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Head and Neck Cancer

Archives for November 2017

Lasting effect of HBOT?
I was diagnosed with Squamous cell carcinoma at base of tongue (left) and had a left radical neck dissection followed by 20 days of radiation in 1997. In 2010 prior to a tooth extraction I underwent 20 dives of HBOT, surgery for the extraction and debridement of osteoradionecrosis site followed by 10 more dives. I now need…
Immunotherapy against HPV-related cancer in the mouth?
Does anyone know, if there‘s an immunotherapy against HPV-related sqamous cell carcinoma in the mouth? I‘ve had Proton therapy in that area during the summer, and now I‘ve run into massive pain. At first, I thought this to be the after-effects of the Proton-treatment, but today I have been told that this would be very…
Beth Chapman and Throat Cancer Documentary
Did anyone watch the documentary on throat cancer by Beth Chapman (Dog the Bounty Hunter). The show never mentioned HPV which is a well known cause of throat cancer. I wish they would have disclosed what caused the throat cancer so that others would be aware of one of the many cancers HPV causes if that was the case.
Well, ...
I finished rads and chemo May 5th 2017, had redical neck disection on august 31st, september I was told I was all clear. Until today. When I woke up I had a lot of gunk in my thoat, so I did what we usually do, and hacked it up (sorry if this is graphic) Instead of being clear to slightly yellow, it was red, deep red,…
Sodium lows
developed during Chem over a yr & 1/2 ago. My Sodium levels are lower than normal. I don’t have any saliva tho I make it just can’t get out due to delayed Radiation damage to My ducts. Having to see a specialist in Baton Rouge to see if he can get some released. After treatment I had saliva, taste, was doing great now I…
One week post treatment update
My husband is almost one week post treatment. It has definitely been a tough week and he has spent the most part of it on the sofa. He had 35 radiation treatments and 6 Cetuximab. He was scheduled for 7, but his doctor canceled his last chemo because his neck is in awful condition. He got 2 liters of fluid last Monday…
Proton radiation therapy (Procure) questions ( 2nd time getting RT)
Hello all ! just discovered this board after my husband being initially diagnosed with Base of tongue HPV positive cancer 4 years ago .Well after being free of cancer 39 months his cancer has reoccurred ( maxillary sinus and some muscles and the base of skull again..Clivus ) .My husbands original cancer was very extensive…
False Teeth humour..
So my father who does not have cancer of any form, but also does not have good eyesight or hearing (years of working on jets will do that to your ears) father - (not happy, waving a tube) says, This fixodent doesnt work! brother - dad, that'll be because its Hydrocortisone cream, doesn't itch tho, right?
New and ready to fight
My husband was diagnosed in September 2017 with SCC HPV+ tonsil cancer. He is 41 and otherwise very healthy. He had a neck dissection and tonsillectomy in October and will be starting seven weeks of radiation and chemo very soon (Cisplatin 1x week). Right now, he is in calorie loading mode and trying to eat as much healthy…
Happy Thanksgiving!
I am SOOOO happy for all the wonderful friends on this message board! I am happy for all the extra time I have with my husband due to the extraodinary caregivers! Hoping the best to all! Crystal
The C: Section Chronicles Update
Hi All. I've been flat out creating 3D models the past couple of months and haven't been keeping up to date with the forum. It's been 7 months since I had my last radiation treatment. 7 or even 6 months ago I would never imagined feeling as good as I have the last couple of months. I think the best part of the recovery was…
Trismus and Masseter Muscle
Hi All, After two rounds of radiation, the second to my right neck just under the mandible, I've developed trismus related to inflammation of the masseter muscle. That's the large cheek muscle just in front of your jaw joint. Feels like a ball to most. Has anyone experienced this? If so, was there a remedy for the…
Drugs for nausea that work
I was so dreading my 3rd and last chemo last week because of the severe nausea and vomiting that I experienced with the 2nd round and was so surprised when it didn't happen. The only thing different this time was they gave me a scopolamine patch that really seemed to help compared to all the other drugs I took for the 1st…
THREE MONTH PET SCAN RESULTS
THREE MONTH PET SCAN RESULTS NM PET CT ROUTINE SKULL TO MID THIGH - Details Impression Resolution of previously demonstrated left vallecular and left cervical nodal hypermetabolic activity. No suspicious hypermetabolic activity is identified. Electronically signed by: Jeremy Rau Date: 11/17/17 Time: 16:07 Narrative STUDY:…
One week post treatment!
My husband is one week post treatment (35 radiations plus 8 Erbitux for Stage IV BOT SCC HPV+) today! He is doing pretty well. The only thing that seemed to continue to "cook" was the skin on his neck. That got pretty red for a few days this week. He is putting on Aquaphor but is convinced that it is making the skin there…
Post treatment check up
Hi, my father went for his first post treatment check up today. He finished treatment at the end of September. We were expecting them to scan, scope whatever his throat to see if the cancer treatment worked. They took blood, and then used a mirror to look at his throat and said they thought it looked OK, but would like him…
(Video) Had my first post treatment scope done
(47yr male, good health, SCC BOT HPV+ Stage IV) Last week I had my first post treatment scope completed by my oncologist. I am two months post treatment. She wanted to wait until my throat had healed some before trying to scope me (I appreciated that). Other than a swollen and shortened epiglottis and some ulceration, she…
Persistent Cough Post Treatment
(47 Male, good health, SCC BOT HPV+, Stage IV) I'm 2 months post treatment and I've noticed I am experiencing a persistent and annoying cough most days. I had been able to treat it extremely well with the hydrocodone I was prescribed during treatment. However, that is no longer an option since I am not experiencing any…
Trouble Eating
It's been over a year and a half since my treatments and my taste still is not back to normal. A lot of food I try to eat taste very hot or spicy to the point I just can't eat it. Like, ketchup, salad dressing, pepper, red sauces and more. If it even has the smallest trace of one of these I can't eat it. Has anyone else…
keytruda before surgery?
i have been offered to be in a trial for the drug keytruda - getting a dose 1 week before partial glossectomy surgery. All info i have read about keytruda is when it is applied to those who are unable to undergo surgery. I understand this is a trial, so maybe this is a new approach. has anyone experienced this approach?
Swallowing issues, Little or no saliva, extreme dry mouth
If you have little or NO SALIVA, dry mouth, or just a VERY HARD time swallowing, loss of soft pallet, this is for you. Buy frozen bags of OKRA. ($1.00 a bag at regular groc stores). I put 4 bags into a deep covered pan and cover the okra with water. I simmer it for 8-10 minutes to speed up the process. Then I turn off the…
Bitter taste returned
Zinc Sulfate was recommended for the bitter/metallic taste and worked well for 2.5 months until a few days ago. Its driving me crazy! Any tricks that any of you have tried that workedfor you?
Neck Dissection Results, Further Treatment, Spindle Cell Features
Hi everyone, For those of you who've been following my story, thank you again for your support and kind words. For those of you who are just reading, here is a quick recap: 29yo; Feb of 2017 I had an extremely small superficial SCC lesion removed from the right side of my tongue - Stage 1. At the time, I was told this was…
19 weeks and 3 days out of treatment today
So after all the fun off 7 weeks radiation and 3 high doses of Cisplatin I ran my first marathon of the year today at 57 years of age in 3:35:20 and placed 2nd overall. I was 5 minutes slower than before treatment for the same race as last year so I guess at the moment the new me is just about the same as the old me. It…
Skin sensitivity? (head, chest, arms)
Just wondering if anyone else who went through radiation and chemo if they experienced unusual skin sensitivity post treatment. I'm 2 months post and for the last 5 days I've noticed in parts of my body with hair that I've developed some soreness. Specifically; the top and back of my head, both arms and across my chest.…
6 month NED!
Dear Cancer, You have taught me so much!!!…. Sometimes I want to say thank you for the teachings, but mostly I want to say SCREW YOU forever. (You had me once, but never again.) BECAUSE OF YOU I: • Pray and PRAISE GOD constantly. • Live every minute to the fullest. • Am starting my bucket list early - NOW. • Verbalize and…
lymphedema, scar tissue, muscle spasms after treatment
I've had severe lymphedema pain (and ongoing treatment for it), but now the therapist is working (painfully!) on scar tissue in my neck To top those two, my pain doctor has diagnosed severe muscle spasms and referred me to a neurologist (who cannot see me til January 11) for botox. Has anyone gone through any or all of…
Benecalorie
Has anyone on here tried Benecalorie? It is a high calorie protein supplement you can add to food. Has it worked out well for any of you?
FDG Avid nodular Lesion is Seen in left cervical region closely abutting hyoid bone
Hello There, My Father is sufferring with serious headache and a tumor type in neck. He had gone through a cancer operation of mouth in july 2016, could it be the side effects of cancer again ?? I AM PUTTING THE LATEST PET/CT SCAN REPORT BELOW please explain me the actual disease my father is suffering from ? Brain: No…
Neuropathy
8 years after chemo and rads for larynx cancer my neuropthy, which started in my feet about 3 months after has, over the years, gotten much worse, it has now travelled up both legs to my knees, sometimes making it difficult to walk. The calf muscles stiffen up and sometimes I cannot feel the floor. The good side is that it…

Head and Neck Cancer

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