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Head and Neck Cancer

Archives for September 2014

Five years out
Hi All, I don't post much anymore, but I thought I would let everyone know that my husband just got the five year all clear from Stage IV recurrent scc of the epiglottis and lymph nodes on one side. He had chemo and radiation twice, along with a radical neck dissection (66 lymph nodes removed, 4 positive with extracapsular…
Throat cancer..? Any help please
I've been sick over a month (sore throat,fever 99.9-100, sores on tongue but only for a few days And now swollen lymph nodes behind right ear like in that bone? and super tired and body aches) 3 drs and still don't know anything.. I have a ENT apot for Friday but was still worried and wanted to ask here. My tonsils are not…
Mayo came through again
Surgery was last Friday. Two hours turned into 7. They removed the titanium link from my jaw. looks like a bicycle chain. What a feeling of relief to have it gone after almost 3 years or toting it around and being uncomfortable. Guess there were 3pieces of fibula used back then. Near hinge and middle of chin had fused. One…
texas oncology
does anyone on the CSN go to the texas oncology in mesquite texas off of galloway and I30? i see a lot of people there, just wondering if any of our family go there?
Post Treatment Blues
i finally finished my treatment. I'm almost three weeks post treatment and am experiencing some depression and anxiety. During treatment, my focus was so much on things like eating, staying hydrated, pain control, coping with radiation and chemo. I was in and out of the hospital for treatment. The entire treatment took…
Relatively off-topic; interesting article
Researchers at Stanford University say they have found a new way to stop the spread of cancer. http://engineering.stanford.edu/news/stanford-researchers-create-evolved-protein-may-stop-cancer-spreading
Bunnymom Update Finished Treatment in Recovery
I haven't posted for months. I finally finished treatment almost three weeks ago. I'm in recovery now. My treatment was five days inpatient, nine days home for seven rounds so treatment actually lasted about 14 weeks. One time per day radiation (35 rounds) with 5 FU and Hydrea. I was very focused on the treatment during…
BunnyMom Update Finished Treatment.
I haven't posted for months. I finally finished treatment almost three weeks ago. I'm in recovery now. My treatment was five days inpatient, nine days home for seven rounds so treatment actually lasted about 14 weeks. One time per day radiation (35 rounds) with 5 FU and Hydrea. I was very focused on the treatment during…
Silvadene Cream
Hi All, We got the Silvadene cream and he put it on his radiation burns last night. He is almost incapatacitated from the pain now. It made the burns hurt a lot worse. Did anyone else have this happen?
Newly Diagnosed Adcc
Hello everyone! Unfortunately I'm new to the forum and can't say I'm glad but here I am;) I felt a tender spot vicinity my submandibular several months ago and had an MRI done to see what was going on. The MRI showed a small 'almond sized' tumor in my left side submandibular. A biopsy was done and the results came back as…
Starting radiation Overweight
Has anyone else started radiation being overweight? I am significantly overweight, about 100 lbs. I know the doctors say this is not the time to "diet", but it would not hurt me to lose a few pounds. I had surgeries 7/8, 8/11 and start radiation on 10/6. I have eaten and drank ok so far throughout recovery. I have not lost…
HBO & eyesight
Had 30 HBO dives so that I could have some teeth removed. It’s done and over with now. Having a bad effect on my eyesight and been told that it should return in time. Had the last dive 9 weeks ago. My distance vision sucks to say the least and I avoid night driving. Any insight on how long it may take to get my eyesight…
Cetuximab
I dug and dug through papers I had received and hid away and found the name of the clinical trial drug that was presented by my team. I signed the paperwork to participate but am able to change my mind. It is called Cetuximab. Has anyone had any experiences with this drug?
Simulation and Cannibis
My simulaton was today and I survived. My daughter drove me (she is 9 months pregnant) and gave me a lorazepam just prior to and also held my hand. The mask was surprisingly comforting. It did feel warm like a facial and I didn't mind it at all. As soon as they put it over my face she immediately pulled on it in the nose…
New Diagnosis 7/8/14 and Thank You to All
I was diagnosed on 7/8/14 with oral cancer. My method of coping was to tune out a lot of the information the doctors gave me, I just went and did everything they told me. I like and trust my doctors, I was just very angry with my diagnosis and thought it would just go away if I ignored it. I don't have all the factual…
Post treatment PET scan
I just had my post pet, my Dr. Called and told me it was clean NED. Now I get to have the PEG removed next week. my treatment was for SCC BOT, involving 2 lymph nodes. I had 35 rads and 3 Cisplatin chemo. thanks to all for the well wishes and prayers. Mike
Another needle biopsy tomorrow LOL
This is the lump that's adhered to my trachea. The lump that was a clip. Then it wasn't a clip. Then it was biopsied and 'acellular'. Then that was inconclusive. Then it adhered down to my trachea. Then it grew. This is a poem. I'm in a silly mood today. This is the third lump/biopsy since April. I'm done being morose…
mucositis - worried and fed up
Hi there,, Its been 7 weeks since my treatment. I am suffering from mucositis. My tongue seems swollen at back, have seen white dots come and go. My mouth is sore. It seems most foods are stinging my mouth so its difficult to find foods to eat. I still have my peg and drs have given me another 3 weeks to see if Im eating…
Anyone heard from Skiffin - John
Haven't heard from John in awhile. Last I heard he was moving forward, all be it slowly. I miss his humor and fish stories. Debbie
Bad week
Can't remember if I posted that my mom doesn't have to have part of lung removed. They think they can remove the inch and half benign tumor with a laser through broncial tube. That was great news and an answer to prayer. The rest of the week was pretty emotional. I guess I took a few steps backward thinking about Jim's…
Finished treatment almost 3 weeks - follow ups
I had stage 3 squamous cell carcinoma base of tongue metastasized to lymph, 40 rads, 1/2 way through, cancer 90% gone according to pet scan. Unfortunately, the side effects hit worse than ever a week after treatment and my son brought home a cold last week and now stomach bug. I've maintained weight, stay hydrated. I'm…
Cannot breath lying down and radiation is to begin
Hi all, My simulation is Wednesday but you know 3 days is too long to wait for my questions. I'm hoping someone here has experienced this first hand and can lend some support. I am absolutely terriefied that my radiation treatments will have to be postponed because when I lay down on my back I cannot breath through my…
PEG Issue
Hello all, I hope everyone doing as well as they can be. I was wondering how long this PEG tube should hurt? Well not really hurt but be aggrevating. It has some leakage around it yet, is that normal? I had it put in on the 9th of this month and saw the Doc that put it in on Tuesday of this week. I thought it was too tight…
unable to swallow
one year after 36 rads and 5 chemos i went in for a radical neck disection and have not been able to sawllow sence is there anyone that has had that problem? Thanks Mike
Throat Cyst Removal Recovery Question
Hi so I had surgery where my ENT removed a cyst at the base of my tounge. He told me I should feel no pain but 5 days later every time I swallow I feel stabbing knife sharp pain where the cyst used to be. I'm a little concerned because he said it's not cancer and I'm concerned because he sent it in for pathology test…
Bell Ringer
Hubby rang the bell yesterday! We are home now. He asked me to ask you all how long it will be before he starts to feel a little better? He did 9 rounds of chemo and 33 rx. Hope you all have a great weekend.
"Phantom" Pain (paraesthesia) in tongue flap - LOL - FRANKENFLAP!!
Am I the only one who experiences this phenomenon in the tongue flap? I've had it ever since surgery. It isn't usually 'terrible' pain. More tingles, and the sensation that the flap is moving, when it isn't. My flap has no innervation, it's "insensible" - so this is strictly a 'brain' thing, the same phenomenon as phantom…
Cetuximab
Hi all, Today I met with my chemo oncologist and he wants me in the clinical trial for Cetuximab rather than give me Cisplatin. He explained that Cetuximab is given one week prior to my radiation treatment, during the 7 weeks of prescribed radiation and then for one week following radiation. I will not receive a port for…
Side effects
I was diagnosed with stage 4 tonsil that had spread to lymph nodes on the right side of my neck. I had 7weeks of Chemo/radiation and have been NED for the last year. so far my taste buds have not returned, neck spasms even after 3 months of physical therapy with shoulder pain for some reason and since this all happened…
Jim's birthday coming up and more good news for mom
Jim's birthday will be here Sunday. Not sure how this will effect me. I thought 4th would benothing because we really didn't do much on that holiday, but it was very hard. The most we did for Jim's birthday was have a nice dinner out but maybe that will be hard too. I have an appointment tomorrow with the grief councelor…

Head and Neck Cancer

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