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Question About After Treatment
Hi all, My wife finishes treatment Monday, May 7. That will be the end of 30 rads and 6 chemos. We keep hearing that the two weeks after treatment are the worse weeks of all. Is that true? We want to have realistic expectations. We are so looking forward to the last treatment and starting to heal. These threatments have…
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Update 2018
Hello all, Its been quite a year. My husband finished treatments over a year ago. It’s crazy to type that let alone think that. While he was going through treatments the future seemed so unsure. And now here we are a year later . His scans have all been amazing. The dr. Is pleased with what he sees when my husband goes in…
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Diagnosed with SCC nodal metastatic disease, but true?
Hi, my name is Sandi, and I just turned 58 last month. I've had a lump in my neck, right side, just below my jaw. I first noticed it when I went for a facial, and my technician kept running her fingers over it. It was not painful, so after the facial, I too ran my fingers over it. It was somewhat enlarged. I made an appt…
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HPV+ with possible met in liver
Hello - I am new here though have been reading a lot of past threads over the past few weeks. My Partner has been diagnosed with HPV+ tonsil squamous cell. His PET and an ultrasound showa possible met in liver, which he will have biopsied this week. We understand this would be very unusual and would change his treatment…
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Weekly Cisplatin + Radiation?
Hi - my husband was just diagnosed with P16+ in February and just started treatment this week - Daily Rad + Weekly Cisplatin. Is any one else doing weekly Cisplatin treatments? I'm worried about how naseous and tired he has been since his treatment - if it will be like this every week - since there is no 'bounce' back…
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Husband dx with Severe dysplasia of tongue!
Hi...new here...and looking for information, information, information! My husband has had an on and off again irritation to his underside of tongue for some months now. He went last week for a biopsy from his oral surgeon and it came back today as severe dysplasia! I am trying to stay calm and need to keep him calm but I…
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It’s in my lungs
the biopsy came back showing spindle squamous cell carcinoma in my lung pleura. My oncologists seem to think that surgery and radiation probably wouldn’t be helpful. I‘m now being thrown into the clinical trial bin, which makes me feel like I have a death sentence. My birthday is this coming May 3rd - I will be 30. I had…
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2nd Opinion Squamous Cell Tumor Lymph
Hi, My husband has re-occuring tumor lymph HP-, had vocal nodule removed, next year neck dissection followed by chemo/radiation. 2017, 3 month post treatment PET was told he was clear although there was a slight uptick in surgery area. Insisted ion biopsy, were advised nothing to biopsy likely scar tissue. To our horror 6…
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First scan coming up...
Hello Everyone... Hope all of you are well and enjoying the beautiful Spring weather. In about a week and a half , I will be having my first CT scan since radiation treatmenttreatment with an appointment with my ENT following the scan. To tell you the truth , I am petrified. My ENT had told me a couple of months ago that…
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Tomorrow will be four days till my first treatment and I’m OVERWHELMED
As I sit here I’m counting down the days till my first chemo treatment and first radiation and my heart is racing and I feel numb like a fog like state. The days are easier because I keep busy, the nights not so much all I do is sit and think. I realize Monday is going to come reguardless my worrying and the 7 weeks after…
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Peg Tube
After 23 rads and 5 chemo they are putting in a PEG The phlegm is so bad cant keep anything down. Constant dry heaves. I have it all mouth sores, blisters on the neck, cramping. In about 1.5 weeks lost 15 lbs so it is time for plan B Last night throat pain turned it up another gear The radiation machine has broke down…
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Getting close to the finish line
Greetings, I'm sitting here next to my wife as she gets fluids for hydration. She had radiation this morning and tomorrow is chemo. AFter tomorrow, Thursday, April 26, we will have five more rads and one more chemo and then we're done. Hopefully, forever. She has BOT HPV-positive with three lymph nodes involved and two of…
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dry mouth help during night
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Working on week 4 -gettin there!
Well this is wonderful week 4 for me. My nausea was really driving me nuts but I saw the doctor for medical marijuana. It is legal in my state (NY) only for medical use. Kinda expensive since private insurance does'nt cover it. But I'm willing to give it a try. It is supposed to take away nausea anxiety and pain!! I know…
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Tongue reconstruction with free radial forearm flap after hemiglossectomy
I had 50% of my tongue removed and replaced with a radial forearm flap. The surgery is extensive. I was in ICU for 12 days due to an infection in my neck. My main question is how long did it take for the free flap swelling to go down in order to completely close your mouth therefore increasing the ability to eat. I will be…
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Will I ever swallow again?
Hello, I have to preface this with the fact that I am fighting the poor me's. I finished treatments March 8th and I started seeing a speach therapist for swallowing therapy. I feel like I will never be able to swallow again. If I drink anything thin like water it goes down my airway, anything thicker even soft peaches cut…
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One side of radiation compared to both sides
Hello question has anyone experienced having just one side that needed radiation and if so how were the side affects for you? Second questions to the individuals that needed treatment on both sides how were side affects for you? I realize all are different but the common realm of things how did each cope? And this magic…
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HELP TREATMENTS START APRIL 30
I new to this site and this cancer site. I was told I have head and neck cancer stemming from the HPV virus. Been a long few month had a cyst removed on March 1 and the pathology came back there were 2 out of 3 nodes were affected with cancer. My ENT suspected the source being in my left tonsil. Removal of that was the…
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5 Months Post
Well, haven't been on here for a while, keep forgetting my password, lol. Anyway, I was Squamous cell base of tongue with 1 lymph node involved, finished 35 rads and cisplatin Nov 15th. Tongue tumor had long disapperaed, but the lymph node had not shrunk at all. Drs waited til 2 months post and ordered a PET scan, telling…
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blast from the past...
Hi everyone! I hope everyone is having a great day, feeling well and happy! I haven't been on here for what seems like forever! I had major computer problmes at one point and it gave me all kinds of problems getting on to the site. Anyhow, I'd love to hear how you all are doing. I personally just got my 5 year scans about…
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Mask, phlegmy throat and panic attacks
Hi, I am starting radiation on Monday. When being fitted for the mask I had a claustraphobic panic attack. The nurses said this was comon and prescribed Lorazapam. Having followed manny conversations here over the last several weeks I noticed a common side effect of treatment is phlegmy throat. I am really concerned that…
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Stigma Around HPV Tonsil Cancer
Just wondering if anyone else feels a stigma surrounding HPV related tonsil cancer. I feel awkward when I tell people that I was diagnosed with this cancer. If cervical HPV cancer is caused by intercourse, how is HPV tonsil cancer caused. I always tell people not to jump to conclusions. I am a 60 year old female. Does…
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Septoplasty and Dry Mouth
I am a 6 year survivor and need some input from the group. Without going into the gory details, while I was recovering from rads I suffered a broken nose when I face planted one night. I've lived with a diminished ability to breathe out of my nose and recently decided to do something about it. I'm going to have a…
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chronic rash and sweating months after treatment
Hello all, I'm posting on behalf of my dad who underwent successful (we hope) radiotherapy treatment for a tumour in his sinuses last year. The radiotherapy that followed surgery was completed 6 months ago but he has been suffering from a severe rash and chronic sweating which has been slowly getting worse and worse over…
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Welp, my good luck may be running out.
Hi all, I consider myself very lucky to have avoided serious side effects after treatment ended in January. About two weeks ago, I noticed i had a persistent cough, which I assumed was due to some aspiration. Over last weekend, it started to develop into pain, and so I called up MSK. Long story short, I had a chest x Ray…
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Dentist after radiation?
I had 6 1/2 weeks of radiation. surgery, and chemotherapy in 2011. I have had teeth extracted in 2016 and had 30 Hyperbaric Oxygen treatments for the extractions; to help bone heal. It is now April 2018 and I have more dental issues. I also have reduced saliva production. I now live in Killeen, Texas and wonder are there…
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Treatment Underway
Hi everyone. I wanted to give an update on my status. After finally getting my PET scan approved by insurance, the results came back as a 48 year old male HPV SCC stage 1 T2/N0/M0. I was able to catch this early because I had a growth off my tonsil that I could feel in the back of my throat and so I went to the ENT. So…
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Can't get rid of nausea
I'm in week 3 of my treatments and I have nausea almost every day. The nurses keep prescribing meds that don't work. As soon as I take them I throw up. I have a peg n just started using liquid food. But needless to say the food doesn't stay in me. Nurses are'not listening to me. They just keep telling me to take the nausea…
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Family member almost done w/Tx weight loss??
Have a family member who just had their 3rd chemo, and by the end of the week will be the last of 35 rads for tonsil cancer. They were adament about no PEG tube and have lost a great deal of weight. 25% (44#s) Would appreciate anyone willing to share how much they loss, especially % wise and what kind of treatments you…
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voice is shot
Is it normal to lose your voice... I have none whatsoever sound like a frog. Can't really talk to anyone not sure if there is a remedy for this