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bladder cancer
i had a high grade malignant tumor removed from my bladder 2 weeks ago it was superficial i have another TURB in 2 weeks then start chemo for the cancer i know these tumors come back does this mean i will never be cancer free and have worry all the time if its growing back and spreading doctor said i would have to have it…
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Trigeminal Neuralgia - Anyone heard of this?
I do not post much but appreciate the info from all of you. I am 2 years NED but it seems like the radiation is the gift that keeps on giving. Has anyone heard of Trigeminal neuralgia? I am at the beginning of the diagnosis ride to figure out if this is causing my facial pain. Came on 3 weeks ago and I have been to dentist…
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EGD...success or fails
Ive had 11 procedures and still cannot swallow much...mainly scrambled eggs,soups,Mac and cheese,ice cream and mashed sweet potatoes. Has anyone had better results?
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Job Training - Dive in or Sit Back
My DH was just dx with SCC at the BOT - he's scheduled for surgery on Friday. The good news is that the ENT says the area is small, so we are (hopefully) not looking at losing any or much of the tongue itself. If recovery from surgery goes well, he would be starting rad around 6-8 weeks from now. If the surgery doesn't go…
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Stage 4 with mets - in remission!!
Hello, All! Husband has been within death due to his cancer in day, minutes, even seconds on multiple times since this past September. Not the kind of message you share a lot here. But I have come here for support often. This message I MUST share!! Today, we are in remission!! Treatment "paused" until CAT scan in 2 months.…
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Strange success in killing off Thrush
I am now in month two of a war on my mouth Thrush/Candida infestation. I have consulted experts, used many prescriptions, read many blogs, tried a bunch of folk remedies, conducted basic research in organic chemistry. I was making no better than minimal progress until I semi-randomly turned up a reference to this product:…
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CAT scan? Is that typical?
Hello H&N friends, I hope everyone had a good weekend and got through Monday! I am back with another question; shocking, I know :) My husband is scheduled for a CAT scan on Thursday. He rememembers the rads oncologist telling us that he would do one after treatments but honestly it was our very first meeting with him and I…
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sweet and spicy foods
It has been 8 years since I had chemo and rads for my throat cancer. Side effects from the start were neuropathy in my feet and tinnitus, little dry mouth but not much. As of the past few weeks my mouth has gotten a lot dryer but manageable. Tried some spicy wings a couple of weeks ago and it immediately burned the soft…
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Allergy Sufferers
I am six weeks post treatment and my seasonal allergies are starting to kick in. I am finding that the post nasal drip, stuffiness, and congestion are compounding my treatment side effects. My throat seems more swollen which is making eating a little more challenging. Have any of you found yourselves in the same boat, and…
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Feeling Scared and Hopeless
Hello, I need to begin by saying that I have not yet been diagnosed with any form of H&N cancer. I have been reading this board for several weeks, and I am amazed and deeply moved by the truly inspiring and heartbreaking stories I have read on here. You have all been through so much and are an inspiration to everyone who…
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Questions to ask before meeting treatment doctors
Hello everyone! Hope everybody is doing well and enjoyex a good Mothers day. I had my surgery on 5/5 and everything went great. Im meeting with all my doctors soon and i was wondering what questions i should ask or anything i should request to do pre treatment. Already done hearind test, bloodwork, and dental Thanks!
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Hypoglossal nerve damage. Any experience with regeneration/healing?
Hi, I underwent a radical neck dissection on February 9, 2107. During the surgery it was discovered that my primary tumor was spreading an off-colored liquid onto the submandibular gland (which had taken on the color of the liquid) - so my submandibular gland was removed immediately. I now have the symptoms of hypoglossal…
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Neck swelling/knots in morning on side I sleep on.
Hi all and Happy Mother's Day to all the Mom's. I'm about a year out of Chemo/Rad for Stage 3 NPC. Had shingles on right side upper chest and front/back shoulder in January, since Ive had 1 not smallish feeling hard lymph node on that side. But...also now when I wake up my neck is swollen in the mornings depending on which…
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For amusement value only.. (Mothers Day tale)
.. as I said, amusement value only, as in say, a Mothers Day gift from me to you :) In 2009, Kyle and I lost our German Shepherd, Wildfyre, to something called Dengenerative Mylopathy, basically DM, isthe canine verson of MS for Dogs. It wasn't pretty. I took her to the vets for pain meds, and didnt come home with her. We…
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SCC of lymph node, unknown primary -- need RAD experience, and advice on recurrence
I'll try to keep this somewhat short, but don't know how successful I will be. My Dad was recently diagnosed with SCC when a lymph node became inflamed in a matter of weeks. Had neck dissection about 4 weeks ago -- about 50 surrounding lymph nodes, left tonsil and BOT came back negative (HPV/P16 negative as well). Tumor…
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Proton vs Tomo
We are fortunate enough to live somewhat close to facilities that offer both types of radiation. Any thoughts on which is better?
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newbie
Hello everyone, My name is Jim and was diagnosed with squamous cell carcinoma of my right tonsil on January 6 after experiencing a Mini stroke. When checking my carotid arteries after the mini stroke they found a mass on a lymph node on right side of neck. I had a neck dissection on February 28 to remove 30 lymphnodes and…
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Obstructive Sleep Apnia
Has anyone suffered from OSA because of cancer related growths impeded air flow?
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Buffets
Why do so many of you like buffets? If you can't eat much, you don't get your money's worth.
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Ringing in one ear
Good Morning! I hope everyone is enjoying their Friday! Everything was going well until my husband woke up with ringing in one ear this morning. He had low dose cisplatin on Tuesday and everything was fine until now. I know that hearing loss is one of the possible side effects of cisplatin, but the doctor said that is…
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1st follow up appt with ENT tomorrow
My hubby has his first post treatment ENT follow up appointment Thursday. Supposedly he will be scoped. What will the doctor be looking for exactly? For some reason, I'm very nervous about the appointment. Think it will be a xanax kind of morning.
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Sticky saliva...what the what?
Hello friends, I hope that everyone is well, feeling good, and getting ready for the summer. We are doing well. We really are. The hubby is back to teaching full time and I am forever impressed and proud of this man. We are in our third week of recovery and some side effects have disappeared and then there are new ones.…
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And so it begins...
well, it has officially begun. Hubby is currently getting his first radiation treatment. One down and 35 to go. Tomorrow is the first of seven chemo treatments. Not sure how I am feeling at the moment ...
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Another newbie joining the club.
Hi everyone, Keith here. 48 1/2 year old male. Not a club I wanted to join, but here I am. Back in early April I was DX with base of tougue stage 4 SCC, HPV+ T3N2CM0. I have been lurking here reading a lot and learning a lot. The last few weeks have been a mental and physical rollercoaster. CT scans, PET scan, MRI, Dental…
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First step down
Hello everyone! I hope everyone is doing well. So had my surgery Friday and things are going good. It took 9 hours to do my teeth, tongue, and bilateral neck dissection but im feeling much better than I thought I would and will probably go home today! Some good news, what they tested in the operating room from my tongue…
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Well, thats it (for now)
Finished Radiation Thursday 4 th, May, saw ENT on Friday 5th. I was told I'll keep cooking for another 2 to 3 weeks, and I'll be in PAIN. than, I'll start to feel better, day at a time. I'll see ENT every month, at 3 months, I'll get a repeat PET scan, thenif there is anything left, it'll be sliced and diced. (if my…
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Swollen tongue 15 weeks post
My husband woke me up at 5:00 AM to tell me the left side of his tongue is swollen. It is on the side where he received the radiation. Wow, just when we thought things were heading in the right direction... So, because it is a Saturday, I called the emergency oncologist on call. He asked a million questions like: new meds?…
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Hair Loss
I am a 74 year old female, 4 months finished with low dose radiation around neck for HPV-OPC, no chemo or surgery. Pet scan showed no further cancer. For about the last month my scalp has become very itchy and my hair, normally quite thick, is falling out. I went to my dermatologist who said she could see no cause for…
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I'm on cloud 9 today
I've had hypopharyngeal SCC and been NED for about a month, rad and kemo applied. I don't know why but today I feel like I'm on cloud 9 in a long time, about 6 mo. No pain, no discomfort. My depression is gone, feel happy and want to do things. Have full of energy, hungry and want to eat the world. I want to socialize.…
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PEG Removal
Well today I hit the fifth week post treatment (35 rads/Cisplatin). After a rough first couple of weeks, I now haven't used my tube in over a week. I am scheduled to have the PEG removed Tuesday. Hard to imagine as dependent as I was on it, even a few weeks ago. I still drink Ensure as needed, but am getting most calories…