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Lymphoma (Hodgkin and Non-Hodgkin)

Archives for August 2011

My experience with Watch and Wait
I was DX in June 2011 with fNHL stage III grade 1. My onc wants to watch and wait. I go back in October for my first recheck. The loss of sleep was making me miserable. I took Ambian for a month so that I could sleep but soon found that it made me very depressed. It took me four nights to get off of the sleeping pill, but…
CancerCare Connect® Education Workshop, Update on Lymphoma
CancerCare Connect® Education Workshop, Update on Lymphoma from the 2011 American Society of Clinical Oncology (ASCO) Annual Meeting, which will take place on Tuesday, August 23rd, from 1:30 to 2:30 pm Eastern Time. Workshop Topics Overview of Lymphoma Current Treatment Options New Research Presented at ASCO…
Lymphoma Workshop in Minneapolis
My family and I are attending Lymphoma Workshop: Understanding Lymphoma Basics and Current Treatment Options patient forum in Bloomington, MN on Saturday, October 29, 2011. we'll take notes and give an update later. Hugs Janelle =)
new here, diagnoised with aggresive non hogkins lymphoma large b- cell
Hi i am new, diagnosed with b cell last month. to make a long story short, my abdomen started hurting with diarrhea. thought i had flu, after a few weeks went to er, they found nothing, called a surgeon he ordered test, didnt make it to day of test, went to different er and found a tumor with an intussumption, had er…
Ct Scan
Hi Everyone , I do my cat scan on Friday and we will see after that. I get all nervous days before that. But I always did. I guess sometimes when you are not feeling the best, your mind runs away with you.I suppose you think after Zevalin you think nothing will ever happen again. Have some issues when I go back to the…
chemo and low blood counts
I have been sick for 5 or 6 days, I finaly went to see my prc and while I was there, I asked for a copy of the pet scan results, my onc had said he wanted to keep an eye on a lymphnode on the right side of the groin area, I always freeze when I go to the cancer center, so I did't ask why, or for a copy of the results. I…
CAT WINK
Where have you been? How are things going? I saw you had posted and I had to check the date to be sure I was on the right year.LOL. Get back to me. John(FNHL-1-4A-5/10)
PCNS Lymphoma
I was discovered to have this ugly disease. I am only 24, no AIDS, never smoke or alcoholic. 7 tumars are in my brain. The biggest one is 3cm. Now I finished first chemo with MTX and then cytarabine. I know most people with this cancer can survive several years, but when it comes back, it took their lives. Is there any…
a;;ergic reaction to rituxion
Hello, I don't have cancer but my brother was diagnosed in March . And he has started his therapy with Rituxion but he is having severe reactions to the drug. He breaks out in hives, His throat closes up and he has severe joint pain and back pain. Then they have to stop the drip and give him benadryl and steriods. I was…
exhaustion
I think this is my first post here. I am 38. I was diagnosed with diffuse large b cell lymphoma in 12/09. I did 6 rnds of RCHOP followed by 22 rnds of radiation. My biggest struggle is the fatigue. It isn't even fatigue,it is downright exhuastion. I have been out of treatment for a year. Was I naive to think I should be…
Pain following Radiation for MALT Lymphoma
Is anyone experiencing stomach cramping and bloating after completing radiation therapy for MALT lymphoma? I completed radiation at the end of March. All followup and second opinion testing were in normal range. Doctors do not have an answer. What are you doing to help with pain?
Pain following Radiation for MALT Lymphoma
Is anyone experiencing stomach cramping and bloating after completing radiation therapy for MALT lymphoma? I completed radiation at the end of March. All followup and second opinion testing were in normal range. Doctors do not have an answer. What are you doing to help with pain?
Pain following Radiation for MALT Lymphoma
Is anyone experiencing stomach cramping and bloating after completing radiation therapy for MALT lymphoma? I completed radiation at the end of March. All followup and second opinion testing were in normal range. Doctors do not have an answer. What are you doing to help with pain?
Pain following Radiation for MALT Lymphoma
Is anyone experiencing stomach cramping and bloating after completing radiation therapy for MALT lymphoma? I completed radiation at the end of March. All followup and second opinion testing were in normal range. Doctors do not have an answer. What are you doing to help with pain?
Husband was just diagnosed...
My husband was diagnosed on Aug 12 with Hodgkin's Lymphoma...he goes in Monday for a PET scan to stage it. I have no idea what to expect after this...he had two masses in his neck that have already been removed. So what will this mean now?
Curious about the future
So as I approach my year anniversary of being diagnosed with Non Hodgkins Diffused Large B Cell, I wonder if I will ever go back to being normal. I have been in remission for about 5 months now, and so far so good. I just have a lot of questions now and I figured who better to ask then my new found friends :) My biggest…
Difficult times
Hi All, Well, I thought being home was and would be the greatest thing. But I find myself feeling afraid and somewhat lost. I know it has to due with the change of venue and change of time and probably even the change in the weather. I am trying to be strong for myself and everyone. It's hard. I am very tired, but not…
Slow growing kind, no treatment offered, in my spleen
Any body have this? Are you getting any treatment? How fast is it spreading? Are you ok?
Lymphoma workshop in Seattle...
Hi guys... I just registered to attend the LRF(Lymphoma Research Foundation) workshop in Seattle Washington on Sept 24. It's being held at the downtown Seattle Sheraton Hotel from 8:00 a.m to 2:00 p.m. I booked my room at the Sheraton for the night before and I'm super excited to attend. I decided to go all out, so I…
Diagnosed last April with Low Grade B NHL
Hello everyone! My ex-husband is a workaholic, works very long hour in including weekends and holidays. Last December he had pneumonia, his symptoms were tiredness, fever, difficult breathing and swelling. He lost lots of weight that he blames on not eating. The pneumonia subsided, but continue to be tired and a gland…
Reynaud's Phenomenon
Hi All - A couple of months after ending my chemo (ABVD) my hands started to get really cold at work and my fingers would turn numb. I dismissed this as each occurrence would end fairly quickly. Over the next couple of weeks it continued, and my fingers would turn white, then blue/purple and be completely number. I had a…
My own 20 year anniversary. Hope for others and the future!
I'm new to this site as well as support systems all together. I've replied to a few postings but just figured out how to make my own. I just thought I'd give some hope to people currently going through cancer, specifically Hodgkin's as I just hit 20 years of being cancer free and surviving a bone marrow transplant! It…
Garden photos
Hi All, I was able to post a few photos of my new garden. I am so happy with the way it turned out. I designed the whole thing, including the rock wall planters. I wish you could all come and enjoy the peaceful feeling in my garden.. Lisha The photos are on my expression page
So how likely is r-cvp to work the first time around? Do I really need to do Rituxim afterward?
Hey all, I'm Kim and new to this site. Basic info. about me. I am 40 and was diagnosed with stage 4 indolent non-hodgkins b-cell folicular lymphoma. It was found in my Lung, a verdebra in my spine, a spot on my back, and a little in my arm (as far as the larger amounts). I had radiation for the one on my spine before chemo…
Finally Home !!
Hi All, I am finally home. It's been way to long and I really miss you all. I started to read a few posts, but got so tired, that I am now just starting to read again. First I want you to know that when I arrived, I wanted to let you know, but I screwed up my laptop. I have no idea what I did, but it does not work at all.…
Should I seek second opinion?
I am a 60 year old female and I have fNHL Stage III, no bone marrow involved, no symptoms that I am sure of--I do have hot flashes all the time but not at night and I have tenderness under arms. I got the DX in June 2011 after enlarged lymph node in neck was removed. After PET scans and CT's I was told it is in both sides…
First day...
Hi guys, Well...wish me luck...today is my first day to babysit Lizzy all day while her mom is at work. She got here at 6:45 with a big smile on her face, and was greeted by gramma with an even "BIGGER" smile on her face...ha! Hope you all have a good week...Love...Sue (FNHL-2-3a-6/10)
a few things...
Hi all, I haven't been around for past 3 weeks as I've been lurking on the lung cancer page. Dad (who's 83) has been diagnosed with advanced stage non small cell lung cancer. His Onc has indicated he has 2 choices...chemo to prolong his life to 12 - 24 month or nothing at all aka hospice. Dad's been wavering back and forth…
To scared to do my Chemo.....
I was scheduled to do my Chemo last Friday and i was admitted to the hospital to do my first round of R-CHOP. I was to scared to go through with the Chemo and ended up telling my Dr i was not going to do it.. I know i have to do it but i am so scared and i feel really bad for not doing it, i feel like a coward. How does…
"Post Prednisone Porky" :)
I've been bouncing off the walls coming down off the prednisone. Been eating like "Porky" too... Hope you get a chuckle out of this... http://www.youtube.com/watch?v=_R4FM_O33-o Anyone else feel like this post chemo? Hugs and strength to everyone...

Lymphoma (Hodgkin and Non-Hodgkin)

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