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Loss of bone den sity
Will hyperbarictreatments restore bone denbsity to my jaw which was damaged by radiation treatments?
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No longer lurking
Hi everyone, Happy New Year! Thanks to all of you who've posted about your journeys. I've gotten a lot of encouragement and ideas over the last couple of weeks here. My husband just started treatment for tonsil cancer yesterday. So I figured it's time to stop lurking and just introduce myself! We have a lot to learn!…
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Merry Christmas; Happy New Year, etc. etc.!
Hi all: Hope everyone had a great holiday season. I've been subbing a lot and fixing to start a long term sub on Monday for a kindergarten teacher on maternity leave till March 9 and another kindergarten teacher who will be out on maternity beginning in April thru rest of school year. I am truly blessed! I spent Christmas…
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Dad starts off the new year ringing the bell!
Dad finished radiation treatment yesterday at MSKCC and got to ring the bell! I'm so happy to know this phase is over for him and he can now move forward in recovery. He did 30 radiation treatments (SCC BOT HPV+ with lymph node involvement, clear margins after modified radical neck dissection and tongue surgery, tonsils…
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PET scan results!
Thank you all for your encouragement. I had my followup scan yesterday. Phrannie, I tried not to think about it too much.☺ The doctor's words were " complete response to treatment"! The cancer is gone! I know it could come back, but for now, I will praise God for this happy day!
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Dead Tongue- Speech Therapy?
Has anyone had success with speech therapy for a "dead tongue"... (neck dissection/radiation)... This has progressed over the past few years where speech is greatly impacted.. any success? ideas?
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Skiffin16 - On The Mend...
Well, so far so good.... It's been two weeks since I was released from the hospital and so far so good... Eating is slowly coming back, but down a total of 97# since this all started in April 22... Just wanted to give a quick update, and wish everyone here a Happy upcoming New Year... John
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Just checking in
Haven't posted in awhile but you all are always on my mind. My time has been consumed with my husband following his stroke late October. He was hospitalized a week then went to acute rehab then to skilled nursing for less intense rehab, then he took a fall requiring stiches in his leg and another week in the hospital where…
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Re-Posted From: TammyC a new member
TammyC wrote: My son diagnosed at age 19 Dr Hanna will be overseeing his treatment for olfactory neuroblastoma. His first appointment is Jan 13, 2015. His tumor was removed Dec 2, 2014 and biopsy diagnosed him. They went into the negative margins and feel that the whole tumor was removed, but PET scan lit up in the area of…
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To everyone fighting or received bad news, remember this. We will be your bridge.....
To all the ones fighting the beast please take the time to listen to this song. [Sorry about the add] https://www.youtube.com/watch?v=WrcwRt6J32o Then remember you are not ever alone in this, you have the greatest support group I have ever known. This just might give this song a new meaning to you. It did for me. When your…
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Erbitux question
I am curious if this is still the Erbitux messing with me. If you saw one of my prior postings, you saw the damage done to my face by the Erbitux, still trying to get it healed ( which got worse after the pic was taken ). Anyway.. on Wednesday night, my neck and upper shoulders area started buring and itching. Since then…
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Hypopharygeal/cricopharyngeal stenosis
I've got a date at last to try to open my throat. The 12 February. They are either going through the PEG or through a small laparoscopic incision.they are doing a retrograde dilation in combination with one of the gastroenterologists. I will need if it's successful have follow up OGDs and dilations following the procedure.…
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Pain and tenderness
i had state 3 squamous cell base of tongue that metastasized to a lymph node. Treatment was 40 rounds of rads which ended at end of August. Pet scan in October and Ned. I never had pain in the lymph node area until 4 days ago, neck feels very tender in that spot, I can't stop feeling around and am making myself nuts! I'm…
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Discussion Board and Chat Spam
Hello everyone, Thank you to those who've alerted us to the spamming from earlier today and we sincerely apologize for the inconvenience. While we have security measures in place, we can't prevent all spam. We are currently working on measures to try and block this kind of discussion board and chat spamming. If you…
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Holidays
Merry Christmas and Happy New Year to all. Update: Yesterday, Dec 24, I ended up in ER, dehydrated. They gave me a full bag of fluids and a lot of liquid potassium in my PEG tube. Later in the day it did help stop the numbness I was feeling, the vomiting, diarrhea, can't say I miss the diarrhea, vomiting, but do miss the…
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New With Questions
Hi Eveyone, My husband was just diagnosed with SCC. He first noticed a lump on the side of his neck. They did a biopsy and it came back with SCC. He then had a PET scan which the doc said didn't really show much. He had a quadroscopy and was told that they didn't see anything visually except very small irregularities to…
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Happy Holidays
I just want to say thank you all for being a part of CSN and staying to help the many other who are new to this site get through there treatment and become survivors. I also want to just take a few minutes and pray for all who are still running the race headed to the finish line of there treatment. Keep going don’t give…
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Merry Christmas...
Well... I went back in for surgery 12/11, I seriously under estimated it though. A lot more pain than anticipated.., grateful for Dilaudid.. I ended up being in for five days, that was after cleaning out twice..., thanks to my insurance...uggg. Then NPO and TPN for three of those (no food or water by mouth)..., so all in,…
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A healthy, happy Christmas
Sending you all love x
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Nerve damage post radiation / chemo
I finished radiation & chemo early September For tongue cancer. since finishing treatment, I've developed what my doctor believes is nerve damage to my tongue. It's on the opposite side that was treated. I have pain along the side of my tongue in different areas. My doctor has referred me to a pain management specialist.…
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Dawn
Anyone know how Dawn (Sweetblood) is doing?
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Dentures
Hi everyone..went to see my surgen for my bi monthly check up.He said everything is healing nicely and the swelling with the tounge flap is just about gone.Can feel hot and cold which he said was a good sign.But still don't have much feeling along sides of face.It's more of a numb feeling now instead of nothing.He told me…
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Just a Merry Christmas to all;
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Tongue pain post radiation / chemo Help?
I finished radiation and chemo treatment September 5, 2014, left side tongue cancer. Mouth sores have healed and am doing well on that aspect. Both post scans have been clear. My issue is I now have tongue pain on the right side of my tongue. The ENT has checked me several times. No cancer or sores on the tongue, just…
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Sore Throat Advice Needed
Have any of you dealt with a constant sore throat for 12 weeks after radiation? When did it finally go away? It's so bad Hydrocodone doesn't help and neither have any of my onc's suggestions. It hurts to eat and talk. Thanks!
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New with questions
Hi, In Sept my husband was diagnosed with nasopharyngeal squamous cell carcinoma. After induction chemo with cisplatin, FU5 and taxotere (3 rounds), yesterday he started radition (he will have 38 sessions). I am so thankful for the discussion boards. I have read many posts and gotten lots of good ideas. Though, I have two…
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Prayers for LadyLacey please
I recieved an email from Sharon - Ladylacy. Joe is down to 100 ponds and very tired. He is no longer able to do much and has admitted to hospice he is very weal and tired. Please keep Joe and Sharon in your prayers, especially through these holidays which make it extra hard. Debbie
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Think I'm sorted
after a long month with weeks in hospital I think I'm finally sorted. I was taken into hospital after my stomach ballooned out and I was in agony with trapped gas. My bowel blocked and I have a complete stricture in the throat and couldn't pass the gas. I started to vomit but that couldn't get out and for days stayed…
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5 Years
Five years ago today I embarked on a journey that would change my life forever. It was the hardest part of my life but the most defining part to date. At 7:30 AM I slid onto a table where I remained for half a day only to awaken 14 hours later a different person. Some would frown at some of the losses I suffered that day…
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Update.. Bad Trip
Talked with ONC Doc yesterday, he was speechless when he first walked into the room, and sat and looked at me for a few minutes. Said I am not the only most complicated case he has dealt with, but also the erbitux rash, one of the worst he has seen. He was grumpy about my weight, but I told him my * jeans* were happy, and…