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Head and Neck Cancer

Archives for April 2018

Teeth problems
Hello to all, My dad is 5/12 years from chem and radiation treatment to his tonsil. One problem we are having is his teeth just break off, come out whole or have been grinded down as a result of a root canal. The only treatment I have been offered is to go in the hyperbaric chamber to try to promote bone growth. Has anyone…
Half-way point...Scared about long-term side effects
Greetings, My spouse had robotic surgery Feb. 16 to remove a 1.2 cm tumor from the base of her tongue. It was HPV positive. At the same time, the surgeon took all of the lymph nodes from the left side of her neck. Pathology showed three of those nodes were cancerous and two of them showed extranodal extension. So, that…
Foods and supplements that reduce fibrosis
Hi Everybody, Well, after radiation and chemo to my throat, and four surgeries, all in the last year, needless to say that I have developed a severe case of soft tissue fibrosis in my throat. I have great difficulty turning my head in any direction and cannot swallow at all even though the last two surgeries were supposed…
Surgery Scheduled...........anxious!!
My husband has 3 different kinds of cancer, colon cancer that is now in his lungs, prostate cancer, and was diagnosed with small cell neck cancer in his neck last November. Primary was never found but possibly "hiding" in tonsil. Only has one lymph node on left side of neck that grew extremely fast to 4.6cm. Had chemo and…
I just finished treatment
Hello, I'm Tim. I just finished 35 rounds of radiation and 5 rounds of chemo. Boy this took much more of a toll on my body than I thought. I still can't swallow (it's only been one month) nor drink much. I lost 40lbs through this and have no energy. I'm worried about my pet scan and overall prognosis. I'm 54 but have young…
My dad has throat cancer. What to do?
So today my dad finally went to the doctor after nearly a year of my mom pestering him. He has been coughing when he eats food, and people who hadn't spoken to him in a while said that his voice sounds different. The doctor looked at him and said he has throat cancer. He wasn't even able to see his vocal chords (I believe…
Week 2 treatment
On day 3 week 2 of treatment. First week chemo brutal! Have chemo every Friday and last weekend had dry heaves took nausea meds didn't work. Could not eat or drink for 3 days. Peg tube got clogged due to nausea meds not totally disolved. Ugh.. They had me go to the hospital for IV infusion. Even on my rad days I try to…
Dry Mouth
Starting week 4 and my saliva glands seem to be doing well... No dry mouth. When and if this side effect takes place does it occur. Right now I have the dreaded sore throat and phlegm.. Blood in throat not much and dried blood in nose. I assume all this is normal. I must gargle 30 times a day.. it helps with the sores..…
Lymphedema
Hello- Does anyone have any experience with lymphedema in their neck/throat? Is this something that can go away? Or is it something that gets progressively worse? Some days, it feels like I'm being choked. Other days, it's not TOO noticeable. I finished treatment at the end of last October. The lymphedema took a couple of…
tongue cancer
I was recently diagnosed with tongue cancer. I had part of my tongue removed and a neck dissection. I would like to connect with others who have been diagnosed tongue cancer.
Thinking of Curlyn
I know she's is probably having a rough time right now, miss her already, and only hope she comes out of this somehow. Thinking of you out there somewhere girl and I'm sure the rest of you on this forum are too. :( tears ):
Swollen Lips and ear aches
Today was rad number 11. My mouth already a war zone. I thought rinsing with salt water and baking soda would help. I rinse about 20-30 times a day Inside my lips have swelled and can't drink anything hot..,. Canker sores under the tongue. Makes it difficult to eat and tongue exercise. Any other recommendations on battling…
Extreme Mouth/Throat pain 1 month post rads
Hello, First Time Post. My 42yo husband underwent 35 rads and 6 doses if Cisplation a month ago this week. He was treated for HPV/Tonsil cancer. His treatment was interupted for a week due to a hospital stay to treat slight pneumonia and neutropenic fever but he was able to get all rads and chemo as planned after he was…
Radiation on one or both sides?
I will hopefully will soon start treatments and was wondering... How many places did you have radiated and number of treatments to each place? In my case, when my tonsils were removed, there was cancer (HPV+) on the right side and the left side tonsil looked "suspicious". There was metastasis to 2 level II nodes on the…
Paraganglioma carotid body
Can anyone recommend a center of excellence or surgeon for removal of this rare tumor? My 23 year-old daughter was just diagnosed and we are searching the country for the best surgery team to resect this tumor.
Worried !
Hi Everyone! Well, I am in 7 weeks past radiation and my jaw is starting to close more and more. I was doing the wooden sticks and had to quit because of the jaw pain . The jaw pain started as a result of a piece of bone that was sticking out from my radiated gum area. I had that taken care of by my ENT. I resumed the…
First treatment - great!
Hi everyone. Just wanted to let you know I had my 1st rad treatment today. Took 1 Lorazepam which did'not do anything for me. They put warm blanket on me put mask on which had the cutouts and was playing the rolling stones. Had scan for about 5 min then was out of machine for another 5 while they set things up. Then actual…
Joint pain?
Just a quick question here. My husband is nearly three months out from completing his treatment, which I can hardly believe. It has truly been a roller coaster of physcial symptoms and emotions, but we are thankful each day to get further and further in the healing process. He has developed a pesky hip joint pain the past…
Possible cancer diagnosis. Need help!
Hello. I am a new member here. I am yet to be diagnosed with cancer but fear that I may be in the very early stages of it. I am looking for help/advice on what to do, as my primary care and ENT have basically said they won't see me to discuss my cancer-esque symptoms anymore. For the past 8 weeks I've had pretty much the…
Radiation, Tongue flap fail, Lost on what to do
My father in law had his first surgery on January 25 for oral cancer of the mandible. He had over half of his lower jaw removed plus the lymph nodes. However, he has had a hard time healing from it. They were unable to use his shoulder or leg bone so they had to use the metal. Unfortunately this has not been able to heal.…
More than most people want to know about Lymphedema (and fibrosis)
Structure and Distribution of an Unrecognized Interstitium in Human Tissues https://www.nature.com/articles/s41598-018-23062-6 Translated I think it says our neck swells because it got beatup a lot.
Treatments for necrosis
Hi has anyone developed necrosis From radiation treatment? My mum had snuc 5 years ago in her sinus’s and cribiplate bone and has recently developed a hole near the corner of her eye and nose. The dr hs said it needs to grafted in surgery to remove the dead tissue but they are yet to give her a date. The hole is…

Head and Neck Cancer

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