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Head and Neck Cancer

Archives for December 2016

Husband threw up blood
My husband had cancer surgery, base of tongue, lymphnodes involved. The surgeon called yesterday and said it was metastatic scc and is referring us to an oncologist. His chest xray was clear. My question is.... one week post surgery he was trying to take his pain pill and it got stuck and he was throwing up blood. He…
Post treatment advise
My husband had surgery the end of July to remove a tumor on the paratid (salivary) gland. Needle biopsy prior to surgery did not show cancer and confirmed it was a type of tumor that rarely is cancerous. However, the post surgery path report found cancer. The tumor had grown around the center main nerve branch feeding the…
Pain - chronic post treatment
Hello Survivors!!!! Wow what a journey we have all been on and now....we're trying to get our lives back. I'd like to hear from survivors who are experiencing post treatment chronic pain. What are your current levels? What are you and your Drs doing for management? I am 3 yrs post concurrent chemo and radiation for larynx…
FEAR
first lesion biopsy was done on Oct 26 this year. total lesion was not removed, margins not totally clear, my tongue still hurts and burns! 2 Months later! I'm going in the hospital Friday to have the remainder of the lesion removed and hopefully get clear margins.... first biopsy showed moderate to severe dysphasi. Hoping…
My son just diagnosed with stage 4 SCC HPV related cancer
First, I am driving myself crazy reading the medical websites on this type of cancer. My son is 33, in great physical shape, positive and happy person. He starts radiation Jan 16th of 2017. The cancer has spread to his lymph nodes and his tonsils. They are removing a saliva gland. He lives in another province so it is…
Neck Dissection first part of my kill cancer protocol
Hi! I am a newbie here :) . My cancer presented with a swollen lymph node under my jawbone below the ear. My diagnosis was SCC Stage 4a with unknown primary. They are pretty certain it carries the HPV 16 marker and will have a definite on that soon. Surgery with TORS is being scheduled soon for a search for the primary,…
Nice deal
Hi I'm new but been lurking for a month. I'm Stage III N-1 M-0 HPV-pos tonsillar. Sentence was for 33 rad, 8 chemo with Carbol-platin. I have 0 chemos , 5 rads left. came here looking for recovery tips, plus a few tips of my own. #1 tip, I found a small medical supplier in Ohio that has a small but powerful mucos suction…
Merry Christmas
Whether you are in the midst of the storm or out of the storm we all have much to be thankful for. I am thankful for all the support from this group. I finished up in March and today it seems like ages ago. However, I am always on the lookout. I wish each and everyone of you and all your families a very Merry Christmas and…
A holiday update!
Been awhile that I have been on the blog - made a handful of postings about my experiences and wanted to update to give some positive thoughts to those undergoing treatment at this moment and those who have finished. Was diagnosed 5/2016 with T2N2bM0 squamous cell carcinoma of the left supraglottic larynx, Stage iVa…
Christmas came early
In August I had a tumor removed from the base of my tongue. I started radiation treatments in early September and finished about the middle of October. I recently went for a follow up with my ENT. He scheduled me for a CT scan on December 16th. Needles to say I did not sleep much while waiting on the results of the scan.…
Intracyst hemorrhage and FNA
Hi all, My most recent scans on Nov 2 showed resolved primary in left throat and shrinking or stabilizing nodes in the neck. Woohoo! My surgeon was surprised. I was not. I told him that it was the myraid alternative therapies I'm treating myself with. My immune system is on fire with 2 sick family members in the house and…
HELP.
My husband was diagnosed with mouth cancer in July. He has a feeding tube and this is still his main source of nutrition. We are almost out of Jevity, and the insurance says it will not give us any more. Does anyone have any left overs? I'm happy to reimburse for shipping. Thank you
New to Forum with a question
Hi, My husband (50)was diagnosed 6 weeks ago with a BOT cancer spreading to nearby lymph node. It all happened so very quickly with a slight flu feeling and a lump in the neck, after a biopsy of the lump with a cancer diagnosis the tumour was located on the base of his tongue, within a week he was in surgery having the…
Time flies...
Haven't been here in awhile...So, exactly 2 yrs. 4 months out from the last treatment for Stage lV SCC BOT HPV 16+, with metastasis to the lymph nodes. Had the 3 cisplatin chemo marathons and the 35 rad cycle. PEG tube for a few months. Didn't have major problems with nausea or constipation at the time. Just dealing with…
Update we got bad news last week
The cancer is back on the original site, nasalpharygeal area and involves carotid artery. His oncologist said this area is hard to operate and he also had max radiation from initial treatment so the only option now is chemo. If the cancer reduces the size they will consider the possibility to re radiate the area. His…
Can't sleep during treatment
My husband has just completed 10/35 radiation treatments and 2 Cisplatin treatments. He has lost his tastebuds and has no interest in eating within the last 2 days. He describes his mouth as being coated with the most disgusting layer of cheap butter. He is forcing smoothies at this point, did have a feeding tube inserted…
ist update in months
All of my ENT and Oncology during the year have been NED, so one year cancer free and feeling better + eating better every day. Still have only gained back about 15 pounds from lowest weight. Just don't eat anywhere near as much as I used to. No problems eating as long as I wash it down well enough. Still minimal saliva…
Keytruda - An Update
Seasons greetings all. It's been a while so thought I'd post an update. Last week I commenced Keytruda treatment in Singapore where I reside. The infusion was very short ( 30 minutes ) and was not a problem. However more or less post infusion the side effects kicked in. These being achey body, headache, sweats and joint…
Depression
All throughout my treament (and before) for SCC of the tongue what I heard was you have to be positive thats 1/2 the battle. I had 3 surgeries, partial glossectomy (1/2 of my tongue replaced by a skin graft from my arm), a trach tube, neck disection and lymphnodes removed, powered through a major infection at the site of…
Metallic taste
Hey everyone. I tried to search this question but could not find it. I have two more chemo sessions left and about half way done with radiation. I am doing great as I still work out and take nice hikes. My biggest side effects are metallic taste and semi-dry mouth. I do have a feeding tube but do not use it as I am able to…
26 Year Old Female diagnosed with Melanoma
I was just diagnosed with Stage 1 Melanoma in my right lower eyelid. I am extremely upset and have always taken care of my skin. It's very scary being diagnosed so young. I see my first head and neck oncologist this Thursday (12/15) and am extremely nervous. I have a couple questions for anyone who has or has dealt with…
newly diagnosed Laryngeal Cancer
Hello all, I am 51 years old and the father of a very active 5 year old girl. I am also scared to death. I was recently diagnosed with invasive squamous cell carncinoma (early Nov2016). The biopsy was taken from the supra-glottis, right side, false cord. The disease was in all three glottic areas. The doctor, here in…
Mandibular Sarcoma Removal and Reconstruction
Left Mandibular Sarcoma Removal and Recontruction New Hello, I was treated for Nasopharyngeal Cancer about 13 years ago. I lost most of my Salivary Gland usage and taste was ruin for 2 years only. Taste came back. I relied with constant water and Biotene's Moisterizing Gel. My nasal cavity was also very dry creating…
Vomiting first week post treatments
ok...Here we are in those days past treatement (6 days to be exact) where we were told symptoms would become more intense for a couple weeks then things would start beginning to heal. The tongue and throat are more sore, phlym is also thicker...., but the one thing we have dealt with the past two days is the phlym causing…
I know this is trivial, but...
I really miss eating like I used to. With the holidays here, I miss eating chocolate, cookies, the wonderful warm feeling of a hot cup of coffee. Anything sweet instantly dries out my tongue. Sure, I'm alive. But am I really living?
Going back to work
My husband just finished 9 weeks of chemo. weekly followed by 7 weeks of radiation (35) and 3 more chemo treatments with that. He's not even five days past his last radiation and we know he'll "cook" for about two weeks past treatments...He REALLY wants to get back to work out of loyalty and also normalcy. When did any of…
ROLLCALL 2016 - UPDATED DECEMBER 10, 2016 CLOSED
ROLL CALL 2016 Updated December 10, 2016 All H&N members are welcome! Roll Call is dedicated to the memory of HAWVET (JOHNNY) who’s curiosity to know and to share a little bit about members of the Head and Neck Form inspired him to start and run this thread (2008 thru 2014). Thank You. First off, please feel free to Enroll…
Where is Hondo?
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Adnoid Cystic Carcinoma and side effects
Hi everyone! I am new here and looking for support. I was diagnosed of ACC in Feburary 2016 and had surgery to remove my leftside submandibular gland and some lymphe nodes. I was margin positive and the cancer was high grade. I went through 30 radiations (5x/week for 6 weeks) which ended in May 2016. I chose not to do…
Numb chin and scared
hi,I am a 11year stage 3 tonsil survivor,things have been well until recently,firstly I developed a sore tongue which i had a biopsy for which came back as severe dysplasia(pre-cancerous cells)this is going to be removed by laser next week..But now I have developed a numb chin and lower lip! I had a look on Google "numb…

Head and Neck Cancer

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