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Blood seen during ENT scope
Had appointment with the ENT doctor who scoped me and saw an inflamed area that had a spot of blood on it. This was the same area as the tumor. He asked me if I had been spitting up blood and I said I had not seen any blood. I asked if it was just a spot that had not healed yet (only 11 weeks out of treatment) and he said…
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Carotid Paraganglioma
Hello everyone, I was recently diagnosed with a right carotid paraganglioma (unfortunately won't know if its benign or malignant until they are able to surgically remove and do the biopsy, but fingers crossed and hoping for the best). Wanted to ask if anyone had gone through a similar case, if they had surgery, how they…
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necrosis of jaw
Hello everyone. I am 15 months post treatment for base of tongue cancer . I had a few teeth removed first to prevent issues after radiation. I had radiation plus chemo, my tumor was inoperable stage 3. I developed tooth pain after treatment and it was discovered I had a cracked molar. Radiation is tough on teeth.... I did…
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False teeth
For those of you who had to have all teeth pulled prior to surgery and radiation, how long after treatment were you able to get new teeth? I do not know what anyone else has gone through. thanks - Martha
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Jaw and Ear pain -SCC
Hi All Did anybody had ear and jaw pain after chemo and radiation therapy?? I'M having this for past 1 week as my oncologist is out of the country. I completed 33 rads with 6 chemo sitting on Sept 21. Please reply with your valuable thoughts. Thank you
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Allergic to Erbitux
Well, this clinches it. Of all the drugs I could have been allergic to it has to be this one. So they took me off of it and will start a regimine of Keytruda until, and I quote, "until disease progression or unacceptable toxicity for up to 24 months." I have run out of options. We are now working on my quality of life.…
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How soon after completing treatment did y'all get a scan?
My husband is on his F I N A L week of treatment for Stage IV BOT HPV+ SCC. He's had 30 (out of 35) radiation treatments and 7 (out of 8) Erbitux infusions. (If anyone wants more details you can click on my name and read the "about me" page. I know that, when I read other's posts, I always wish I knew more about their…
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CT scan clear
My husband is 15 weeks post treatment for HPV+ stage 4 cancer of right tonsil with metasization to lymph nodes in the neck. He was given the all clear today from both his oncologist and his ENT. We were happy to get the good news. He will continue to see doctors every 3 months for the next year. He had 3 large doses of…
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18 weeks post treatment all good
Just had my 18 week consultation with my ENT consultant and all is good, scans look good. My next appointment is in January.
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Urinary Incontinence
wo weeks ago I started the new chemo treatment (Erbitux). The day after my bladder just decided to start leaking as I was walking to the bathroom. Then for my next chemo, last week, it happened again. And one night in bed. Since that time, there was a complication and chemo last week had to be postponed. Now I don't have…