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Head and Neck Cancer

Archives for May 2021

Honoring Memorial Day
Today is Memorial Day Memorial Day is the day to remember those men and women who died while serving in our nation’s armed forces Take a moment this weekend to honor those who served our nation and are no longer with us. As Americans, we enjoy the enormous blessing of freedom. Remembering those who died to preserve that…
D-Limonene Clinical Trial for Xerostomia
Hello Friends: I was diagnosed with HNSCC P16+/HPV cancer in January. Completed 70/56 Gy (RT only) on April 13, 2021. With the permission of my medical team. I decided to replicate the following clinical trial (minus the Chemo which I did not require) that is ongoing at Stanford during my treatment. It is very, very early,…
Neck and Swallowing Exercises
So I'm supposed to do these everyday. Typically I'll do 2-3 sets of ten reps. I got a late start on my neck exercises because when I first tried to do them as per instructed instead of babying along my neck wasn't healed and bled. Now I've tried again and I am getting shooting pains in my neck throughout the day. I was…
Thickening Liquids
Hello folks. I just want to make everybody aware of a product that thickens food and drinks in case you have trouble with coughing or aspiration during eating or drinking. I was introduced to this during my time in rehab in 2019 and recently started using it again. I never heard of this product or idea before so maybe some…
Post-radiation advice?
After 33 grueling sessions, my last radiation is this evening! I read through several posts on this forum to try and preempt some of the side effects. I don't know if it's the fact that I received proton radiation or the fact that I was expecting the worse, but for the most part my side effects were not too too terrible.…
Checking In
Hi everyone. Sorry I haven't been on here in awhile. Just had an appt this morning with my ENT. I'm still on a permanent trach and FT unless I opt to get a larengectomy. I have to have my trach and Gtube changed every 3 months. So not fun at all, plus being scoped every few months, which I have been refusing until today.…
Sore Lip
This is an odd one to me. Had rads 9 years ago with not too much trouble. Six months ago my bottom lip got really sensitive and started peeling like it was sunburned. It did go away and now it's back again. Every day I put on a very good lip gloss that doesn't contain petroleum. My lip is still dry and cracked no matter…
Painful swallowing, but...
I'm 3 1/2 years out from BOT cancer surgery, full modified radical neck dissection, they took 60+ lymph nodes and followed it all up with lower-dose rads. I had persistent, diffuse neck pain for nearly 2 years, docs couldn't find anything really causing it - maybe just my messed-up neck anatomy, nerves that had been cut,…
Current Update on my Great Recovery
In light of Mattie65's update, I wanted to share some hope on my end as well. When I was diagnosed and early in my treatment this forum was great HOWEVER, the negative stories stuck out more than the positive ones so I really want others to see it can be OK. I had neck dissection on 11/18 and began chemo/radiation on…
Tongue feels tangled in wires
I'm new. Tongue squamous cell cancer removed 1/2021 with neck dissection. I was cautious pretty early--no radiation or chemo, partial glossectomy, no need for flap or graft, left salivary gland removal, 51 left lymph node removal. I need help. For a few weeks I've noted cord or wire like areas inside my tongue some attach…
I'm much better
Hello, friends. I wanted to give all a bit of news, hope, and thanks for the support. Currently, I have almost all my taste back. My beard grows almost normally (when I let it) and my saliva is almost completely restored as well. The lymph oedema below my chin has also completely disappeared, and all that is left is a bit…
My Beau, my love-- died this morning from his Stage IV HNSCC
Hello forum, This morning at 3:15am, my Everyday, constant love died from his metastatic head & neck cancer. His caregiver texted me at 3:45am. Randal was 60 years old. 6'2" tall, very handsome. Vice President of a small company a Software Engineer/ Programmer when he was first hit with CLL Leukemia in 2012. It was Stage…
Squamous cell of the tongue
I had a 2nd occurrence in 2020. I've had 1/2 of my tongue removed. It's been a most challenging, frustrating time. My surgery was on October 16, 2020 and I'm still on a feeding tube, crushing my meds and using a syringe to get them in to the peg. Nobody shared with me these incredible difficulties! Also, I had a neck…
Lung disease as new complication
Oh wow, I have new, serious complications. I am 4 years out from primary SqCC Tumor, and mine is an aggressive, Recurrent one. My 6 th tumor occurred less than a year after my Radiation treatments. All along, I have had recurrent Pneumonia as well. 5 separate incidences of Pneumonia, admitted each time. I aspirate badly.…
90 days post treatments symptoms lymphedemia, hypothyroidism and dry mouth....
Hi, 90 days post treatments effects.... Dry mouth especially at night affecting my quality of sleep. I use a humidifier air purifier as well as plenty of water and I still wake up several times in the night super dehydrated.. lymphedema In the neck showed up about two weeks ago, I'm currently receiving occupational therapy…
Bariactric Oxygen therapy for tooth extraction after throat cancer
I had throat cancer and underwent 7 weeks of chemo and radiation that concluded on July 2, 2019. I had a tooth fail (#31) that was supporting a bridge so aside from having to have the tooth pulled, I lost the bridge as well. The dentist said the extraction was a little tougher than usual but I should be fine. Fast forward…
Wishing All A Wonderful
Happy Mother's day. Wishing you many blessings and a happy day for you and your mother. If your mother is not here anymore like my mom may we relish the memories of our mothers? I am looking to the day when I will see mom again. If your mom's still here make a point to visit her more in the coming year. Time goes fast and…
Hearing Aids
So, I did everything possible to try to eradicate my hearing. I grew up on a farm, around noisy equipment, shot guns, listened to intensely loud music, and spent time in a US Navy ship's engine room! Then, I got Cisplatin Chemo... Ironically, my hearing is actually good ... in the lower frequencies. But, it drops off at…

Head and Neck Cancer

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