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Weirdest side effects after NPC treatments
After my npc treatment, i am having these strange side effects and wondering if anyone experiencing the same, such as, one side of my **** frequntly start to ace during the night, the bottom half of my mouth and lips/chin is numb, i cant touch my hair because it will hurt my head. Is these normal side effects? Even my…
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Life after cancer
This may be the time i am hitting the brick wall although treatment may be over, i just feel i cannot put the cancer to the back of your mind and park it there. It still overwhelms my thoughts and interferes with my day-to-day living. However, i have managed to reach to a point that i have made peace with god. If he deems…
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My aching back...help, I need sleep!!
Oh my goodness...my back! I have to sleep propped up on at least 2 pillows. My face is STILL heavy a year and a half later. Plus, the gunk that builds up in my throat at night doesn't help either. If I lay any flatter than 2 pillows, I wake up choking and have to drink, rinse and spit several times. Propping up helps with…
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Lump below chin
I just about 8 months post treatment of NPC (stage 3). I have done 35 X of radiation and 7X of chemo (Cisplastin). My CT scan was 3 months ago and my ENT doctor said it was no problem. Recently, I found a small lump (I guess < 1cm) below my chin. Before the treatment, there were 2 lumps at my neck but all gone after the…
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So, Peg and I finalized our divorce today...
She fed me well while I was down and out for several weeks but she really started to become a pain at the end. Insisting that I change her dress every day and having to clean around her all the time was becoming a chore. I told her weeks ago that I didn't need her to feed me anymore and I could feed myself, and I frankly…
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Monthly check up
had monthly checkup today....alls well on the throat and neck, after next month I shall be on every 2 months so that's progress. I have a consultation with the esophigagus surgeon next month to talk over my blockage. My biopsy on my lip shows abnormal pre-cancerous cells have to see surgeon next month on that. I can't wait…
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I need help with my next fear in this process
Hello all, I need help with this. My simulation for radiation is scheduled for the 24th. I'm just recovering from left tonsillectomy and neck dissection. When I woke up in recovery from these surgeries I felt like I was being choked. I couldn't get the air into my lungs. As I'm sure many of you can relate, this is a…
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How long from the end of tx until you went back to work?
I finished my treatments on Aug. 20 and am looking to be back at work by Sept. 29 hopefully. My energy level is getting much better, taste still sucks but I can work around that, the peg comes out this week, haven't used it for two weeks. I just don't want to work for two weeks and then my energy levels crash, that's my…
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Neck Spasms
Hey All, I'm new to the site and would like to say hello to all of you first. I came here for this subject specifically in search for some new ideas on pain relief and treatment. I'm 5 years out from radiation and although happy to have survived I am never happy with the quality of life I'm left with. Since completing 7…
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Taste: As mad as a box of frogs
Anyone else experienced this? Interested in whether it's possible for things to settle down? (Surgery Dec 2013, Radio finished 21.03.14). I remember saying to my nurse that, despite being quite unlucky with Grade 4 mucositis, after my hemiglossectomy and radio, that even though I now have a gobfull of scar tissue and…
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Ok I am a whimp!
Been off for a few days with pain from this PEG they put in. Is this normal? I am having spasms that run into my back, from around my rib cage. I am not on any pain meds. Only tylenol. They put it in on Tuesday afternoon and it just seems to get worse. I called the Doc office and was told he was out of the office and they…
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Bulldogger1
Just wondering how are you doing with the treatment Tim Hondo
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Checking In!!! Just passed the 2 year mark and still NED!
i see a lot of new names out there. hopefully the old ones are still out there too. other than all of the "normal" difficulties, life is good. i've gained back 20 of the 40 pounds i lost. mostly due to mass consumption of mexican food. my anxiety is through the roof but whatever. we have 4 dogs now even though 3 was my…
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PET Results
PET results show no sign of cancer!!!!! Inflammation in cheek from infected titanium still seen. Next PET in 2-3 months. Wonder what BCBS will say to that...... Ended up in hospital at Mayo Tuesday night. They thought possibly cellulitus had seeded to blood stream. ER doc said it would be a shame to survive cancer 3 times…
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so very sore throat :-(
Hi there, I know I'm in early stages of recovery, it's been 5 weeks since treatment. But could somebody please tell me , how long before there is any sign of the throat healing ? Especially at night, seems to hurt more. Feels like I have something stuck in base of throat and I gag an awful lot especially after brushing…
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*Artificial Saliva Product Review*
Hi Gang I've done quite a comprehensive review of several artificial saliva products - tried and tested them over the last few months. I've sent it to my cancer nurses at the hospital, and it's going to the support group I'm in. Would you like me to post it here? It wouldn't be advertising of course... just someone that's…
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Chest scan upcoming Update 9/16/2014
A lot of you know that a couple of years ago a small nodule was found in my left lung, it turned out be cancerous. It was found whilst have a nuclear stress test. Was really small, I showed the oncologist the scan and he said we could do a biopsy if it got larger, over the next three months it did increase in size. I chose…
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Husband starts treatment next week--primary is tonsil
I've been lurking around on this site since my husband's diagnosis on Aug. 11. It's been a great resource and even though I'm scared, I have a lot of hope as well. His started like much of your stories...found a lump on the right side of his neck in March. His primary doctor sent him for a CT right away and to an ENT. They…
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Ding ding dinggg :) :)
Hello all, hope all is going well so far. I finished rads :) )) what a ride !! doctors said nothing can be said now in 2 months I'll be having an MRI and we'll see the result. I'm positive I kicked it in the *** :) lol headaches and fatigue are here. Tasting is horrible, spending my day on Ensure, apples, jam, and 1 type…
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Fistula
I was looking at the fistula postings and wondered, does radiation mean that all of your body is affected or only the places where it touched or went through. Say' if I had an op on other places on my body I may get a fistula? Another question with side affects has anyone had persistent coughs since rads. I finished rads…
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What to eat after loss of taste buds
Hi, I am in week 4 of my radiation and chemo treatment. I lost my taste buds about 3 weeks ago, but can still swallow. The problem is everything I eat is horrible tasting-not flavorless- just horrible. I have tried so many foods only to toss them aside. What are some of the foods that you guys could tolerate? I really need…
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Mom's biopsy report
Good news. My mom's biopsy came back negative on the tumor for cancer but a-typical cells on the brushing. The bleeding was from a vein that the tumor is rubbing. Doctor says tumor needs to come out because it is blocking airway and the vein could rupture. He is talking with a surgeon. 1/3 of her lung will be removed. They…
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Fistula
I recently saw posts from others that have had fistulas. Wondering where they were and how they were dealt with. I had one years ago when I had a parotidectomy, It was behind my ear and cured with an air sickness patch. The one I have now, under my chin, is larger and more serious. Some titanium from my jaw is actually…
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Tumors in the head/neck
Looking for help from anyone post op who has had neck surgery to remove a carotid body tumor. What if any complications have developed and what courses of treatment have been used for pain control/relief .
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CHEMO RELATED TINNITUS
I am back on Cisplatin, has anyone yet heard of any relief being developed for Chemo Related Tinnitus? My first time around in 2010, I was told there is not a cure. I am curious, as I see my Doc and or APN Tuesday regarding my current status of treatment. Update to last post regarding CT news. My scans were very good, and…
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Complimentary therapy
I All, back at work Monday. Just had a week at a treatment / therapy centre. Lots of conventional gym work etc but also tried some complimentary such as Reiki. Given my cynicism was very impressed - relaxing and boosted energy. Hot stone massage good also. Any other recomendations. To be clear I am not advocating anything…
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Update from 8/29/14 post
Today went to the Radiologist.. He is a radiologist/oncologist.. And.. I am stage 4... not 3 like they first suspected.. the tumor is larger and more damage than originally thought..according to the PET scan.. he also found a lymph node in my neck that looks suspicious.. he wants a new MRI and another CT scan to over lay…
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Two Year Post Tx Scan
Have you met NED from Oklahoma? We have! Hubby's two year post-tx Pet scan came back clear as a bell. We are beyond relieved and happy. since I don't post like I used to, background is SCC left tonsil Stage 4 two node involvement. 35 rads over 7 weeks. Was supposed to have 3 cisplatin but too sick for the last chemo…
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Natural Way of Healing Cancer?
Hi everyone :) I have a question? Is there a natural way to cure cancer? Like taking herbal supplements? My mother and I are both taking xanthone supplements plus moringa.... we are taking it 1 cap, three times a day... hope it can lessen the tumor of my mother on her neck...according to her ENT friend, it is just…
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Worried
Hi. For 1 month, I have swollen lymph nodes on my left neck under the jaw, they are not painful. I also noticed pimple like bumps on my left tonsils (bumps with white spots inside), it is not painful. Whenever I swallow there is something itchy inside my left ear and when I burp, a muscle on my back neck aches. I have…