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Christmas Miracle!
It’s a Christmas Miracle!!!!! I went to my Onc.this morning for blood work, and she told me that upon further review, I don’t need the spinal tap!!!!!!!!!!!! She called my Doctor at Univ. of Penn. and told her that since I’m out of treatment and there was nothing in the spinal fluid, the treatment can do more harm then…
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Hi Y'All!
Hey, I just spent an hour writing a post in another thread (for Sue) and somehow it just disappeared. So this time I'm just going to start a new subject. Hey Sue, I read that your last chemo went well and that today you are expecting your pred to take hold. So, how has it been today? Just to let you know, after about 3…
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711TOM (George)
Hi George, I've been thinking about you and wondering how you are doing since your Zevalin. I think you had it early November which would put you about six weeks out. Have your counts bottomed out yet and how are you feeling? I'm just starting to get some energy back, but my counts are still in the low range. They come up…
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LISHA."WHERE YOU BE"
Lisha, Waiting to hear what is going on with you. Been thinking of you just as everyone else here has been doing. I know you have a lot on you right now,so when you get a chance give us a holler. Thinking positive thoughts for you. (JOHN-1-4A-5/10)
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Done with my Big Day with Scan Results and then My Chemo, Huh!
I had been anxious for 6 days waiting for the results of my scans til yesterday. Since my onc is out on vacation, his assist dr., Lisa who works closely with me talked with him before he left. Finally yesterday, Lisa immediately told me that all of my cancer is gone. I am dumbfounded and speechless. John wants me to show…
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Sue are you done?
I know I haven't been here for awhile....potty training puppy takes alot of time LOL. Damn, I forgot how much work the little buggers are between the sweet moments :) My poor arms seem to suffer regardless, needles from chemo, blood work, maintenance and puppy teeth! Oh how I wish for the day when bleeding is not so often…
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The last one for Sue YAHOO!!!!!!!!!!!!
Sue, I know the anticipation level is high and the energy level is low. but at least it is the last one. If you are like I was you will cross the finish line almost on your knees. 5 days of your favorite PRED. and then home free.(Be prepared for a couple of months of low energy with your body building itself back up,that…
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Not been on here in a while....
so thought i'd drop in and say hi... How is everyone doing? I hope all is well anyway. I will drop in from time to time but if anyone would like to say hi or ask me anything regarding my past diagnosis (or anything in general) please feel free to message me, as i get email alerts for my private messages so they will not go…
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Trying to get diagnosed
Thank you all for being so friendly on this board. I have read through many posts and you all seem so supportive. I will try to keep this short. About a year ago I noticed my left arm pit felt swollen and lumpy. I mentioned this to my gynecologist at the time but he didn't really even look. I ended up having some female…
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Cat Scan Results
Just want to let everyone know that my cat scan results were great. They put it like this that I am cancer free for now. I was so glad , and what a Christmas present. Who needs anything more. And I will be praying for everyone to get the same results on here. So for now I will cherish this. I wish you all a good Holiday.…
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Too funny!!!
Steve has been doing the laundry lately to keep me from going up and down the stairs from the laundry room. Anyways..I heard him in the bedroom opening and closing the drawers and then he popped his head into the living a few minutes ago and said he switched my bottle of Prednisone from my panty drawer to my sock drawer.…
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always something
Hey guy's, funny story, I'm at work and my Onc. calls me and tells me she is very sorry.... I'm thinking this can't be good....she proceedes to tell me that when I had my lumbar puncture, I should have received intrathecal chemotherapy.... ARE YOU KIDDING ME!!!!!!!! anyway, I have to go thru another lumbar puncture next…
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Rituxan
Hey Anybody out there have taken Rutixan as a maintenance drug? Have you any side effects? How long have you been in remission? Thanks Richard
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New to the site & needing advice
Hello all, New member here! My father was recently diagnosed with NHL-diffused large B cell. He's had 2 treatments of R-CHOP, so far with few side effects. The one that has been the most bothersome is the taste change, not so much with food, but with what he drinks. Its the normal metallic taste that goes along with alot…
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Cat Scan
In 3 weeks it will be one year since I did the Zevalin. So now last Wednesday I will do my second cat scan this year. I go tomorrow for my results. This is the first time they did not call me to let me know it is ok so I would not worry. Well I know I could have called them but really do not want to know sooner. So now I…
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5 dwn 1Ior 3 to go
hi guys its been tolong for me to be able to get on here and read everyones storys and positive comments to me and my daughter.Well i had cycle no 5 of my r-chop last wednesday so far all has been goin well just the ol energy levels are jus not there nemore and i broke out in these itchy little sores that drive me mad but…
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When will it end???
I got a clean Pet Scan and I am happy don't get me wrong. BUT and its a big one. When will all the $hit end???? My husband is like a 5 year old. He can take care of his bodily functions. Thank God, but he can't do the things he could before. Ok so I am officially a ****. My husband has gone thru 3 brain anurisms since…
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quick update
Hi All, I have missed you all and think only good and positive thoughts for all of you. I will be getting all the remaining tests done this week, Thurs and fri. MRI, BMB, US. My labs from last week are not so good. Still trying to work out a REAL plan, but it seems like MD Anderson is where I will be heading. I am stressed…
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Any survivors of follicular lymphoma out there
Hi Any survivors of follicular lymphoma and for how long? I was diagnosed last april and have since been in remission. Do the doctors know if they can retreat the disease if it relapses? Real life experiences mean more than what statics say. Thanks Richard
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Sue,are you there?
Sue, I haven't seen any post from you in the past couple of days. That either means you are taking a break or the chemo is dragging you down. If it is the chemo you will probably start feeling a little more strength in the last days just before your last session. You are going to have to take it easy though so you can…
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CT Scan
I'm 23 years old, and in August of this year I was diagnosed with Hodgkin's Lymphoma, after being sick for a year and a half. I've been doing really well since I've started my chemo, I have 8 done now, and 4 left to go (and I still have my hair). December 6th, I will be having my first CT scan since I've started my chemo,…
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Newbie
Hello everyone, I am new here and hope to learn from you all. My husband was diagnosed with B-cell lymphoma in July. He's been getting R-CHOP every 21 days, with 8 treatments. The last treatment will be on December 16th. Then we wait a couple of weeks to get a PET scan. After that, they may send him for daily radiation. We…
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Happy News!
My new grandbaby that is due to arrive in May is a boy! Josh called earlier with the news. Him and his wife didn't care what sex the baby would be and were just thrilled to see the baby moving. He said they watched him moving his little arms and legs and said it was just awesome. Anyways...just thought I'd share the good…
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Pet Scan
I got the results from my pet scan today. Its clear! When I see my Onc I will know all the poop, but this was good news.
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B-R or R-CHOP?? Help Please
Hi all, I joined a few days ago. My mom (65 yrs old) was diagnosed with NHL 3A for now stage 2 (the bone marrow flowcytomotry showed negative, but they will do an immunocytochemistry to make sure it is not there for sure, why didn't they do that in the first place? go figure! to torture us, I guess) They say it's a bit in…
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stress test
Hey everyone, just an update, I made it through the stress test, no major issue's! Kind of tired after the first day of work, but not unbearable! I keep on saying, working is a hell of a lot better then going through what we all experienced or are currently going through. Port flush in two weeks, wish I could just get rid…
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Sue are you awake
Sue are you awake, I am hoping you or anyone is still out there. I thought that I had it together today, but now that the house is quiet, well I am starting to break. Sitting here thinking about all the ca just living inside me. is very scary. The rational part of me understands that they are growing slow, but the…
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Noodle Kugel
Hi All, A few months back, I had mentioned that I had a receipe from my grandmother for noodle kugel. I found it last week. I have posted it on my expression page if anyone is interested. It is yummy, comfort food. Really good for a cold winter treat. Enjoy Lisha
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Please help - Is there truly a cure for people with high Ki-67 levels?
I am hoping someone can give me hope that my wonderful husband will be truly cured. He has Diffuse Large B-Cell Lymphoma, stage 2. His IPI is 1. He is 61 and is tolerating RCHOP well. We have one final treatment to go, just a week before Christmas. Our doctor says my husband has a good chance of a cure. A lifetime cure.…
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New day, New post
Hi All, Thank you all for the kind words and caring support. I really needed to hear/read that. I woke up feeling a lot less scared and a lot more angry. I think anger is much better that fear. I am ready to find the solutions. I know in my heart that I need to go elsewhere for tx. I will still get the bmb, us, mri at…