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Lymphoma (Hodgkin and Non-Hodgkin)

Archives for December 2010

Good News!
I had my 'biopsy' on tuesday, however when they went in to take a piece of what they thought was an enlarged lymph node, the surgeon discovered it was an abnormally enlarged salivary gland instead! I wish they could have told me that without surgery, but I guess that is what was needed. He felt it and examined it, but…
Following Rituxen
Hi, Had four infusions of Rituxen in Sept-Oct of this year for Stage IV NMZ NHL. No Remission yet. Have had repeated upper resp. infections, on antibiotics twice for them. NOW... I have C-diff, a nasty intestinal infection caused by compromized immune system and too many antibiotics! And even though I am on Flagyl (yet…
Need help, need guidance, need all of you
Hello Everyone - As I write this, I am broken-hearted. It feels like the world has been swallowed up whole, and the blackness floods my soul. I feel lost and so frightened. My husband was diagnosised with Stage II diffuse b-cell lymphoma in June of this year. We were told by his doctor that he had an 'excellent' chance for…
Paranoia
Crap. Here we go again. Paranoia setting in....had a drenching night sweat this week. Don't know what it is about this time of year, but for me seems to be NHL. I found swollen nodes Jan 5th originally in 2006. Thought it was back December 2006 (it was). Relapsed again Jan 2010. I sincerely hope I am simply reading into…
R-CHOP peeps
Hi All, Hope you all have a merry Christmas & are getting ready for the new year! Had a question for those of you that have had R-CHOP or are currently having it now. Did your side effects seem to get worse with each treatment? I know everyones reaction to chemo is different but I was curious to see if anyone's side…
Happy New Year
To my CSN family, have a healthy and happy New Year!!!!! Wishing you all Well Vinny
Quiet and Clean !
Hi All, Just want to send my love and support to all. I am now sitting in my quiet and clean home. Our youngest daughter(28) moved into her apt. and hubby gave me the gift of housecleaners. The cleaners just left and the only noise is Lola barking for me to give her some attention.. The sun is peeking through overcast…
Winter Storms
I just wanted to see how all my CSN family on the east coast are doing with all the winter white weather better known as snow. I hope all of you are warm, dry and most of all safe. Please check in when you can. Blessings, Leslie
Off for Rituxan
Well in just about 30 minutes I'm off to get another infusion of Rituxan, this time for my RA. I will be getting a much larger dose than for my cancer. I've done this so many times before for my NHL that it's old hat but today I'm nervous. It's going to be a long and I hope uneventful day. But I do want to say HI to all my…
Checkin my list...
Food is ready...check Pillows and blankies for the movie...check Oh...wait a minute! Whose that pretty happy face smiling back at me in the mirror? Why it's me..Sue! Thank you Mary Kaye! Now if the hair fairy would just pop in I'd be totally ready to get this show on the road! ho!ho!ho! Love you guys...Sue
Holiday Wishes
Hi All, Happy Holidays to all of my "new" family. Warmest wishes and peaceful healing, always.. Lisha
A Christmas Wish!
I just want to take a moment to wish all of my CSN family a heartfelt Merry Christmas! You mean so much to me. Thank you. Mary
Early Xmas present
Well,quite a few of us got an early Xmas present this year. We heard the magic word REMISSION. There are still a few more that will hear that same word in about a month. Then a few more that are working hard on it and their gift will be the same. All of you have really helped me thru this diagnoses that I got back in May…
Something Great on the Horizon
Okay, this is just what I heared on the radio news as I was driving home from Costco. According to the report, Stanford University scientists have just identified the gene in the cancer cells which will turn the cells on to our own immunsystem, allowing the immunsystem to kill the cell. No chemo, no radiation necessary. I…
Best Christmas Gift
Hi Y'All, Sorry that I have not had time to read the posts since I got back from Houston. But I wanted to let you all know that my onc at MD Anderson told us that I AM IN REMISSION!!!! He said that I still have several masses in various places, but that nothing is active. All I have to do is go down for full testing every…
You
Thank you all for being there night and day as we walk this journey together. There is NOTHING like having support from someone who has walked in your shoes. Thanks for sharing openly, listening without judgement and for giving me hope with your strong spirit when I had little. You are all wonderful and strong and my…
What's Happening
Hi Guys, Okay, the past 2 months have been not so wonderful. I had mentioned that my beloved brother in law passed away from cancer, and his memorial was 2 weeks ago. My sister is having a very difficult time. His birthday would have been Christmas Eve. Today is the anniversary of my other sister's death in 1997, always a…
Wishing everyone the very best!
Hi all, I havn't posted in some time now, alot has been happening and I will fill you in on another post. I wanted everyone to know that I think of you often and hope and pray that everything goes well for all my friends here on the CSN. Congrats to all who have completed there treatments. I know how long and difficult and…
Hey guys check this out
Hexavalent Chromium 6. Just found out its in the drinking water and the government knows it. They are going to check it out with a survey in a year or so. Its a very high cancer causing mineral. I checked it out on the puter. The levels are extremely high. They are getting ready to add Texas.Washington State is being…
Need help to cope...
Hi Everyone! The reason I'm writing is I'm looking for advice on how to help my mom deal with my stepfathers NHL diagnosis. Just to give you a background...here is the skinny on the situation.. My stepfather went into an urgent care clinic in March for lower back pain..the physician did an xray and he came home with a…
Radiation
Hello, I am new to CSN, and I could really use some support. I have hodgkins lymphoma. I was diagnosed about a month after I had my first baby. I am currently undergoing Chemo, I just finished #5 out of 12, so I am almost halfway done. At the end of my Chemo treatments I will have to undergo Radiation therapy. I am…
Coughing again
Hi all, I don't like to read long posts so I'll give some background and cut to the topic. Diagnosed June 2010 NHL-B 1st stage, 8lb lump in my chest and water under my lungs caused allot of coughing. I completed 6 R-CHOP chemo's and 20 radiations late November, about a month age. The lump was reduced and pet and cat scans…
Heart Racing??
Ok so I finished my chemo(ABVD) and radiation, it was all completed on 10-19-10. Since then was put on Darvocet 3 x daily for a month until the recall. Now I take hydrocodone 5's. Last night my heart started fluttering and then started racing for about an hour or so. Had me terrified. I've had heart problems ever since…
Has anyone else experienced continued pain after treatment?
Hello everyone, I was diagnosed with NHL small b-cell, 3A, grade 1. I have had the 4 weeks of treatment and now on every 2 months for 2 year plan. I am experiencing continued left groin, underarm, and chest pain (hard to breath). Sometimes all of this is barely tolerable even on Neurontin 900MG a day and Vicadin 500MG…
Here I am
Hi All, So very sorry for the long delay in responding to you. I read your posts, and cried. I am so touched that you worry about me. I feel like I have missed so much with all of you. Congrats to you Sue and Vinny. I have been so overwhelmed with life, that I hardley have time to look at my computer. Delores is still…
Non Hodgkins Diffused large B cell lymphoma
Hello, I am new to these boards and have been inspired by the stories of strong people on this forum. God bless you all. My mother was diagnosed yesterday with Non Hodgkins diffused large b cell lymphoma. Has anyone had any experience with this? What should we expect? What does chemo therapy entail? I am relieved in a…
To Donna
Hi Donna I just read your post regarding Thermophore. I have a very bad right knee. I did google, and found the site right away. My question, Is it the moist heating pad for about $68.00? I read everyone's post each day. I find the info on this site so helpful with my NHL. Thankfully, I am finding info on another problem I…
Micro fractures, anyone?
My DLBC went into remission in October following 6 rounds of R-CHOP. My largest tumor was in my lower back; into and around the spine. I've been going to physical therapy and haven't really gotten all that much relief. Darn those moist hot packs do feel great! Anyway, I saw a spinal specialist today, in hope that he could…
Visit with the Onc
Well saw the Dr today, well the PA. She says she will see me in 3 months after my next Pet Scan. No Retuxin for me.Yeah
Prepping for lymph node biopsy on Dec 28th
So, my surgery is right around the corner and I'm starting to get nervous! I know you guys are warriors in this sort of thing and have been through it all, so I'm coming to you for some support and encouragement since my imagination is getting the better of me. The surgeon talked with me about the risk of nerve damage…

Lymphoma (Hodgkin and Non-Hodgkin)

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