Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Head and Neck Cancer

Archives for September 2023

lower dose chemo for the elderly
Was just reading about lower dose for the elderly some say it has no effect on outcome and others say it does have a negative effect on outcome . Idont want to do anything to affect the outcome.
5 year anniversary
Just wanted to post an update on my health. September 20th was 5 years since I finished my treatment for HPV 16 tonsil cancer. I was stage 1 on the revised staging system. Was considered stage 4 the year b4 my treatment. The staging was changed for HPV 16 cases only. Anyway, I have not been on the site much since they…
Surgery, radiotherapy and a marathon
It’s been one year and three months since my last radiotherapy treatment, and yesterday I ran my first marathon. PART 1 Hi, my name is Simon. I’m 47 and was diagnosed with pT2N1 ORL cancer. I received the news on the 28th of February 2022. It was a sunny day. I was on my way to the bookstore with one of my daughters to buy…
tonsil cancer question, diagnosis and symptoms
I am sure you are all asked this many, many times, so I apologize if this is redundant. I have not been diagnosed, but currently taking all steps to figure out what is causing my tonsil pain. I had dysplasia on the roof of my mouth before, so not sure what is going on with my tonsil, but I have very localized pain (on my…
My son has MPNST, need info please
My 14 year old son has recently been diagnosed with MPNST. Neurofriboma runs in my family on my side. I have it as well, but I have never had a malignant tumor that large. His is located in his neck and upper chest area, about 4.5". It is pushing his trachea to the side slightly and has completely encased some major…
8 weeks post treatment “backsliding”
My husband is 8 weeks post treatment. Standard protocol for treatment, chemo and radiation. No feeding tube(but definitely should have). The last week of treatment and the following two weeks his palliative care doctor put him on morphine for the severe pain. He only used the morphine about 10 days. He was eating some…
Well meaning relatives
Just spent a week with a relative who proceeded to tell me, that there was no cure for my cancer .This was such a depressing conversation and I am struggling to shake it. She took away my hope and I told her so. She says she is just being real.
BLOOD PRESSURE INSTABILITY FROM RADIATION THERAPY FOR HEAD AND NECK CANCER
This covers baroreflex receptor and other problems related to radiation. this is an answer and information from Dr. Itzhak Brook MD. This is a question posed to Dr. Brook and his answer to it. The Question: Dr. Brook, thank you for sharing your article. I survived Stage IV throat cancer that started in my tonsil in 2014. I…
Unfortunately RADIATION TREATMENT Causes Short And Long Term Side Effects
Here is a communication and study I have come across from a Doctor, Dr. Itzhak Brook MD about radiation's short and long term side effects. There is a link that takes you to a Pdf. He has covered the subject of radiation effects very well and it is good information for our H&N group very interesting and well-covered.…
Please help my sister - Tonsil cancer and Covid
Hello all, My sister is 63 years of age and has been diagnosed with tonsil cancer more than 3 years ago. 1after radiation treatments, she can't eat any more and has to use the feeding tube since and the cancer is still with her. She recently got covid and getting weaker and weaker...All the nurses and emergency Dr sent her…
Recommendations for Pain Meds (non-narcotic)
Hello - I've found all your posts very helpful, and this is my first time posting. I have base of tonsil HPV+ SCC. I've had two surgeries, and I'm currently close to half-way through 35 radiation treatments (mix of proton and IMRT). No surprise, swallowing is starting to really hurt. I started Lyrica last week, but I don't…
Deleted - accidental duplicate
Deleted - accidental duplicate
!st Chemo Down
Had !st chemo treatment on Wed and it has been ruff. Joint pain , pain in my feet and my heart was doing flip flops yesterday but it stopped. I didnt think it was going to be so painful
Parotid Cancer survivor - regaining nerve function?
What experience have others had when it seems like the facial and neck nerves are beginning to function again after 47 years? Read my bio for the background.

Head and Neck Cancer

Discussion List