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Be an Active Participant in Your Recovery
https://youtu.be/QEwOEdmusTc Today's video is short and is all about a theme for your cancer and recovery I call, "Be an Active Participant". I was amazed when I was going through this at how many medical professionals were surprised that I was doing what they told me. I had to ask them, "Do others NOT do what you…
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1st Post Treatment PET Scan
Chemo doc called with results. Nothing mentioned about thyroid. Two small lung nodules. Mass under jaw which they don't know if it's cancer or infection or necrotic tissue. Something on my kidney which will be put on back burner. I am due to see my ENT surgeon soon. I had them burn copies of my discs and I will have him…
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Jaime, this video was made for you!
After reading Jamie's posts this morning I had to make this video. Don aka Beagledad (PS you can hear Carly barking in the background!) https://youtu.be/szQXHzwxf1Y
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UPDATE ON ROLL CALL
ROLL CALL STATUS CHECK Hi All H&N members And a shout-out to those members who PM me (over the past couple of years) with questions and information for the roll call including, wbcgaruss, donfoo, Charmit, Barbaraek, johnsonbl, tommyodavey, Sonja.K, MarineE5, okeydokey, Login 51, MMDowns, MJG1, LitlCJdoll to name a few.…
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YouTube Videos of my experience
Hi friends. I have decided to create a series of youtube videos describing my experiences and hacks and information for HNC folks to find when they search out info after diagnosis. I encourage folks at any point in their experience to watch and or comment. I am NOT monetizing these; these are for information sake only so I…
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Diagnosis Complete (95%) - Chemo/Rad Starting Next Week - Yikes!
Well its been interesting so far...to say the least I am 60 yrs young and hate going to the doctor to the point that I just dont go...rarely....unless I notice/feel something is Doctor worthly wrong. Lo and behold late June/21 I noticed 3 lumps on the right side of my neck and under my chin. Didnt have a Primary doctor…
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PEG Tube fears and swallowing issue
Having seen several posts over the years that basically say if you get a Feeding Tube you lose swallowing ability, I am compelled to call said line of thinking what it is- BALONEY. I had a PEG all thru tx back in early-2009, and actually kept for 15 months in case the C came back. During tx one of my best friends were ice…
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Hyperthyroidism
I tested a bit high on my TSH, 3rd Gen numbers, at my last test. It is my understanding they want to get another blood draw for a (4th Gen?) test. Does anyone on here deal with the symptoms of Hyperthyroidism, or take meds for it? I'm probably jumping the gun, as this was my first high test ... but I wanted to be…
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Forearm flap question
I went on tube feed for a bit because I was having extreme pain in my jaw joint when chewing. I believe it is related to the occipital neuralgia which may or may not be cancer related. I am trying to eat something every little bit so I can get off the tube. I still drink coffee, water, oatmeal and soup but slowly trying to…
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Newbie
Hi, My name is Kurt. On October 1, I was diagnosed with tonsillar cancer w/ has metastisized to 4-5 lymph nodes on the same side of the neck as the tonsillar mass. This was based on a CT Scan w/contrast, a PET Scan and a biopsy all done the last 2 weeks in September. Its stage 1, T1,N1,Mo (HPV+ -- P16+). I begin…
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FU With Chemo Doc
Still no PET scan. She wandered off somewhere to light a fire under some people. If I don't hear anything in a week I'm supposed to call back. The thyroid cancer I don't remember hearing about was apparently discovered in the original surgery and they have a biopsy positive for thyroid cancer so I will have to get my…
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STRAYING BEYOND CANCER ISSUES AND OVERSHARING
Folks, I just wanted to say that the majority of posts I've been reading here lately have gotten far away from the "normal" issues we discuss about having Cancer, before and after treatments, and how our recovery is coming along. I'll use myself as an example by saying that for the last couple of months I've been packing…
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Where Are The Jannies? YooHoo Admin Mods! Wherefore Art Thou?
Who do we have to know to rid us of all this sportsball spam?
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how do you report spammer valdezlar
valdezlar About valdezlar Joined onSaturday, October 16 2021Last onlineSaturday, October 16 2021
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A Full Year
Well folks, it was a year ago today I was diagnosed with tonsil cancer. Between now and the end of Feb 2022 I will remember many dates and what happend "one year ago". Certain times frames went by super fast, some slower than I can even imagine, and others just whizzed on by. For those of you that will and have already…
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How To Embed A Clickable Link
I thought I would post this to let folks know how to make the links they post blue and clickable. So here goes. If it is not clear as to what to do please let me know and I will try to refine it. In your forum posting. This is just a "For Your Information" posting to let folks know how to make a clickable link in your…
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cleaning the toilet - need some guidance
ok. completed my 1st chemo & rad today. regarding the toliet, we've been getting different information from the cancer center staff and from some of the national groups. Most, not all, recommend that men sit on the toliet to pee, makes sense. They all say to clean any splases, makes sense. Here's the confusion: some say…
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A Treatment Team?
I read about a team of referring MDs treating cancer. I have a primary care Doc at the VA that is nicknamed Dr. Clueless by her patients in the waiting room. Good for twice yearly bloodwork and refilling prescriptions. My surgery was done at a nearby Air Force hospital (I am not active duty it was a VA referral) and the…
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Trach Tube Shower Cap Mucus Deflector
Hey everybody. I was diagnosed with cancer in my tongue in early 2017. In March of 2017, the surgeons removed 70% of my tongue including the "flap" and reconstructed everything with tissue donated from my left thigh area. As a result, I have a trachea tube that is more than likely permanent. As a result of that, I am…
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My story
2.9 cm Varrucous Carcinoma Tumor inner right cheek T2NOMO NECK DISECTION, RADIAL FOREARM FREE FLAP RECONSTRUCTION March 2021 25 Radiation Oncology treatment. last 27 September 2201 The time between surgery and oncology is part of my journey with the VA. My 69th birthday this year. . I live in a small town in…
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Tongue swollen 4 weeks, 4 days post radiation
Carcinoma, base of tongue. Four days ago, Four week post rad follow up, my radiation oncologist says my recovery is doing well. The next day visit with my medical oncologist (who's been treating me for prostate C) looked in my mouth and said basically the same thing, "You're doing fine!" while acknowledging "You've been…