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Update
Hi All, Well, the sis in law has gone home to FL. Whew and yeah!! I feel like I can breathe a little better. I am so ready for my life to be back to "normal". I have been talking to MD Anderson, and they said that they did find some worrisom nodes in my neck and also the one in my mediastinum area. Some may be able to be…
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Snow, snow, snow and more snow....
Really wish good news piles up as fast as the snow is falling here. Took an hour and a half to drive home from work tonight. Have I said how much I appreciate my hubby? Just checking in on everyone. I know I am praying everyone's good news KEEPS COMING! Take care everyone, Beth
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Scan is done...
Well...the deed is done and now I wait! It drives me crazy that right now sitting at Valley Imaging is a piece of paper showing if I'm in remission. Aint it just crazy that we pay big bucks for our insurance and then have to sit and wait for results that could be read in a matter of minutes? Oh well..it is what it is! They…
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MRI scan
Hi All, Just got home from another scan. This one is for the shoulder that had surgery last May. I started having a lot more pain in Dec. but with all that ws going on, I didn't go to the doc till now. He is worried that I may have increased the tear in my labrum. I hope it's just irritated from all the lifting I did for…
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Big Day
Sue, I think the big day is tomorrow,right? I know the biggest day is on the 25th of Jan. Thats when the Doc will tell you that you are in remission. I know when I was getting my scan things like "I wonder what it sees as it goes down the body?" "I wonder if there is still anything in that area?" All kinds of stuff goes…
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Re-vaccinations after Stem Cell Transplant
Today is Monday,January 17, 2011 I was diagnosed with stage 4 MCL in July, 2009 and started chemo treatment shortly after--just before my 60th birthday (yes, we raised 3 sons...all on there own and my husband and I were looking forward to some fun adventures.) I had 6 rounds of mega-chemo (each time a week long stay in the…
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Up and Down
Hi All, Feeling like I am all over the place with my emotions. Sometimes I feel so strong and then it just crashes around me. I'm sure some of it has to do with the stress of the funeral and having the sis in law stay with us. But, other times I just start thinking about my future and start to get scared, I think? I have…
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Vertigo
I have been having vertigo a lot more frequent since my treatments ended. I have had it before because I also have Meneires Disease, but it has gotten so much worse. HAs anyone else experienced vertigo or dizziness since treatments. Another thing it has taken a toll on is my teeth, they were fine before treatment and now…
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MDS
Any of you know anything about MDS??
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I'm Back
Hi All, So sorry that it took me so long to update. You are all so wonderful and caring.. This week has been very hard and being away from home was so difficult. My daughter was a great help, but I wish Keith had been with me. I have arrived home to sadness and so much more. Tomorrow will be the funeral for Delores.…
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Any Bears fans???
If so...I hope you've stocked up on your "charmin"..it's gonna get messy! (Seahawks just love bear meat..makes em mean and strong!)Muawhaha!..evil laugh)! Love Sue
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No word from Lisha......
I'm rally starting to worry now...sure hope we hear something soon! Sue (FNHL-2-3A-6/10)
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Hello to all!
Just wanted to say hi to all and to let you know I am still around here. I guess I have been fairly wrapped up in worrying about my upcoming CT scan on the 28Th. I posted some about this on Vinny's last post. I follow all of you and think of you each day. I think I have scared myself silent but not to be confused with…
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Hows it going Lisha?
Hi Lisha, I know you are very busy with testing and seeing doctors, but just wanted you to know that I'm thinking of you every single day. I hope Keith is doing ok at home and I've been praying for ALL of you! Take care dear lady and check in when you get time. Much love...Sue (FNHL-2-3A-6/10)
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Posting Pictures
Hi Peeps, For those who asked I posted 2 pics of Neo on my expressions page. Really easy to do. Leslie
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onc visit
Hello everyone, I have my Onc visit tomorrow, you all know the drill, blood work, port flush. I also will be having my first PET scan scheduled...... dom dom dom!!!! a little nervious to say the least, because I have been feeling lousy the past week, mainly fatigued, I'm at work and I'm ready for bed by 9:00am, I start at…
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Help with diminished taste buds during ABVD
My 79 year old husband has stage 4 Hodgkins and just had his fourth ABVD chemo treatment. No food has any taste for him anymore....(well, except eggs). Can anyone suggest something that will help? This treatment will continue until the end of April His other meds to prevent nausea are Emend, Zofran, Compazine Thanks, Joyce…
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Wow! Wow! Wow!
Just got back from onc follow-up.......wait for it..... wait for it.... I AM IN REMISSION !!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! What a beautiful thing. So my dear, dear family. Thank you! I'm not going anywhere, I'm still staying with you all and I thank you for the love, prayers, support - all of it. You are…
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Neo continues
Just an update on my Neo the Cat, He started chemo for his small cell lymphoma last Thursday. It's really hard to give him these drugs that we know can make you feel like crap. But so far he is handling it really well. Just hope it works for him and buys him some time. He is being very sweet and loving. He goes in to see…
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Test Results
Hi all my peeps. I just love that it's just so dear. I just got home from UCSF a little bit ago, very tiring commute and day. Had a 10AM labs and 11AM doctor appt, didn't get out of there until after 1PM. By than I was totally spent. But well worth it as my ultra sound of my spleen was totally normal and this confirms my…
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Blood Counts
My father has Non-Hodgkin's Lymphoma. This is his 3rd relapse, and he was supposed to be admitted to Moffitt Cancer Center in Tampa on Thursday for 5 days of intensive chemo (Etoposide, Cisplatin, Cytarabine, and Ritual). The plan was to do a 5 day intensive now, one in February. If the PET scan in March then shows at…
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Sue- did you get final results?
Hi Sue, I know you had your last chemo on 12/14 and then after that you'd do the PETscan. I have been thinking of you and praying. I just came to this site after a month or so, been busy with my mom. I am wondering how things turned out. Roya
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Houston update-MIL update
Hi All, Thanks for all the well wishes and advice. I am safely in Houston with only minor problems getting here. Plane had a broken something in Dallas, but we are here as of 9 last night. My first appointment is at 10 tomorrow so I plan on arriving at 9. I was told to use the valet and that they/dr will validate it for…
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Can't stop crying
The week after I got my diagnosis in May, my dear friend and fellow board member of a local non profit was also diagnosed. I have NMZ NHL Stage iv. He had SMZ NHL. We called ourselves the Lymphoma twins and we emailed and talked constantly about how we would beat this together. He needed to get back on his bike next summer…
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update and questions
I forgot to mention, I go back in may 2011 for blood tests, no scans. The oncologist told me they can check the blood for any changes including bone marrow involvement. Never heard of that. The down side, I have other problems that took the joy out of my good news. The exact words were: There is mild patchy FDG around the…
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SLL (small lymphocytic lymphoma)
Hi- I have just been diagnosed with SLL and have been told it's best to wait and watch. Has anyone had experience with this NH lymphoma? Have you tried anything other than conventional treatments? I would especially love to hear long-term survival stories. I am young for this disease- 43- so I'm trying to understand how/if…
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Anybody know anything about Lymphadema?
I'm going to be referred to a clinic for it, and have no friggin clue what it is. Can anyone help me? Also, he told me to be careful with my left arm for scratches and stuff.....yeah right, 12 week old puppy with needles for teeth???? I almost laughed.
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Doc visit today whew!
Mammo was good. Blood work good. He's not overly concerned about the swelling, can't feel any discernable nodes. He's going to send to a lymphadema clinic about the swelling so that they can look at and teach me what to watch for and how to deal with it. Told me if it gets worse to call him and he may send me for a…
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remission or gone
Hello all, I saw my oncologist monday jan 3. She informed me the NHL is gone. The results of the pet scan I had on dec 29, 2010 was negative. 3rd scan that was negative. My small bowel perforated in sept 2009 from NHL. My small bowel was resected and most likely all cancer cells were removed. I then had only 4 weeks of…
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Roya - how's your Mom?
Hi Roya - your Mom must have had her second Treanda (Bendomustine) chemo now - thinking of her and wondering how it went? My 3rd is coming up next Monday and Tuesday. I have one week in the month I feel almost normal and book each day of that week to the nine's doing fun things with friends and hubby before chemo knocks me…