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Breakthru on the Thrusian front
My infestation of tongue Thrush/Candida is finally in retreat. This offensive began with a 3 week application of Nystatin only, and then 10 days ago Diflucan (fluconazole) was deployed to reenforce the Nystatin. The Nystatin-only approach did not produce the desired results (no Thrush), but did seem to limit its advance.…
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Hi I have Low Grade Mucoepidermoid Carcinoma, Stage 2
Hi Everyone. I had surgery to remove a growth on my soft palate on the right side. That was 4/10/2017. The surgeon sent it off to pathology and he told me I had mucoepidermoid carcinoma (MEC) on 4/17. I'm 48, BTW. I've met with the 2nd surgeon, the one who will do a wider excision, and she has ordered 2 CT scans. So far,…
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The hits keep coming
So i had my pet scan done on Wednesday. The staff was wondeful and i thoroughly enjoyed my nap in the quiet room. I left feeling super positive about what the results would be. Today i got a call from my dr and it showed nodes on the right affected so now he will do surgery on both sides. On a positive note it hasn't…
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NED
Good evening everyone. I just dropped in to say that I just had my first NED (no evidence of disease) PET scan! This was my second PET and I am 6 months out of treatment. What a weight has been lifted. God is great. Those word from my great MD, Your scan is Crystal Clear was a pretty overwhelming moment. As only the folks…
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Newbies an introduction
Hello, My husband was diagnosed with keratinizing squamous cell carcinoma (hpv negativ) about 6 weeks ago. At the moment, he has unknown primary and to is having a tonsilectomy and neck dissection tomorrow at Vanderbilt. His radiologist does not want to "carpet bomb" his head if they can't find the primary and then will…
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36 Rads
Just an observation... seems the standard is 35 rads. I wonder why they are having my husband do 36 . I don't know how many GYs.
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mskitty137 how is everyone?
mskitty137, just checking in to see how you and the hubby are doing?
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Mucoepidermoid Carcinoma Low Grade
I was diagnosed with MEC Low Grade on my soft palate. I have now had surgery and have been healing for a month. I have a oral nasal fistula about 5-6mm. I will be visiting a specialized dentist to make me a Palatal obturator. I was curious if this heals on its own with time. Chemo and radiation are not recommended since…
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Dry mouth
I'm sure most of you who has/had head and neck cancer suffer from dry mouth due to radiation treatment. I'm no exception and wondering if my dry mouth is as severe as from the norm for most of you. Don't have dry mouth after radiation? Tell us why you think this is. I would think irradiation of the salvary gland would…
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Don't know what to do now.
Hi everyone. Had surgery 3/16 to remove scc tumor from my tongue and 42 lymph nodes. I had the original surgery at Yale in CT and moved to New Hampshire and am receiving follow ups at Dartmouth. At my last appointment with my original doctor I showed him my tongue and how extremely uncomfortable it was and inflamed as…
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hpv tonsillar cancer
So a couple questions Would any one recc that i just get the needle biopsy and or other non invasive test to see if my left tonsillar redness swelling and feeling of a pea size area in the base of my left tonsil is hpv related ssc ? i did get a ct scan and yes they see maybe perhaps they say a 1.8 x 1.6 cm size possible…
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How to "crush" thrush?
My husband is 14 weeks post radiation and chemo for SCC and continues to battle with terrible thrush. He uses Nystatin 3 times a day, brushes his tongue, and yet the thrush is winning... I read one member on here purchased over 100 toothbrushes as the thrush can breed on your toothbrush. I also read that others use coconut…
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My First Treatment Yesterday
Ok, I had my first of 35 radiation treatments and first of 7 weekly cisplatin treatments for SCC unknown primary. The radiation went well and the mask was tolerable, so far. When I finished the Cisplatin I felt good. I started getting nauseous last night about five hours after I got home. I took my compazine as prescribed.…
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My story with SQUAMOUS CELL CARCINOMA, HYPOPHARYNX
Hi my name is Tak, It was the summer of 2016 while sitting in my patio smoking and drinking beer that I noticed a small but persistent lump in my throat around my vocal cords. I said to myself, "Boy, this lump has been there for several months". I wondered if this could be cancer. No way, I have a great lineage. My dad is…
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SQUAMOUS CELL CARCINOMA, HYPOPHARYNX
Hello everyone, I've just joined and trying to feel out this org. Anyone with the above cancer? Just wanted to see if there were any members with the SCCH so that I maybe able to pick their non-cancerous brain. I'm just selfish that way. This is like a test post to see if it gets posted. So anyone with SCCH? Tak
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Clinical trial of diagnostic potential
https://www.theguardian.com/society/2017/apr/26/dna-based-test-can-spot-cancer-recurrence-a-year-before-conventional-scans I offer no opinion, merely thought the story was relevant.