( My husband finished his 6 rounds of ABVD on Monday, April 7th. He got his PET scan Thursday and we received the results today. His cancer has gotten worse and the fluid has begun to fill around his lungs again. He has done such an awesome job and he looks wonderful. The doctor said…
First Chemo This Thursday (May 1)...Any Advice
I have my first chemo treatment of ABVD-R this Thursday. Any tips for the 8 hours I have to sit there. Should I bring snacks? Should I take constipation or nausea medication this week? Should I fatten up this week with lots of ice cream (while still eating healthy)? Should I take the nice sunny days off? I want to hear…
Rituxan Maintenance #7
You would think I could take this all in stride by now. I am doing well. I feel good. Strangers around me would never know. Those who do know think it is all over, that it doesn't matter any more. My hair is back. I am walking just fine. My appetite is great. My blood counts are normal again. I feel so blessed and happy.…
Am I An ABVD Failure?
As soon as I was diagnosed with Hodgkin's Lymphoma my oncologist (who had previously treated me for anal cancer) started me on a course of ABVD chemotherapy. The results have been disastrous. Aside from the expected side effects (hair loss and metal mouth) I began to waste away until my appetite disappeared, my weight…
Good news...finally!
Hi guys, My Oncologist said I do NOT have to start chemo for the chest and cheek tumors. It is non aggressive( at this time) so we are going with "watch and wait" for now. We will check the tumors every 3 months with a CT scan. My Blood work looked great, so we will also do follow up blood panels every three months. The…
Radiation
Has any one else had breathing problems after radiation? I have been in remission for 7 years now and this year my breathing has gotten worst. It affected me only some times before but it much more now. Like when I use cleaning products, doing my job at work, pulling heavy things with hand jack and other daily activities.…
Alexandra, how's the Parp going?
Thinking of you and hoping all is going well so far! Susan
Another New NLPHL Hopeful
I've been reading this forum for a few days now and am thankful for all the supportive and amazing people! I'm 48 and just diagnosed with NHPHL in the mesentery. I had two nodes taken out three weeks ago and the small one tested positive for folicular in situ and the large (3.5 cm) for NLPHL. I have no symptoms, just found…
CT Scan results....
Hi Guys, My CT Scan results came in the mail today. It showed an enlarged right paratracheal lymph node measuring 2.3 x 1.4 centimeters in size. Appearance is suspicious for recurrent lymphoma. So...basically this means, the cheek, eye and now the right paratracheal node in the chest wall is where the cancer is located. NO…
Fasten Your Seatbelts
So the original plan was for my brother to donate his stem cells on the 28th and 29th of this month. I would had started the high dose chemo part of the transplant on May 5th. Of course, things never go as planned with me. But wait...normally things get delayed...postponed...this time...they aren't! They decided to move…
Batting 2 for 2...
Hi Guys, Well...the biopsy results from the pea size lump in my right cheek came back yesterday and it also tested positive for Follicular NHL...60% infiltrated. Had my CT Scan yesterday morning of my pelvic, stomach, neck and head, but won't get the results until Friday or possibly Saturday. I have them mail me a copy. I…
MattButts - how ya doing?
Haven't heard from you in a few days. Just wanted you to know you're being thought of. Say "Hi"' if you get a chance and feel up to it. Hugs and positive thoughts, Jim
Hospital or in home hospice
Today is a bad day for mom, but she doesn't know. She's very disoriented today. UTI symptoms often mimic dementia I was told by her social worker this morning. I called her onc because of the possible UTI and to let her know my mom hasn't completed the course of antibiotics for the mastitis in her left breast. She says we…
Dry mouth since receving R-CHOP for Non-Hodgkin Lymphoma
My wife has an extreme case of dry mouth since starting R-CHOP treatment. She has received 6 of 8 treatments. The dry mouth has gotten so severe that there were deep cracks in the surface of her tongue and even in the inside of the cheeks. I am looking for any suggestions on what has worked for anyone else. She has tried…
Procrit
Has anyone taken it? I've read all the side effects and was hoping to get some personal feedback on effects and benefits. Thank you, Dez
Goodbye All
i am outta here. Wrong environment for a free thinking tolerant person.
Results from Eye Biopsy
Hi guys, Well...it isn't good. The report reads: Microscopic Diagnosis: Right Medial Conjunctival Mucosa Extensively Infiltrated By Malignant Lymphoma, B-cell type,Diffuse,Low Grade. Abnormal B-cell Population Consistant with B-cell Lymphoma of likely Follicle Center Origin. Stains reveal strong expression of CD79a, CD20,…
Question regarding two lymph nodes one behind ear and another in the right groin
Hi all, im not a cancer surviver but I am just wondering about a few things regarding my lymph nodes that are swollen any help would be appreciated. about 3 years ago I went through a cancer scare when I was having drenching night sweats and fatigue constantly sleeping and not feeling great. The doctors did a biopsy on an…
My two cents
Most of you know me and I rarely get on a soap box about anything. I try to be supportive and humorous when I can. Recent events and posts (some removed) and DRAMA have weighed heavily on my mind and I have to speak. We are all victims of cancer. To me, the purpose of this site is to provide positive support and caring for…
I have a question
Has anyone here with non hodgkins lymphoma ever get bruising for no apparent reason, no pain no lumps and you know you havent hit anything or bumped into anything?
lymphoma plus heart surgery
Hello folks: Have not been here for awhile since I have been recently trying to survive heart surgery, which took place on January 21. Mitral valve replacement and aortic valve replacement, 6 hour operation. Finished two years of Rituxin infusions before the surgery, and the oncologist said that things look very good, but…
$400.00......down the hatch
Bill's pills came today. They rushed delivery by UPS. The drug company called yesterday from MI and told us our portion would be $2000 plus and $500/mo after that. Bill and I both thought at the same time, we have to call Xia, the financial wizard at our cancer center. She said they weren't supposed to call us until they…
Shoopy Latest
It's been a while since I've given everyone an update on my situation. For the newbies...a short recap: Dx as Diffused Large B-Cell Lymphoma (Activated B-Cell) in May 2013. After 2 cycles of R-CHOP, it was determined that I was refractory. My cancer is not only extremely aggressive but also chemo resistent. I then went…
Biopsy completed..
Hi guys, Well...the biopsy went great...no pain and no patch! My eye is still blurry and a bit irritated, but Dr. said it will start to clear up as the day progresses. Now we do the "waiting" game for the pathology report..UGH! I will share back as soon as I hear anything. Hope everyone has a good week. Love to all...Sue…
News
Hi all, just wanted to say hi and to let you know that I am still reading the posts but have little time to reply. My newest granddaughter has arrived and I have been spending all my time at my daughters home helping her and the baby. She lives a few towns away so lots of driving for me. I adore all my grandchildren and…
Oncology visit today
Hi Everyone, I have FNHL stage 4 and have been in remission 5 years in December 23,2014 Had my blood work done today and my wbc was 3.6 and my platelets dropped from 171 3 months ago to 126. Matter of fact all my levels dropped some. Wondering what it might mean. The oncologist did not seem too worried. But I am so darn…

Lymphoma (Hodgkin and Non-Hodgkin)

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