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Cat Scan results
Just went to the Oncologist on Friday and got my cat scan Results. All is good so he says. But when I left the office I asked for a cat scan result. She did make one and gave me a copy. Once I got home I read it and was surprised to see a comment on my Chest scan that Quote- Tiny Nodule in left lung base is unchanged. Well…
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Long Term Effects of Mantle Radiation for Hodgkins Disease - Dropped Head Syndrome
I've read about a number of people experiencing neck and shoulder pain along with dropped head syndrome as long term effects of Hodgkin's Disease. I have experienced these symptoms for over a year and my doctor believes these are effects of radiation. I was treated 18 years ago and have basically been healthy. I am…
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good news
I went to court today, and when the judge ask why i needed to modify chid support and i explained that the electric co. has just recieved two raises and food prices have really raised, he did'nt let me finish but looked at my ex-husband and ordered the raise that child support had calculated. I guess i am stroger than i…
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A Life Saving Tip From My Grand Mother
A Life Saving Tip From My Grandmother (A True Story) I was 28 and half years old in Sept.1983. Now suffering almost 12 months with pain in my chest, I have had 5 doctors and one Internal Medicine Doctor tell me not to worry; it was chostrochondritis an inflammation of the breast bone. In pain so bad at times I wished I…
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Follow up appointment tomorrow
Hi all, I have my 2 month follow up appt tomorrow with my oncologist. Very important appt since I am truly praying that we can safely postpone treatment another 2 months so that I can fully enjoy my daughter's wedding in October. I am getting very anxious about the appointment since the doc wanted to treat 2 months ago and…
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DRS APPOINTMENTi
I don't see my onc untill november 7, this has me worried, how slow is slow is slow growing. it was prc that wanted the biospy done, i am really worried that its to long and something may happen. blessings denise
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A Must read
A man in my cancer support group gave me this book this morning at church. I think it is amazing. Outsmart your Cancer By Tanya Harter Pierce
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NHL, Indolent Follicular--Brand new diagnosis--
I'm 67, diagnosis 8/22/2011; Grade 1, I think Stage 3 --to start chemotherapy Bendamustine/Rituxan 8/31--It has been a whirlwind month--doctors were superb and communicative-- Faith in the Lord will see me through, along with being prepared as much as I can prior to starting the Chemo-- Any suggestions to prepare and hope…
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Why?
I think I've said that about a million times throughout the day. Today I lost my husband, my best friend, and my lover. Our battle began just last year when he nearly left us then He just turned 48 on Monday. Happy Birthday baby, I love you. I feel so empty or numb. I try to keep face for our children (aged 15, 13 and 3).…
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Worried and alone
Hi All, Just feeling lonley and worried tonight. Hubby has gone to stay at our daughters home. She is fighting a bad pneumonia in both lungs. Her boyfried has been caring for her, but had to go out of town for the night and tomorrow. I so wanted to go and be with her. But the risk to me was to high. Makes me feel like such…
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Tired Question
I have a question about tiredness. I see a lot of people do not have the energy they used to have before chemo. I was there as well. Now it seems its my eyes that feel tired all the time. My energy is not 100% by any means,but I still can go 16-17 hours a day without really having to stop and rest. Its not as easy as it…
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Tired Question
I have a question about tiredness. I see a lot of people do not have the energy they used to have before chemo. I was there as well. Now it seems its my eyes that feel tired all the time. My energy is not 100% by any means,but I still can go 16-17 hours a day without really having to stop and rest. Its not as easy as it…
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Clean Scan
Hi All - I got my first PET/CT scan since the end of all of my HL treatment (6 cycles ABVD, 20x Rads) and it is clean! Because my mass was so big and bulky I was really prepared for the worst! Of course I'll be back in 3 months and my anxiety will be off the charts again, but its good news! Cheers!
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New Here with Follicular
Hello everyone, Heres my story....I'm 42 married with 4 Children, they are my life. Everything I do revolves around all of them one way or another. I was recently diagnosed with Follicular Non-Hodgkins Lymphoma (A) Stage (3) Grade 1.5.. this all started on Memorial Day Weeekend with a lump right above my left clavical. A…
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Check in!
Hello to all. Just wanted to do a quick check in and send positive thoughts and prayers to each of you. I am good and still remain busy. Got our youngest off to college on Monday,well she'll be living at home,but it was still a lot of work and the usual mass confusion! Take care all. Mary
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biopsy
i had a phone call today for an apointment to have the node on the right side of my groin area that is maligment, what i don,t understand is why since we know its follicular nhl.Anyone have an anwser,i am so afraid i won't make it this time,because i almost did,t make it thru my last time. blessings denise
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Fatigue
Hi All, I think that I am on the way to feeling better. I woke up today, and felt a little energy and still feel pretty good. Have not felt that in a long time. Usually I wake up and feel so tired, then get a little burst mid day, then tired again and sometimes a little late in the evening. Today just feels different. I…
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Bluerose
What was that new avatar you had with your name. It was interesting though. Sorta reminded me of the universe.I just clicked on and I see you changed it back to the bluerose.I couldn't figure it out. John
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Isolation and anxiety
Hi, I just joined this forum, looking to hear how other people live with uncertainty. I was diagnosed with low grade stage one nhl in April, 2011, one enlarged inguinal node removed, followed by radiation to the groin in June/July. I was very sick from the radiation, but docs maintain that my reaction is uncommon. I'm very…
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I´m from Brazil loking for pet scan in las vegas someone could help me?
My name is Leonardo Almeida and my father was diagnosed with hodgkins lymphoma at about one year ago, he made a chemotherapy treatment, and according to the doctors, it is in complete remission. we're going to Las Vegas and we'll be in town between 6 and 15 September, we would like if possible, someone who showed us a…
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Chemo treatment on hold
We just got back from our vacation to beautiful Kauai with our 3 teenage grandchildren (17, 16 and 13). Since my husband was in between chemo treatments we thought this would be a good time to take a summer vacation. He was feeling good and wasn’t due for chemo until we got back from our vacation. We were all planning to…
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Thinking of you, Sue
Hi Sue, I just wanted to say that I am thinking of you today. Hope all goes well for you. I am sure you will let us know how your feeling, when you are able. Keep smiling. Love, Lisha
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Antiplastic Large Cell Lymphoma, Breast implant related
Looking for anyone that has had, or been diagnosed with this particular type of ALCL. It only affects people who have had silicone or saline implants. FDA issued new warning in Jan 2011 of the possibility of ALCL and breast implants. Desperately need someone to contact me. Just recived this diagnosis. Thanks....
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Antiplastic Large Cell Lymphoma, Breast implant related
Looking for anyone that has had, or been diagnosed with this particular type of ALCL. It only affects people who have had silicone or saline implants. FDA issued new warning in Jan 2011 of the possibility of ALCL and breast implants. Desperately need someone to contact me. Just recived this diagnosis. Thanks....
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Cat Scan
I want to thank you all for the encouraging words. I pray for all of you on this board. The waiting really stinks for sure. But have no choice. I understand the pred, It really was no fun but we just have to look at it that is really helps us. Hope you you all feel pretty well. I will be praying for us all. Hope your…
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Painful intercourse after NON HD chemo treatment
I am 23, I was diagnosed with non hodgkin lymphoma 3 years ago...i am currently all good, all is well. however, now having sex with my husband is very painful, it's like being a virgin all over again, actually worse than i remember losing my virginity. i have tried a few over the counter medications and i only found one…
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Cat Scan
I want to thank you all for the really nice replies. I appreciate them so very much. I always include everyone in my prayers from this board. Now just comes the waiting time. That is always nerve wracking. But I dont see any problems. I just have not felt the best but contribute that to getting older and other problems.…
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this goes with my previous part
i forgot to put this with my prevois post. my docter is not having me back until november7 i am really scared that maby it will be a lot worse by then denise.
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thrush again
hi everyone, i have thrush again i was afraid that would happen again if i started,, taking antibiotics, thats why i took so long going to the doctor, because harsh is hard on the imune system. I feel like if i have to take chemo again, i won' make it because ifeel so week and wobbly. i feel ifs darned if do and darned if…
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checking in
Hey guy's just checking in, had my blood checked today along with my port flush, got to say I'm feel kinda bummed. My white counts where in the 4.0 range for a while , today it was 3.0 which is out of normal range, my Oncologist feels that it's OK. I have been soooo fatigued lately, that little voice starts to creep back…