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Lymphoma (Hodgkin and Non-Hodgkin)

Archives for January 2011

Low Energy and sleepless nights
Hi Everyone: I have done the Zevalin in December 23,09, So last December was a year. I still am tired and my blood work has not totally recovered yet. I seem to not sleep at night anymore. I have very bad nights. Never in my life had a sleep problem. Plus have muscle pains I can not lay on either side of my hips and upper…
Milk Thistle or other herbs??
Soo after being medicated for months and months, I've been worried about the effects the chemotherapy and pain medications have had on my liver and kidneys. I know I shouldnt worry but they still have me on pain medication regimen for avascular necrosis and carpal tunnel from the chemo. Has anyone had any experience with…
Zevalin
I understand that there are currently trials going on testing Zevalin for aggressive lymphomas, DLBC. Has anyone heard anything or know anything on these trials? I know when I finished my RCHOP I really wanted to do something that would boost my chances of not relapsing with my agressive lymphoma. Last year the answer was…
Hepatosplenic Tcell Non Hodkins Lymphoma
We had this topic previously and it is no longer out here and several people connected and we helped each other out. I am curious to know what happened?
Dixigirl and Hair
Beth, I just wanted to know if you have let your hair grow from the super short do you had during the summer. I'm lucky that I can keep it short as our winters are very mild here in Northern California. Mine is still really short, 1/4" on back and sides and 1/2" on top. I love it as it suites my face and frame. And I don't…
Requesting for info on treatment of aggressive DLBCL
My brother was diagnosed with mediastinal dlbcl stage 4b on Jan 19, 2011. Its spread to kidney, liver and bones. He's 27 years old, and has the aggressive form. He just finished his first course of r-epoch, but his vomitting cannot be controlled. He can't keep anything down, including pills. He's constipated as well. An…
Favorites - Movies and Books
Hi All, I was curious to know what some of your favorite movies and books are. Two of my favorite oldies are The Abyss and True Lies, Newer movie would be Up Any book about a dog, The Art of Racing in the Rain, Marley and Me Lisha PS I know that this is not cancer related, but thought I would ask..
George and Zevalin
George - you wrote in November on my post about Treanda/Bendamustine chemo after using it you had a Zevalin shot (radioimmmunotherapy). Believe it brought a quick remission and just wondering how you're doing a few months later? Thanks - Fran
Thanks
Thanks for all of your caring comments. I was just diagnosed in Dec. (2010) with non-Hodgkin's lymphoma (large cell diffuse) I believe that's it! It's all still new to me. The first round of chemo wiped me out. In fact, I was to begin Round #2 last week, and the Dr. thought I hadn't recovered enough from Round #1, so they…
Just back from Mayo
After an extremely long day I am happy to report that the CT scan was clear. Whew!!!! I feel like 1000lbs has been lifted from my shoulders. Thank you Sue and Lisha for asking, made me a little teary. I don't have to go back for 6 months unless something comes up. My doctor discussed with me at length the great amount of…
living with little energy
I was in CSN when I was in tx for hodgkins lymphoma. I am in remission for 4 years now and feel well except i am very tired still. Are you like this?
I'm new.
Just found this site and wondering how it works! I have had my first round of REPOCH and go back for the second one this Tuesday. Am not pleased with being in the hospital for 5 days at a time, but guess it's OK if that's what it takes!
My sister has been diagnosed with Hodgkin Lymphoma
My sister is getting her first dose of chemo on Monday and I am a nervous wreck. I am sooo worried. Any advice?
follicular lymphoma in my thyroid.
Hi everyone I am new to this site,I was just wondering how many have had this, My doc's said it was rare for this to happen.I had this in 2008.
clear
Well no activity noted on my PET Scan, worry free, for three more months!!!!! LOL
Just wondering...
Hi guys, Do any of you ever think.."whats the point?" I've caught myself saying this more than once over the last few months. Like...whats the point of thinking long range...like how to spend the golden years...you know...future planning??? I'll drift off in my thinking about finding that little log cabin on the river, or…
Thinking of Mary...
Hi Mary, Well... your big day is here!!! I know you are glad the waiting is over....I know I am! It's amazing how antsy we get while waiting for others to get their scans done! I'll be thinking only positive good thoughts and praying for excellent results. Your so fortunate to get your results in the same day...don't…
Lisha, what's up?
Hey Lisha, Somewhere on one of the threads I read a little about your experience/results since you were at MD Anderson. I can't seem to find that post again. I am interested in what your experience was there at Anderson, but also, what did they do and what did they tell you about your disease? I do remember that your worst…
Shingles
Well went to see my onc this afternoon. I have shingles on the same arm as the lymphadema. Does it ever stop? I am miserable.
Hodgkin Recurrence within the same year?
Has anyone had a recurrence of hodkins within the same year they got treated? My doc says he seen a spot in my chest on the last PET scan just outside the area where I was treated in my lung. I hope its not Cancer at all but if it is I pray that its lymphoma again. I have another PET scan on February 6th and hopefully all…
Dr. Appt.....
Hi guys, Well...First off I want to wish John a big Happy Birthday wish..I hope you are having a perfectly wonderful day. The best I can give you from my doctors appt is...I'm stable. I got the S word instead of the R word..ha! My blood work was ok, a little low in some areas, but nothing to worry about at this time. I was…
Happy Birthday, John!
Happy 62nd birthday today - you're a babe - 6 years younger than me! Enjoy your buffet and have a happy day - Fran
Enlarged Sternocleidomastoid muscle in the neck
I've had NHL for 15 years. The last 10 years the left side of my neck, the Sternocleidomastoid muscle is getting bigger than the right side. I've had scans and nothing shows up. The doctor can not give me a reason why. It's for sure not a lymph node under the muscle pushing it up. It's the whole muscle. Can lymphoma effect…
I'm here....
Hey peeps... I'm here...been busy all day catching up on laundry,house cleaning and getting presentable for my doctors appt tomorrow. You know the drill...shave legs,paint finger and toe nails, wash hair,q-tip the ears,and scrub all those little hidden body area's "just in case"...he says strip and get up on the…
Sue?
Anybody heard from her yet?
January 25, 2011
I just wanted to say hi to everyone who is having doctors appoints on this day. I'm wishing Sue, Liz, Vinnie and anyone else a very positive day filled with good news. I hope I didn't forget anyone. If I did we will blame it on chemo brain. Sue, hope you hear very good news. Vinnie good luck on you scans. They are very…
Molecular level blood work
Hi All, I was wondering if any of you with either Mantle Cell or fNHL and are currently in remission are having your disease followed with Molecular level bloodwork. We can appear to be in remission based on our PETs and CTs with normal LDH but on a molecular level still have cancer. There is a blood test around on these 2…
You will all think I am new ageie but
find an accupunturist! I had accupunture and took chineese herbs starting with the 3 rd round of chemo (rchop) and guess what my blood counts went up and my energy went up and I don't know how I could have made it thru 8 rounds without it. Don't think its new agie It does work.
Mary and Vinny
So guys how have you been as far as progress? Is the tiredness still there as much? HOPEFULLY IT IS GETTING LESS AND LESS. I know you all have appts coming up,but the way we feel means so much as well. John(FNHL-1-4A-5/10)
Mailman came..
Hi Guys.. Well...The results of my CT scan show NO CHANGE in tumor size since my last scan on Oct 20th. The newest scan is identical to the Oct scan except now it shows..BOWEL: a few scattered diverticula of the sigmoid colon. This wasn't present in Oct,so it's a new finding. I looked up diverticula of the sigmoid colon…

Lymphoma (Hodgkin and Non-Hodgkin)

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