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Prayers Requested
I am asking for prayers for my husband, Jim. Yesterday he went in for his three month scan of his chest. Last year his scans showed a 6-7 mm spot on his lungs and another smaller spot. We have taken a wait and see approach, as we realize this could be anything and because it was too small to biopsy. Well, the 6-7mm spot…
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FDA expands approved use of Cyramza to treat aggressive non-small cell lung cancer
Came across this on the FDA.gov website and thought I would pass it along. Approval was expanded on 12/12/2014. http://www.fda.gov/NewsEvents/Newsroom/PressAnnouncements/ucm426720.htm ~C
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Checking in and Merry Christmas UPDATE
Haven't been on the board since the beginning of the month. Back then I noticed how few post there were compared to last year at this time. I guess as treatment finishes and NEDs are given people tend to focus elsewhere. I am happy for that but hope they check in at least once a year to give those just starting the fight…
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Has anybody ever heard of Geographic Tongue ?
Not long after my treatment finished on 8th August , I had a really bad case of Mucositis. It eventually became Thrush, with white spots on the back of my tongue. Was given Caphosol for free to try as its not on the market here yet, so thought this would clear, nope. During the last few months , was also given Nilstat.…
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Treatment a 3rd Time
I am a 44 year old father of four and I've been through head and neck cancer twice and Hodgkin's lymphoma once, so like all of you been through multiple radiation and chemo treatments. I've given up my normal voice for a strange one due to treatment, given up most of what I used to eat and I've given up my handsome young…
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Mouth Opening Shrinkage
Has anyone had their oral opening shrink? It is called microstomia and I have it! My mouth has shrunken to the point that I cannot get my upper denture in without tearing the side of my mouth and that is not fun! I started after sometime during my radiation (30 rads in 6 weeks for tongue cancer). About a month after I had…
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Well...it's ceiling fan time again....UPDATE
I'm kind of patting myself on the back for managing to keep away from the ceiling until Saturday, instead of getting up there 2 weeks early . Anyway....all positive thoughts and prayers are welcome. I have my scan tomorrow at 10:30.....go to the Onc's office on Thursday to get the results. p
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Bad trip !
I should get on more and keep better track of all you sweet people on here and I hope things will get better for all of us in our own time. I do think of each of you even though I may not be online. What a trip, and I don't mean in a good way. This last two weeks has totally been a nightmare. My face is swollen, burnt,…
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Tonsil Cancer 2 Year Check Up....NED
Just wanted to give some encouraging news to those currently fighting tonsil cancer. I just had my 2 year post treatment checkup (scope of throat and CT scan). NED!! It's hard to believe that it has been 2 years since I was in treatments. I was just finishing up right before Christmans 2 years ago. It was really hard, at…
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Rough week
This has been one of thr toughest weeks ever, on Monday told I had melanoma on my arm, still waiting for the biopsy results on this, got a call Friday morning at 1:30am from my niece telling me that my brother in England had passed away from stomach cancer then a trip on Friday morning to have my prostate biopsied again,…
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Bloodwork
Hi all! Maybe a question for the senior warriors. I am happy to say I am 5 years out and it seems my bloodwork is a bit strange. I had a full panel from A-Z done, and although I have no pain, it is showing I have rheumatoid arthritis. Also the first screening shows I a positive for Lyme disease, although I live in NYC! I…
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Has anyone had experience with luekaplakia post-treatment?
Just returned from a regular checkup where I showed my oncologist some disturbing white patches underneath my tongue. He said that it is likely to be luekaplakia, and that I should wait and see if it goes away, and, if not, I will need to see the cancer surgeon to get it removed, as it is potentially pre-cancerous. It is…
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Decision Time
Well, I thought I'd start a new thread as the other one was getting kind of long. I am now at the point of making my treatment decision. I have met (multiple times) with ENTs and once with Radiation Oncologist about my specific situation. They took my case to their cancer board and both doctors agree that I have two paths…
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Too many appointments???
Finished tx in August , clean pet scans, no complications, saw my dr on dec 2, now they are calling saying I have a follow up tomorrow??? I asked why, she just said its in the chart, no blood work, nothing new. I read according to american cancer society every 3-4 months is norm, not every 10 days! Do I want to go? No, i…
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Radiation starts tomorrow
Hi, I am new here. I have a high grade MEC of submandibular gland, but stage 1 with extensive perineural invasion. My radiation treatment starts tomorrow. * Does anyone have experience with neutron radiation? * Also, my medical oncologist is currently not recommending chemotherapy even though this is high grade. Apparently…
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Ned 3 year CT Scan
Good news....A few wees back I had my 2.5 year CT Skan and it was NED. In addition, the doctor at MD Anderson moved me from the "Cancer Patient" group to the "Cancer Survivor Group" IT was a fabulous today and today is my 56th birthday...hoping for many more. You guys really have helped me get throught the tought times.…
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Something new
Had an appointment at the dermatologist today, wa\nted him to look at a couple of things on my neck. They were nothing, something called keratosis, however I have had a dark spot on my arm for a few years now and he wanted to take a closer look. He used a magnifying glass and a small tool to prick it. He then said that it…
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Need help
Cant figure out where my discussions our going when after I read them. Envelope turns grey and can't get them back.
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Pneumonia a 3rd time
For some reason I can seam to kick this Pneumonia problem about two weeks ago I got rid of it and it is back again. I remember Denny always having this same problem every few months and always having to go back to the hospital. I am glad that the doctor can treat it with just injections of antibiotic and not having to keep…
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Mucositis
Am new here have been treated for tonsil cancer. Am 6 weeks out from radiation having trouble with mucositis and swelling. Is there any possible recovery time for this as having trouble getting nutriction in. Was given meds from ENT but has not subsided. Also have radiation burns on inside of mouth. any idea on the length…
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Skiffin16 - Update December 2014
Just an update as Tim, and a few inquired... First and foremost, Merry Christmas upcoming... You are family... I haven't been posting much as I'm still trying to recover from the Whipple in April... It's been a battle, but overall I'm pretty good... I've lost a total of 77#, but finally stabled out..., and I'm not…
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Rang the bell!!!!!!!
After a week of break due to an extended Thanksgiving vacation and few days to recover from swelling of the alloderm they put in during surgery, I finally rang the bell today! It has been a very challenging journey, especially emotionally, but I learned a lot about myself and also it gave me a new perspective about family…
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Eating Issues
Hello to all... Well I thought I had things under control. But it seems the ensure, boost, instant breakfast, or anything of that nature doesn't like me now. It tastes absolutely horrid, and if I put it through my feeding tube it just seems to sit and ferment until I throw it up. Either way I try it, I get sick from it. So…
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Acupuncture - UPDATE
Hellow fellow boardies, I don't post much nor frequent the boards and I do apologize. I posted my reasons and I'm sure you understand. That being said I have a question. Has anyone tried acupunture to help alleviate post treatment symptoms? At my last appointment, my surgeon recommended it for saliva producton and chronic…
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No trial
I do not qualify for the trial at Stanford. I will be getting Taxol locally. I will see my local ENT, who is very good about staying in contact with Stanford. I will go back to Stanford in 2 months to be evaluated to see if this is helping keep the beast at bay.
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A friend and coworker
just found out that she has Stage IV cancer in her stomach area with spots on her lung and brain. Her doctors are optomistic and want to hit it hard and get treatment going. She is debating it because she has "always heard" that any Stage IV means no hope. I have told her otherwise. She also doesn't want to lose her hair.…
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Swallow issues
After nearly 12 yrs of cancer free, finally the side effect has caught up with me. I am having major difficulty eating, have a permanent feeding tube since last year and affecting my speech. Doctors believed due to scar tissues from radiation and neck dissection. Have seen many speech and swallow therapists and nothing…
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Very confused by a post written by Gypsy1959
Hi there, Wasnt going to write , but its really getting to me. Am really confused by a recent post called " scared" by Gypsy1959. I am pretty sure I did not say anything wrong and if I did , I am sorry. But I really honestly cannot see it ?? I am sooo confused and actually a little upset. Tried contacting Gypsy1959 but…
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lots of questions :(
Chin and jaw swelling?last treatment was August 28, this past 10 days I suddenly have Chipmunk lower cheeks and a double chin. I'm 41 years old and very thin. I've heard of lymphatic massage But not from my oncology team. how often do you go for follow up appointments? Unfortunately I have a stomach condition -…
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Skiffin 16
I have been gone for a few weeks with pneumonic so I might have missed something’s. I don’t see John posting anything in a good while, anyone hear from him lately. Tim Hondo