Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Head and Neck Cancer

Archives for June 2023

One Day Jaw Reconstruction Procedure & Dental Prosthetics Site W/ Video
Roswell Park Comprehensive Cancer Center is a cancer research and treatment center located in Buffalo, New York. Founded by surgeon Roswell Park in 1898, the center was the first in the United States to specifically focus on cancer research. Link-- One thing that is unique in Head and Neck cancer and a very unwanted…
Update - Possible NED - Thoughts?
Hey all, It’s been some time but wanted to provide an update and get some perspective! My mother (61) completed chemotherapy (cisplatin) and radiation (70Gy) on 14 February. She had one full dose of chemo and then a 3/4th dose because she was pretty ill (hospitalized with peg tube placed) in later weeks of treatment. Three…
Joe Tippen Cancer Story-Recently Shared With Me-For Your Consideration
Joe Tippen's personal story of battling cancer. He was given 3 months to live. His story is certainly different let's say but when your life is in the balance that changes things. I am just going to leave a link to his blog covering the whole story and my friends you can draw your own conclusions. It is a worthwhile read.…
Cancer Forced Me to Learn to Be Sick-Overview From A Cancer Patient
I am posting this because when we read some of these other people's stories we can say yes I know what you are going through or I know what you went through because I faced similar circumstances. The cancer may be different or in a different but many times the treatment is the same. The day we were told, "It is cancer".…
Osteoradionecrosis of the Jaw and Medication Related Osteonecrosis of the jaw
Here is a video I came across and it shows the 2 ways we can have jaw problems. And there is an alternative treatment to HBOT which is good to have but no guarantee it will give you the healing you need. They are now utilizing pentroxiflline and tocopherol. This video in on the medical technical side so my understanding of…
Suggestions on eating
Can anyone help me with some tolerable food choices that worked for you? My husband is on day 13 of 33 radiation and 3 of 7 for chemo. His taste buds are pretty much gone or make food taste horrible to the point of gagging. He is drinking High Calorie Ensure, and scrambled eggs are kinda okay. However, he really would like…
Jaw replacement surgery
Hello, it's been awhile since I have been on this site. Brief history: 2016 HPV 16 tonsil/ base of tongue. 35 Radiation at highest level allowed, 2 of 3 cisplatin treatments taken. Took almost two years to get into a natural rhythm of daily life. 2021 started having jaw pain. Last two years spent, trying all easy…
Thought it was behind me
Stage 3 tongue cancer (spread to one examined/removed lymph node). Tumor removal, neck dissection and radiation. First, for anyone reading this who is currently going thru treatment I want to give you encouragement...you will make it thru! It is NOT easy, but it will end. That being said, I need advice as I'm…
Rang Out - Ding-Ding!
DING-DING, DING-DING, DING-DING 🔔 Senior Chief (Ret), Departing 🫡 Finished 35 Rads (60 Gray [Gy]) today. Finished 7 chemo's (carboplatin) last week Wednesday. Tomorrow starts my recovery period. So I'm thinking come this weekend I start enduring 'The Suck' 😕 Problem is, Saturday we are attending a 'Celebration of Life' for…
pathology report positive for HPV and cancer but NavDx negative for both
Hello, new to this board but have found it very helpful in trying to stay positive. Long post--my apologies! I was diagnosed in April of this year with HPV-16 stage 2 throat cancer -removed a mass during a tonsillectomy and pathology report came back as positive for HPV and stage 2 at 2.4 cm. Throat radiation of 7 weeks is…
P16 s cell throat cancer
7 radiations in , water tastes like acid any suggestions , what to drink . Can still swallow
Jeannie Hopper-An Inspiration To Us All
Here is a story for us to use as inspiration and remember we can do this no matter the challenge. It is a story of a lady that faced stage 4 tongue cancer. She had a great care team but there is a lot involved in her treatment and recovery as would be expected. Here she shares her story to help and inspire others from her…
Newly Diagnosed Cancer Patients: Questions To Ask Your Health Care Team
BY Rosemary Catallo Patients and their families often come into The Learning Center, where I work as a librarian, to seek information. After interacting with people for many years -- and from reviewing the large amount of information we have access to here --I've come to understand what information newly diagnosed patients…
Feeling came back!!!
[Left tonsil & lymph; HPV. Modified radical neck dissection (11/20), Cisplatin Chemo x7 and 33 radiation for 57 rads (1/21 - 2/21] Something weird happened to me last night ... I was scratching that chronic itch under my left jaw and I FELT IT!!!!! Here we are some 2.5 years post surgery and I finally have feeling back in…
Galleri Blood Test--Blood Test For 50 Types Of Cancer Could Speed Up Diagnosis
In my search for information on the NavDX blood test for cancer, I also came across another Blood test to detect cancers as well. It is very similar I think to the NavDX test. I think these tests are clear examples of medical advances in the field of cancer testing. I think from what I am reading I am not sure if it is…
Should You Wear A Medical ID Bracelet? Yes It Could Save Your Life And Avoid Problems
Hello, everyone, I hope you all are having the best day possible. I was recently at our local H&N support group and the meeting was over and I was talking to one of the nurse navigators and we covered a couple of things about my condition overall and I told her I should consider a medical ID bracelet maybe and she agreed…
NAV Test moving upward after treatments not down
I had a biopsy of my lymph nodes and which showed the presence of squamous cells. I then had a NAV Blood Test that was positive prior to any surgery, or treatment. Immediately following the pre-treatment NAV Blood test, I had a tonsilectomy of my right tonsil, eight weeks of radiation, and the same for Chemotherapy. I then…
HPV+ tonsil cancer
I was diagnosed with HPV+ tonsil cancer, which also involved two lymph nodes, in October. I finished chemo (Cisplatin) and radiation treatments in January. I had Pet scan in April which showed NED. Having cancer made me feel so alone, and isolated from everyone else around me. I came here to find other people who have been…
The New Normal
I hate that phrase, I don't need a NEW normal, I'd like my old normal back, please and thank you! What's caused this blip? My oesophagus (I cant spell) is now really small, as in REALLY small, as it took my over 5 minutes to get a 12.5 mm barium tablet down. Its around 1 cm.. I'm back on the roundabout, barium swallows,…
Palliative Care Explained And Compared Along With Hospice-Things To Consider
This subject is not always easy to consider or talk about and many of us may never use it or Hospice for that matter. But it is good to have knowledge of options available should a major serious illness present itself in your life or a loved one. Also, the ability to have the knowledge and be able to have the most basic…

Head and Neck Cancer

Discussion List